Page 2 of 3 [ 41 posts ]  Go to page Previous  1, 2, 3  Next

LabPet
Veteran
Veteran

User avatar

Joined: 4 Jan 2007
Gender: Female
Posts: 4,389
Location: Canada

21 May 2013, 3:18 pm

I really wish neurotypicals would keep their neurotypical-ness secret. I really don't want to know....... :roll:


_________________
The ones who say “You can’t” and “You won’t” are probably the ones scared that you will. - Unknown


ASDsmom
Veteran
Veteran

User avatar

Joined: 27 Apr 2011
Gender: Female
Posts: 803

22 May 2013, 2:52 pm

SykoTaxman wrote:
I have AS and do have some difficulty carrying conversation and fitting in with my peers. However I would say that I have developed control over most of my obvious signs of Autism to the point that very few have ever figured out I have AS until I have told them. The issue with making it open to everyone about my AS (whether I tell them or not as word gets around) is that while my friends are accepting and used to my disorder, others I think seem to look at me differently. While I do understand why they would be like this since many aren't properly educated on AS, I don't appreciate feeling that others may see me as ret*d or sub-human. I like to be one of those people who are very open about themselves but should AS be something that I should keep between my family, close friends, and I?


I think labels are labels. Having AS does not mean you are unable to learn - it just takes longer and it may make it harder to master that learning. If there's a specific area of weakness you feel is noticeable by others, state that instead. For example, "I'm a concrete thinker which means..". AS is a reason, not an excuse so you shouldn't feel the need to label yourself with it. You are a person first and everyone has an area of weakness - not everything needs to put them into categories.

Just my opinion, anyway.

My social skills are not that great either. I often interrupt people unintentionally. My eye contact is inconsistent .. I work with it (or around it). When I interrupt, I apologize and make effort to avoid it.



Skilpadde
Veteran
Veteran

User avatar

Joined: 7 Dec 2008
Age: 47
Gender: Female
Posts: 27,019

22 May 2013, 9:52 pm

OP, if you feel like being open that's obviously your call. Just remember that it can seriously backfire.

This is what you risk being open:

Having everything that makes you AS used against you, including mockery and trying to set off your sensory issues for kicks.
Bullying. (Edited to add: of course that may be a risk no matter what they know, but their knowing about a diagnosis like that will give them fuel)
Being spoken to and treated as if you suddenly dropped 100 in IQ.
People trying VERY hard to act as if nothing has changed, while they struggle to act normal around you, failing miserably.
People being extremely uncomfortable around you now that you suddenly have a label.
Your being less valued.
Everything you do might be seen as wrong when it’s on accord on how they do it. Same goes for opinions and values and so on, because they regard themselves normal and you a 'tard.
Everything you say and do might be seen in relation of your AS.
People watching you for this or that behavior that they connect with AS or have learnt is connected to AS.
Someone might see and treat you as a Cause.
Some will bombard you with questions (and don’t think they’ll be the least sensible).

So my advice: Keep quiet about it.

I will never tell anyone about it IRL. I have told my mother, father and one of my aunts (and one other person who can drop dead and fry), and those are the only ones I'll ever tell.
It's no one's business, and I don't care one bit if they "feel betrayed" by me not telling them.


_________________
BOLTZ 17/3 2012 - 12/11 2020
Beautiful, sweet, gentle, playful, loyal
simply the best and one of a kind
love you and miss you, dear boy

Stop the wolf kills! https://www.thepetitionsite.com/takeact ... 3091429765


Last edited by Skilpadde on 23 May 2013, 12:02 am, edited 1 time in total.

peterd
Veteran
Veteran

User avatar

Joined: 25 Dec 2006
Age: 72
Gender: Male
Posts: 1,353

22 May 2013, 11:55 pm

There's a thing though, isn't there - where we'd actually be better off if we'd never found out about autism. There are examples all around us of people getting along very well in ignorance of their peculiarities. Yet our children are forcing their way through schools and universities wearing the autistic badge and fighting for acceptance.

