Looking for info/help figuring out my seizures

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Im struggling to figure out some suspected seizures that Ive been having over the last year, would appreciate any help/guidance/info/suggestions anyone has. Please PM me if you are willing do discuss this with me.

Have you talked to a neurologist?

Yes, talk to a neurologist. A third of people with ASD have seizures, and they may be dangerous.

Sorry bwt delay in replying, yeah I've talked to a neurologist who on the basis of a half hr EEG recons I'm fine and have no need for neurology services - hence it's falling to me to figure out what's going on so I can tell our extremely flawed medical system what I need.

I could be also dissociation.
But with your EEGs, you just can be sure when you have a seizure at the same time as the EEG is taken.

Did you have one of these episodes while being recorded by the EEG?

If you didn't, you need to be retested. Maybe ask for a 24 hour walking EEG (where you go about a typical day with a portable EEG attached to you).

If you did, well, differential diagnosis depends on the specific symptoms you're having. Dissociation can mimic seizures (particularly absence or complex partial seizures). So can heart and/or breathing problems (if you feel faint and/or collapse with loss of consciousness). I'm sure there are other differential diagnoses that I don't know about.

we users cannot know anymore than the neuro though,we can only offer personal opinion/advice.
mine is to get a second opinion with a longer EEG.

have personaly had a three day long EEG before,as they wanted to know if there was seizure activity behind head banging/self injuring and meltdowns-as am severely epileptic.
had had a mobile EEG pack in a shoulder bag and was able to go around the hospital and around the outside of it but not allowed outside the gates,perhaps they thought woud get stolen as the hospital is in a bit of a crapheap [salford,it was a specialist neuro hospital called hope].


its possible it might not be seizures and may be of a pyschological origin instead,and in this instance they are called attacks rather than seizures, possibly because of the years they have been confused with epilepsy and wrongly medicated,here is a useful site for reading up on-
http://www.nonepilepticattacks.info/

there is no question though will have to have another EEG whilst are having a attack,is there any triggers that coud bring it on?

Thanks for the opinions. I think I'll need to try and get another EEG from the sounds of things. I have looked into non-epileptic attacks however thier profile does not fit with what I experience. I think dissociation may be a possibility however it wouldn't cover the more tonic-clonic episodes.