Nibiruninki88 wrote:
Hi I’m new here. As I was 18-19, I started having tics. Got diagnosed with Tourette. I was prescribed meds (not sure now, but I think it was Sulpiryd) and although I complained about strong side effects, I was forced by my family. Finally I got examined again by a team of neurologists, who said I don’t have Tourette, they mentioned I’m very sensitive. After years of struggling with panic attacks and kind of paralysis in loud environments, I checked possibility of epilepsy, heart issues, diabetes, I was told everything is fine and I should stop creating problems for attention. When my daughter turned 2, she started making unbearable noises at home and my struggles appeared again. I started using earplugs and I use them whenever I need. Earplugs improved not only my mental health, I stopped getting attacks and heart palpitations, I also noticed, that it’s also much better with my tics (basic tic with my head to the left side and side gazing at the same time). Recently after few sessions I was informed by my therapist, he suspects me autistic and he informed me that I don’t fit diagnostic criteria for Tourette. I wrote more about my life experience in my profile. I informed him that occasionally I have tics when stressed but earplugs help me with them. I have sensitive hearing, from 5Hz. I red something that tics also co-occur with autism and adhd. I’m gonna talk more about with the therapist. Is there anyone diagnosed with autism and experiencing tics? Are all tics always Tourette? Sorry for long post.
I think that we, that is people of modest means, have to be our own doctors and diagnose root causes, sensitivities, and holistic remedies. Doctors are in the patch-up business and really just do band-aids to exposed wounds. It is very difficult to drill down to causes and whatnot. Doctors simply do not have the time and are not exposed to your living environment to even know these things.
I think that if you use your autism to your advantage, that is really focus in the way that autistic people can, you can get in touch with body and mind.
Study what this organism, this specimen, which is you, is doing on a daily basis and how each stimuli effects you for good or ill. In this way, you can decide what to modify, what to add, what to eliminate.
I think we have to be our own patient advocate and our own doctor. Sometimes, we may have a friend that is very perceptive and observant, and we can share our "medical project" with her. Medical care is very much a community effort, it is not the reserve of specialists alone. Also, do not neglect ChatGPT, in this modern age. It is an extremely valuable resource for medical care.
In fact, I believe that prescriptions for non-narcotic substances should not be required, and that people ought to be allowed to prescribe their own medicines. There was a time that my Ex had chronic asthma, and we could not get asthma medicine, because of the prescription requirement. I believe the medicine should be sold on the shelf in grocery stores such as Wal-Mart. This is very controversial in the modern world however and people fret about potential for abuse. It seems that just about anything can be abused. It is amazing that sharp-edged knives are sold at stores.
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My magical motto is Animus facit nobilem. I like to read fantasy and weird fiction. Just a few of my favorite online things:
music,
chess, and
dungeon crawl stone soup.
01 Jan 2025, 3:10 pm