I'm not entirely happy being on the side that's maintaining the curtain of autism blindness. My life would be better if the prejudice weren't so absolute.



deathsign
Blue Jay
Blue Jay

User avatar

Joined: 21 Nov 2011
Age: 29
Gender: Male
Posts: 94

26 May 2013, 11:26 am

Yes. Being AS (the label) carries a lot of social stigma and makes people dislike you, treat you badly, and be disrespected with everything you say being not valued. Many NT's aren't actually NT anyway. Try to hide your AS as good as you can when with new people. But understand that you can never hide it completely. Try to pass your AS habits as some odd quirks that you have if people ask (e.g. "yeah, I'm just used to doing that" - when asked). When people become close to you it's ok to reveal more and more about yourself and your oddness (don't reveal the AS though), try to do so gradually (don't 'strike' them).


_________________
Clinically diagnosed AS. Hates having it.
I'm very paranoid. I have inferiority complex (a.k.a i always think others are better than me, mostly b/c of my AS)
My AS is getting worse as time goes on.
WORST PROBLEM: HAVING AS


Amberlena
Toucan
Toucan

User avatar

Joined: 30 Apr 2013
Age: 27
Gender: Female
Posts: 250
Location: a place

27 May 2013, 3:14 pm

I've never told anyone except my best friend, because her brother has it too.



Browncoat
Deinonychus
Deinonychus

User avatar

Joined: 14 Feb 2013
Age: 33
Gender: Male
Posts: 362
Location: Near one of the Great Lakes

27 May 2013, 9:15 pm

While I don't specifically display my aspie traits, I make sure it doesn't take long for people to realize I'm not a normal person. Does this limit the number of close friends I have? Yes. But I don't have to worry about hiding anything from them. Basically, I let people know I'm a bit strange, and if they are willing to be friends anyway, then I know I can trust them.


_________________
"You can't take the skies from me"


The_Walrus
Forum Moderator
Forum Moderator

User avatar

Joined: 27 Jan 2010
Age: 30
Gender: Male
Posts: 8,878
Location: London

28 May 2013, 7:04 am

I am open about it. I disclosed on Facebook about a year ago because I was fed up of people asking me if I had social anxiety or why I knew so much about "obscure" topics or having a go at me for doing the wrong thing. It seems to have worked quite well. I will have few reservations about disclosing to people in the future, but only people I know reasonably well and like- in short, the sort of people I would add on Facebook.



anneurysm
Veteran
Veteran

User avatar

Joined: 25 Mar 2008
Age: 37
Gender: Female
Posts: 2,196
Location: la la land

02 Jun 2013, 3:16 pm

I think you should disclose when you are in a situation where people can misinterpret your behaviors/make assumptions about you. If you are interacting with people and have severe social difficulties, it is probably the best idea to disclose AND more importantly, say how it affects you (i.e. "Sometimes, I may talk for a long time about a certain subjects and may need reminders to stop")


_________________
Given a “tentative” diagnosis as a child as I needed services at school for what was later correctly discovered to be a major anxiety disorder.

This misdiagnosis caused me significant stress, which lessened upon finding out the truth about myself from my current and past long-term therapists - that I am an anxious and highly sensitive person but do not have an autism spectrum disorder.

My diagnoses - social anxiety disorder and obsessive-compulsive disorder.

I’m no longer involved with the ASD world.


BirdInFlight
Veteran
Veteran

User avatar

Joined: 8 Jun 2013
Age: 63
Gender: Female
Posts: 4,501
Location: If not here, then where?

10 Jun 2013, 11:50 am

Having only recently realized and self-diagnosed that I may have Asperger's, the question of disclosure has quickly become something I'm struggling with. I've come to the conclusion that maybe, if a situation comes up that I have to explain, I'm going to do what some here have suggested --- share something about that symptom rather than the whole Asperger kit'n'kaboodle.

For example when I feel overwhelmed trying to have a conversation in a noisy environment, I'm planning to reveal just that I feel overwhelmed trying to have a conversation in a.....etc etc. Or that I can't multi-task or feel like I'm going crazy and getting overwhlemed. I see these things as part of my possible Asperger's but I've decided that if they or any of my other traits/symptoms come up in public or around someone who isn't very close to me, I'm going to explain that specific issue I'm having, and not the whole nine yards about my possible AS.

