Cant tell whats real
My diagnosis is Aspergers but at the moment i am having trouble realizing whats in my head and whats "real" I realise this because when im talking to my hallucinations or whatever you wanna call them someone will say my name and bring me back to the "real" world, im really struggerling with this but my workers or professionals just say its my aspergers but how can it be. The Doctors or Psychologists dont believe me they just keep saying its my Aspergers. So if you guys are struggerling with the same thing or know of this problem can you reply.
I talked to some autistics who had psychotic symptoms at one time in their life and I find it interesting that many of them noticed it while being in this episode.
It's not part of your Asperger's.
Either you were missdiagnosed or you have a psychosis in addition.
I don't understand why your doctors don't take this serious, but try to tell them again or try to find another psychiatrist who will listen to you.
_________________
"I'm astounded by people who want to 'know' the universe when it's hard enough to find your way around Chinatown." - Woody Allen
my feelings towards this area are not pronounced but i cant see any other way to voice some
aspect towards these specific conditions and traits.
alot of people here write about someone being atypical or non-typical asds on the spectrum, im
just wondering in this forum has anyone else non-typical or otherwise ever had with a clear conscience
of knowing if their own diagnosis may have been misinterpreted by some people working within
the current field of autism related issues?
I myself have had painful mental assessments in the past and i remember feeling ashamed on more than one occasion as i constantly felt critiscised and that i may be doing something wrong, more than anything else.
some conditions had sprung to mind, by simply looking on the nas sites and relatively similar ones.
like for instance people who think as they are older or are getting older, have i over-stepped the mark or has
someone crossed the line with me once too often? and what should i do about it? if theres anything you can do.
so, some of these like pda pathological demand avoidance syndrome have made me wonder more than the schizotypical side of things. for one thing i know i am on the spectrum somewhere, and often question what that means, without it appearing too far fetched or noticeable. For one thing anyway, most people dont look at you twice before forming their biased judgement of you when you state yourself by your own conditionary means or guidelines as this is what tends to sum
up sarcasm or failure to read between the linesto some extent. for one thing i can honestly say, i could look people in the eye,
although not for great lengths before i got too anxious and was mostly straightforward too. for most things i would get disciplined for just 'saying the wrong thing' or not achieving my fullest potential' whilst underlying the root cause was so often missed and then i was told loads of things like your child has a speech impediment coz often i would go mute or blank people out when they got too much, although i do remember with clarity that if someone weaker than me suddenly took on the role of people
pleaser id think why they doing that if only too serve their own means or purpose. no one in my year group was ever intuitive or able to seek out common initiatives. Usually they would look up to their teacher for that supply of better input, i would just scorn them and collevtively
pursue my own means within my own right, whether that be reading at great length, performing to a group with added difficulty or just finding a solitary place to hide my better uses, as i felt i had none. some members of my class group in junior school would be quite distractive continually and i quite often
drew this to to the fact they had a problem, which most of them did who i describe. they just didn't care and i was often stuck with them within thought thinking discussions and contemplation exercises. i also knew i was different but not that stupid. ofcourse i didnt understand my temperament that well either.
only as i grew older did i find my niche in some areas of musical study or creative activity. People dont just invalidate better input they dont appreciate it either.
It s not about pushing someones boundaries or finding where their limits truly lie, but to find the voice which sticks to your head like a magnet at times and not breathe out a rapid sigh of deep affective impulse when the impatient if not partially deceptive pursuit lies elsewhere..
This is just my illustrated point within frightening episodes of temporary physcosis or other blinding infrastructures which make little or no sense within a persons self-limited structure or thought pervasive behavioural pattern and i opt for a better attitude now that does not shut down or re-organise mind concepts and powerful disbeliefs within an already confusing mind territory that most people have or have not experienced for very long and do not wish to share their own episodes within any 'safe' marginalised territory.
http://www.cerebra.org.uk/English/getin ... s/PDA.aspx
PDA is different from schizotypal because in PDA the sensory symptoms are no different from autism. Things like hyper and hypo sensitivity to senses, or difficulty interpreting senses. But hallucinations are not part of PDA (though the strong fantasy behavior can make them seem like they're hallucinating, they really aren't).
(I'm self-diagnosed as PDA, by the way. I'm too old and on the wrong continent for an official diagnosis, but my parents and I both think it describes me really well.)
A combination of autistic and schizophrenic symptoms is common.
That's why they invented in the 80ies McDD: http://medicine.yale.edu/childstudy/aut ... n/mdd.aspx
a combination of autistic and schizophrenic symptoms since early childhood. Sadly many psychiatrists don't know about McDD and so they just try to explain the behaviours with either one diagnosis or worse with a totally different one.
