Anyone with Generalized non convulsive seizure disorder here

Post Reply New Topic

or something simmilar. I you do know spicificly about Generalized non convulsive seizure disorder that would be great but any disorder will do. How do you deal with it? What do you do when you have a sizure? How does it affect your life?

No I don't, but my ex girlfriend has severe epilepsy.
She has approx. 200 seizures a year.

So I have some experience with seizures, but not in person.

She usually knows some seconds earlyer when she'll have seizures and lays down. Afterwards, sometimes she sleeps for hours, but not always. She still goes outside and everything, but most of the time with someone else.

I don't know anyone that has it, but from what I understand, it involves absence seizures, right? 'Non-convulsive' means you don't stiffen up and start jerking rhythmically, and generalized means you lose consciousness.

Firstly, like any seizure disorder, the right medication will be important.

Since you don't have convulsions, the risk of injury is much lower, but even so, if you've been having seizures lately, be careful about any activity where suddenly freezing could pose a risk of injury. Don't drive any vehicle, including a bicycle, until your seizures are under control.

I was diagnosed with what's known as a complex partial seizure disorder, though there's some debate amongst my treatment team as to how the EEG should be interpreted. But since starting an anti-seizure med, I've not had what I call a "seizure-like event".

I've known a couple of people with epilepsy over the years. The right medication plus avoiding any seizure triggers (e.g.: strobing light) makes living with a seizure disorder doable in most cases.