Page 1 of 1 [ 12 posts ] 

love2connect
Raven
Raven

User avatar

Joined: 3 Sep 2015
Age: 31
Gender: Female
Posts: 123
Location: cali

03 May 2020, 9:07 pm

Trying to make long story short, I do not know if I am on the autism spectrum but I do certainly know that my mind is neurodiverse, which is why I find great comfort here sometimes.
I found out a year ago that I have been struggling with generalised epilepsy. I've had it ALL of my life and therefore, it affected the way that my brain functions. I am now on the appropriate med for it but I wonder if I am getting symptoms of ADHD and fatigue.

Some of the symptoms (not necessarily bound to ADHD/ADD) I notice - I cannot switch from one subject to another. I have to literally do one subject one day and another subject the next day. My motivation is sometimes there, sometimes absent, but I cannot get myself to really do any work. When I do end up forcing myself to work, it feels very empty and I am only half present, the rest of me is zoned out. I have a lot of trouble organizing information into the correct categories. (This one is not a huge problem, I think my mind just wants to know the 'why' behind why things are grouped together. But it would be nice if I could organize a bit better). There are probably more that I am missing but I honestly do not know a great deal about ADHD/ADD.


Well, my question is,
Do you take stimulant medication and does it help you? I am curious what stimulants can be like for the neurodiverse mind.
I might have to take it anyway for the massive fatigue I keep experiencing. But I am a little scared. I have a video appointment with my psychiatrist tomorrow and I hope she knows how to help.



SyphonFilter
Veteran
Veteran

User avatar

Joined: 7 Feb 2011
Gender: Non-binary
Posts: 2,161
Location: The intersection of Inkopolis’ Plaza & Square where the Turf Wars lie.

25 May 2020, 9:02 am

Yes, I take stimulant medication for my ADHD. It’s a lifesaver. That, and leaving Post-It notes everywhere. As well as engaging in talk therapy with a therapist.



Noca
Veteran
Veteran

User avatar

Joined: 9 May 2015
Gender: Male
Posts: 3,932
Location: Canada

26 May 2020, 5:32 pm

I have ADD and have tried Methylphenidate IR, SR, CR, Concerta, Wellbutrin SR, XL, Dexedrine IR, Vyvanse, Adderall XR. While they worked for my ADD and Adderall XR even helped my social skills immensely, I just couldn't tolerate the side effects. They destroyed my appetite, altered my taste so everything tasted like cardboard and they caused my mood to go on a rollercoaster everyday. I felt wired too and had more difficulty sleeping than I already had. My grades went from 60's to mid to low 90's over night but the drugs were unsustainable for me so I stopped taking them. I doubt I will ever take them again. I'm on disability anyways for other health issues so I don't think I will be needing them for school anytime soon. I guess I am stuck with my ADD *shrug*



renaeden
Veteran
Veteran

User avatar

Joined: 12 Jun 2005
Age: 47
Gender: Female
Posts: 2,333
Location: Western Australia

27 May 2020, 3:31 am

I have been taking dexamphetamine for over 15 years and I'm fine taking them. Sometimes I'll lose my appetite but if I eat when I take them then there's no problem. I take 15mg in the morning and 15mg in the early afternoon.

Vyvanse, which is long-acting dexamphetamine, is set to become cheaper later this year in Australia. I'm really looking forward to that because it will be a lot more convenient to just take one pill in the morning.



millyrenae
Emu Egg
Emu Egg

Joined: 1 Jun 2020
Age: 2021
Gender: Female
Posts: 1

01 Jun 2020, 10:19 pm

my personal experience is that they give me an intense desire to do something. not always the task at hand, though. For example, I often feel tempted to work on my novel instead of do schoolwork.

a pro though is that sometimes if i'm taking a new combination or dosage, i get this tingly feeling in my head when the effects are at their peak.

please keep in mind that everyone's med experience is different and that mine shouldn't decide whether or not you try medication!



IsabellaLinton
Veteran
Veteran

User avatar

Joined: 1 Nov 2017
Gender: Female
Posts: 72,422
Location: Chez Quis

01 Jun 2020, 10:27 pm

Yes I just started ADHD meds for combined presentation prior to lockdown. The dosage hasn't increased according to the plan, because I haven't been able to see my GP doctor for adjustments. I'm in a holding pattern at a relatively low dose. I will talk to my Neuropsychiatrist this week on Zoom and he will be advising my GP if there is a change of plan.