The difference between McDD and schizophrenia is, that you have those schizophrenic symptoms since early childhood. They can lead into fullblown schizophrenia, but don't necesserally have to. Also the autistic symptoms are usually less severe than in autism.
I believe I've either autism + schizotypal or McDD.
On the netherlands McDD is diagnosed fairly regularly, but other than that it's sadly mostly just overlooked.
Maybe you have McDD?
_________________
"I'm astounded by people who want to 'know' the universe when it's hard enough to find your way around Chinatown." - Woody Allen
Sadly there aren't many who have experience in it.
![Confused :?](./images/smilies/icon_confused.gif)
I've just found a webpage with diagnostic centers in the Netherlands and Belgium:
http://www.mcdd.be/diagnose_en.htm
and of course the Yale University, but other than that no clue.
![Confused :?](./images/smilies/icon_confused.gif)
But I can give you the links I have about McDD:
- http://mcdd.webs.com/
- http://www.nature.com/npp/journal/v28/n ... 0046a.html
maybe this will also help:
- http://www.ncbi.nlm.nih.gov/pubmed/22421071
- http://www.ncbi.nlm.nih.gov/pubmed/20933368
I would also like to get checked, but I also don't know were and to go to another country because of that would be propably too much.
_________________
"I'm astounded by people who want to 'know' the universe when it's hard enough to find your way around Chinatown." - Woody Allen
I don't know exactly, but I think it would be uncommon, but possible.
McDD is still a research diagnosis, that's why it's still not a "normal diagnosis" and just fiew researchers look into McDD.
It would be nice if it would be a "normal" diagnosis one day, but I also guess it's very hard to diagnose exactly.
_________________
"I'm astounded by people who want to 'know' the universe when it's hard enough to find your way around Chinatown." - Woody Allen
I don't know exactly, but I think it would be uncommon, but possible.
McDD is still a research diagnosis, that's why it's still not a "normal diagnosis" and just fiew researchers look into McDD.
It would be nice if it would be a "normal" diagnosis one day, but I also guess it's very hard to diagnose exactly.
I think it would be especially hard to tell the difference between normal childhood fantasy or magical thinking and actual delusions. Some Autistic children that get so deep in their fantasies may seem delusional even if they're not.
Last year I spent a couple of uncomfortable days having to come to terms with a sudden onset of delusional thinking - part of me knew that what I was thinking was not right. The thoughts were insistent, and at times I was very afraid.
There has been only one incident, not sure what triggered it, and hoping it is not a sign of things to come. Preference would be for it merely to be a result of stress, or something I ate.
Keep well!
_________________
'You seem very clever at explaining words, Sir,' said Alice. 'Would you kindly tell me the meaning of the poem called "Jabberwocky"?'
I don't know exactly, but I think it would be uncommon, but possible.
McDD is still a research diagnosis, that's why it's still not a "normal diagnosis" and just fiew researchers look into McDD.
It would be nice if it would be a "normal" diagnosis one day, but I also guess it's very hard to diagnose exactly.
I think it would be especially hard to tell the difference between normal childhood fantasy or magical thinking and actual delusions. Some Autistic children that get so deep in their fantasies may seem delusional even if they're not.
Also one of the problems of McDD is, there are still no officiall diagnostic criteria, so you will find slightly different once (wich I sometimes match, sometimes not quite), so that just experts in this field who have knowledge can diagnose it exactly.
I'm not quite sure if I fit the exact description of McDD as a child, because McDD is devided into three areas:
1) autistic symptoms
2) affect regulation
3) thought disorder
and I already had some "magical thinking" as a child and clearly autistic symptoms, but problems with my affect (high anxiety level, depression etc.) first really started in puberty.
I'm also not quite sure if you need McDD to explain those symptoms, of if it would make more sence to give those indivuals just more than one diagnosis and argue that those are common comorbidities. I guess we would really need research in this area. Because there is some truth to it, that there is a number of people you could diagnose back and forth. The reason why I personally think that a diagnosis of McDD in the diagnostic system could be necessesary is the fact that the difference between McDD and schizophrenia is, that unlike schizophrenia McDD "symptoms emerge in earliest childhood, often in the first years of life, and persist throughout development."
_________________
"I'm astounded by people who want to 'know' the universe when it's hard enough to find your way around Chinatown." - Woody Allen
i dont believe i have mcdd. for one thing, there is mixed controversy between the pdas condition and autism
spectrum disorders. i think it is a pervasive development condition but lacks any further tests other than again, early prognosis made inside a childs development. i dont think that it was at all widely recognised then, same with mcdd.
PDDNOS for one thing could be just another way of them telling you, oh, i dont really know
maybe you're on this or on that spectrum with that disorder as such but to no recognised disabilty issues apart from learning slower
and being more or less able than some of your fellow peers. i dont count it as any shortage or degree of accuracy.