I'm not good at self-observation or noticing patterns in my own behaviour because of alexithymia. I hope the Neuropsych has some very specific questions for me about the efficacy because otherwise I can't judge for myself. What I've noticed is that I'm not tired during the day (or ever) and I get a lot less sleep. I've dropped a lot of weight effortlessly, which wasn't really needed. I seem to have more mental energy too but .... a) I still have executive dysfunction and can't necessarily do anything productive with that energy -- but maybe this would be different if we weren't in lockdown? b) When I do focus on something it is more of a hyperfocus than a productive focus. For example I spent 18 hour days on Ancestry last week in a flurry of obsession but still had no ability to approach it systematically or with a plan. I just went at it in every direction all at once.

I feel like no matter what the ADHD meds does for my energy, Autism will trump it because of my executive dysfunction, my special interests, and my alexithymia.


_________________
I never give you my number, I only give you my situation.
Beatles


broccolichowder
Tufted Titmouse
Tufted Titmouse

User avatar

Joined: 11 Oct 2016
Gender: Female
Posts: 35

06 Jun 2020, 10:29 am

I have been on meds for a couple of years and they have significantly altered my life in a positive way. I realize now that I have had massive social deficits, and with the medication, I am better able to identify and work on those.

IsabellaLinton wrote:
I seem to have more mental energy too but .... a) I still have executive dysfunction and can't necessarily do anything productive with that energy -- but maybe this would be different if we weren't in lockdown? b) When I do focus on something it is more of a hyperfocus than a productive focus. For example I spent 18 hour days on Ancestry last week in a flurry of obsession but still had no ability to approach it systematically or with a plan. I just went at it in every direction all at once.


Medication can be tricky because there is a balance. Your executive dysfunction will not go away, but I think the extra energy is because of the lockdown. When I take my medication and have nothing to do when they start working, I end up getting anxious. It helps to have other things in place, such as knowing what you're going to do when you wake up ("I will take my meds, eat breakfast, and then start cleaning the bathroom") and using timers to help you switch tasks.

Edit - Sorry, didn't really answer the OP's concerns. The medication helps with the fatigue unless it's caused by something such as not getting enough sleep. You have to work with it and understand that it doesn't solve everything, so other strategies must be used to complement the medication. Good sleep, some exercise (even if it's just a walk around the block), and those things. Also using skills and techniques like (as mentioned above) timers and lists.


_________________
many ASD traits - not formally diagnosed


Pepe
Veteran
Veteran

Joined: 11 Jun 2013
Gender: Non-binary
Posts: 26,635
Location: Australia

11 Jun 2020, 7:08 am

SyphonFilter wrote:
Yes, I take stimulant medication for my ADHD. It’s a lifesaver. That, and leaving Post-It notes everywhere. As well as engaging in talk therapy with a therapist.


I really need to look into this.
I've already talked to my GP, but borked when he said I had to make an appointment to see a psychiatrist.
It may be worth it because I have pretty bad ADD.
It would be nice to see what a stable mind feels like.
If you are still there, or anyone else, are there side effects from the meds, like fatigue?



Pepe
Veteran
Veteran

Joined: 11 Jun 2013
Gender: Non-binary
Posts: 26,635
Location: Australia

11 Jun 2020, 7:19 am

IsabellaLinton wrote:
Yes I just started ADHD meds for combined presentation prior to lockdown. The dosage hasn't increased according to the plan, because I haven't been able to see my GP doctor for adjustments. I'm in a holding pattern at a relatively low dose. I will talk to my Neuropsychiatrist this week on Zoom and he will be advising my GP if there is a change of plan.

I'm not good at self-observation or noticing patterns in my own behaviour because of alexithymia. I hope the Neuropsych has some very specific questions for me about the efficacy because otherwise I can't judge for myself. What I've noticed is that I'm not tired during the day (or ever) and I get a lot less sleep. I've dropped a lot of weight effortlessly, which wasn't really needed. I seem to have more mental energy too but .... a) I still have executive dysfunction and can't necessarily do anything productive with that energy -- but maybe this would be different if we weren't in lockdown? b) When I do focus on something it is more of a hyperfocus than a productive focus. For example I spent 18 hour days on Ancestry last week in a flurry of obsession but still had no ability to approach it systematically or with a plan. I just went at it in every direction all at once.

I feel like no matter what the ADHD meds does for my energy, Autism will trump it because of my executive dysfunction, my special interests, and my alexithymia.