ASD or aspergers as my former g.p thought was bewlidered by all condonements of the condition, describing it first as autism then as something else when i showed him a g.p referal guide to someone with asperger syndrome which wasn't so apparent then as research is now. so really, when someone asks themselves truly, do i have this or that wrong with me and not getting confused with
just minor disabilites which do not exist on a persons record due to their achievements being quite good the real question is,-
yes autism is an issue for me, or at least a related issue, but getting around it, to acquire some accuracy towards it , eventually leading to a diagnosis, is not so forthright yet compells those who have never really dealt with it before.
The real failure is someone who is not willing to deal with the issues surrounding them.
I don't know exactly, but I think it would be uncommon, but possible.
McDD is still a research diagnosis, that's why it's still not a "normal diagnosis" and just fiew researchers look into McDD.
It would be nice if it would be a "normal" diagnosis one day, but I also guess it's very hard to diagnose exactly.
I think it would be especially hard to tell the difference between normal childhood fantasy or magical thinking and actual delusions. Some Autistic children that get so deep in their fantasies may seem delusional even if they're not.
Also one of the problems of McDD is, there are still no officiall diagnostic criteria, so you will find slightly different once (wich I sometimes match, sometimes not quite), so that just experts in this field who have knowledge can diagnose it exactly.
I'm not quite sure if I fit the exact description of McDD as a child, because McDD is devided into three areas:
1) autistic symptoms
2) affect regulation
3) thought disorder
and I already had some "magical thinking" as a child and clearly autistic symptoms, but problems with my affect (high anxiety level, depression etc.) first really started in puberty.
I'm also not quite sure if you need McDD to explain those symptoms, of if it would make more sence to give those indivuals just more than one diagnosis and argue that those are common comorbidities. I guess we would really need research in this area. Because there is some truth to it, that there is a number of people you could diagnose back and forth. The reason why I personally think that a diagnosis of McDD in the diagnostic system could be necessesary is the fact that the difference between McDD and schizophrenia is, that unlike schizophrenia McDD "symptoms emerge in earliest childhood, often in the first years of life, and persist throughout development."
Well that would prevent it from being diagnosable in childhood. You have to wait and see if the symptoms persist in case they are a childhood phase. I know when I was three I thought my jack-o-lantern ring had magical powers and I thought I could fill it with more power by singing the words "power to the pumpkin" when holding it. I sang to it all the time and my mom thought it was cute. She didn't know that I really just wanted to control people and it wasn't so cute if you knew what I was really thinking about while singing those words. I was an extreme magical thinker and it only went away gradually. I still believed I could influence things with my own will or thoughts when I was 7.
I am not McDD. I'm perfectly normal right now. Like you I had both magical thinking and Autistic symptoms as a child but many children hold magical beliefs and outgrow them. That would make things very complicated.
I am not McDD. I'm perfectly normal right now. Like you I had both magical thinking and Autistic symptoms as a child but many children hold magical beliefs and outgrow them. That would make things very complicated.
Oh, okay that's interesting I didn't know that.
So far I read the most "classic" symptom of McDD is that one: "confusion between reality and fantasy"
What I read about it is, that some are claiming that many of those children would get a schizotypal PD if they would be adults, but the problem is that personality disorders aren't diagnosed in children. So than it would make sence to wait if those symptom persist, how you write it. But then we still have the problem we have today that those children end up with all kind of lables and confused parents and professionells who aren't sure how to treat those children.
What I don't understand is, can you really tell the difference between "normal" magical beliefs in children and "not normal" magical beliefs?
_________________
"I'm astounded by people who want to 'know' the universe when it's hard enough to find your way around Chinatown." - Woody Allen
I am not McDD. I'm perfectly normal right now. Like you I had both magical thinking and Autistic symptoms as a child but many children hold magical beliefs and outgrow them. That would make things very complicated.
Oh, okay that's interesting I didn't know that.
So far I read the most "classic" symptom of McDD is that one: "confusion between reality and fantasy"
What I read about it is, that some are claiming that many of those children would get a schizotypal PD if they would be adults, but the problem is that personality disorders aren't diagnosed in children. So than it would make sence to wait if those symptom persist, how you write it. But then we still have the problem we have today that those children end up with all kind of lables and confused parents and professionells who aren't sure how to treat those children.
What I don't understand is, can you really tell the difference between "normal" magical beliefs in children and "not normal" magical beliefs?
I'm not sure. I think it would be hard to tell if at all possible. I think that's why McDD isn't an official diagnosis and schizotypal personality disorder can only be diagnosed later in life. I can only tell that my magical thinking was a childhood phase now that it has faded.
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