Well, the main problem I'd like to address is my lack of ability to focus.
I'll sit in front of the news, etc, and my mind will just drift off on tangents.
As you, and everyone else knows, I'm a pretty smart cookie (joking guys),
And I wonder if I can improve on my thinking.

BTW,
I looked up "alexithymia" and was happy to find out it has nothing to do with Alex Plank. :wink:



IsabellaLinton
Veteran
Veteran

User avatar

Joined: 1 Nov 2017
Gender: Female
Posts: 72,422
Location: Chez Quis

11 Jun 2020, 7:23 am

The opposite of fatigue, for me. I take my meds as soon as I wake up and I actually feel awake. Not high, not wired, not over-caffeinated, but for once in my life I'm awake. I don't crawl through the day like before. About 12 hours later I start to feel sleepy, not exhausted, not drained, but regular sleepy. Within about three hours of that, I'm in bed.

It's nice to feel an actual cycle of awake vs. sleepy. Prior to the meds I was just tired all the time and couldn't tell the difference between "just waking up", "dragging through the day", and "tired for bed".

I've also lost a lot of weight, but that might be because I only drink water now.


_________________
I never give you my number, I only give you my situation.
Beatles


Pepe
Veteran
Veteran

Joined: 11 Jun 2013
Gender: Non-binary
Posts: 26,635
Location: Australia

11 Jun 2020, 7:35 am

IsabellaLinton wrote:
The opposite of fatigue, for me. I take my meds as soon as I wake up and I actually feel awake. Not high, not wired, not over-caffeinated, but for once in my life I'm awake. I don't crawl through the day like before. About 12 hours later I start to feel sleepy, not exhausted, not drained, but regular sleepy. Within about three hours of that, I'm in bed.

It's nice to feel an actual cycle of awake vs. sleepy. Prior to the meds I was just tired all the time and couldn't tell the difference between "just waking up", "dragging through the day", and "tired for bed".

I've also lost a lot of weight, but that might be because I only drink water now.


Well, the good thing is I finally gave up "real coffee", and just go with caffeine-free coffee.
I'm happy with that.
You may have noticed, I go a little nutzo when I've has a strong coffee, much more than usual. :wink:

So that is a start.
I might see what the psychiatrist says.
I really don't want to face 20 hours of anything, however.

BTW,
You really need to eat food too.
Water alone will only get you so far. :wink:



IsabellaLinton
Veteran
Veteran

User avatar

Joined: 1 Nov 2017
Gender: Female
Posts: 72,422
Location: Chez Quis

11 Jun 2020, 7:44 am

Pepe wrote:
IsabellaLinton wrote:
The opposite of fatigue, for me. I take my meds as soon as I wake up and I actually feel awake. Not high, not wired, not over-caffeinated, but for once in my life I'm awake. I don't crawl through the day like before. About 12 hours later I start to feel sleepy, not exhausted, not drained, but regular sleepy. Within about three hours of that, I'm in bed.

It's nice to feel an actual cycle of awake vs. sleepy. Prior to the meds I was just tired all the time and couldn't tell the difference between "just waking up", "dragging through the day", and "tired for bed".

I've also lost a lot of weight, but that might be because I only drink water now.


Well, the good thing is I finally gave up "real coffee", and just go with caffeine-free coffee.
I'm happy with that.
You may have noticed, I go a little nutzo when I've has a strong coffee, much more than usual. :wink:

So that is a start.
I might see what the psychiatrist says.
I really don't want to face 20 hours of anything, however.

BTW,
You really need to eat food too.
Water alone will only get you so far. :wink:


I haven't had coffee since February. I started the meds in March, tried one coffee, and nearly passed out. I don't know if it was a coincidence but it was wayyyyy too much for me with the stimulant meds in my system. I didn't really need to lose weight but I dropped about 9 kg (20 pounds) between March and May. Now I seem to be holding steady. I don't know if the meds kick-started my metabolism or if it's because I'm only drinking water.

Another thing I notice on the meds is that I feel hunger / not hunger a little better than before. I didn't used to know the difference because of poor interoception (not feeling my body signals). It seems to be improving, in the same way that I can differentiate tired vs. not tired now. It's interesting to have these new sensations.

Ask your psych about it. There are lots of screening tests you can do online. You can likely do most of the assessments from home (if there are any for skunks). Many of them are questionnaires and some are like video games. It's not like you have to sit there talking to someone for 20 hours in conversation. I wouldn't have been able to do that either!


_________________
I never give you my number, I only give you my situation.
Beatles