Since I'm newly dealing with the possibility I think this is a good compromise right now. Down the line, particularly if I go ahead and get an official diagnosis, I might decide something different. But for now, I think I'm ready to be more open about a specific issue if and when one comes up. I've felt I had to hide my discomfort and issues so much that it's too exhausting and will be a relief just to admit "Something about me is that I have a bit of trouble with [this particular thing]". I think for me that will be enough disclosure for now.



knowbody15
Velociraptor
Velociraptor

User avatar

Joined: 6 Aug 2012
Age: 49
Gender: Male
Posts: 469
Location: California

10 Jun 2013, 4:57 pm

I've told a few people I work with, but these are people that I believe are obsessives/ADD/a bit different than others. I just so badly want someone else to say "me too." I do expect word will get around and I'll be judged. I would normally say not to disclose, but I so badly want to personally know someone else who is like me, specifically, meaning that there are probably a lot of AS people I would care to not know.

Most people dont get it, but I have a feeling people with AS like traits, meaning people with the same comorbidities, will at least be more accepting. Being a dude, I have found that I get a long quite well with girls who were or are tomboys....weird.


_________________
?Being happy doesn't mean that everything is perfect. It means that you've decided to look beyond the imperfections.?


TinfoilHat
Hummingbird
Hummingbird

User avatar

Joined: 16 Dec 2012
Age: 68
Gender: Male
Posts: 20

16 Jun 2013, 5:20 pm

I've found that if people know about or know of someone on the spectrum they are more likely to be understanding, but most NT's assume everyone on the spectrum is the same. Clones or robots, I dunno which, lol.

I'd say women are generally sympathetic initially, then they either like the quirkiness, humour etc or ignore me. Men can be ok, but more problematic if they're not too bright and are/or 'macho'. Should add, I hate team sports and talking about cars bores me to tears. Most people don't know what AS is and I do dislike having to explain.....

I think Tony Attwood remarked that fewer AS girls were diagnosed possibly because NT females would 'look after' them, whereas AS boys were more obvious as 'rejected' by NT males because of differences. I don't know how true that is, it seems logical and maybe equates to adults too. A female NT view of that may be quite different.

I've been regarded as a hippy for the last 40 years, which I kind of am, but without the dippyness, crystals nonsense. It's worked out quite well - any abberations, odd behaviour, strange lines of thought/conversation etc has been put down to that - (for instance being a veggie - ha ha).

Mind you not everyone likes hippies......

so keep quiet about it and adopt a disguise lol



TinfoilHat
Hummingbird
Hummingbird

User avatar

Joined: 16 Dec 2012
Age: 68
Gender: Male
Posts: 20

16 Jun 2013, 5:27 pm

..... or maybe you could be a goth/emo, take your pick

hahaha



minervx
Veteran
Veteran

User avatar

Joined: 13 Apr 2011
Age: 33
Gender: Male
Posts: 1,155
Location: United States

17 Jun 2013, 1:21 am

I don't tell people about my history with AS. Not because it's a giant secret or grand conspiracy. But simply because there is no reason to and there are better things to talk about.



Sheerboredom
Toucan
Toucan

User avatar

Joined: 9 Feb 2013
Age: 29
Gender: Male
Posts: 256
Location: Flint

17 Jun 2013, 1:44 am

I would keep it a secret. Never know how ignorant some people are and sometimes people might treat you different.


_________________
AQ:19
Your Aspie score: 87 of 200
Your neurotypical (non-autistic) score: 131 of 200
You are very likely neurotypical
INTJ


alwaystomorrow
Snowy Owl
Snowy Owl

User avatar

Joined: 3 Jun 2013
Gender: Female
Posts: 133
Location: Midgard

17 Jun 2013, 2:21 am

BirdInFlight wrote:
Since I'm newly dealing with the possibility I think this is a good compromise right now. Down the line, particularly if I go ahead and get an official diagnosis, I might decide something different. But for now, I think I'm ready to be more open about a specific issue if and when one comes up. I've felt I had to hide my discomfort and issues so much that it's too exhausting and will be a relief just to admit "Something about me is that I have a bit of trouble with [this particular thing]". I think for me that will be enough disclosure for now.
*nods* That is exactly what I have been doing since I started opening up to the possibility that I might be at the diagnosable end of the spectrum. Not only do I find it easier to tell others "I'll be fine, I just need a minute" now, and they usually accept it; I also find it much easier to be lenient on myself -- no more "what are you doing, self, you wanted to come, now don't spend an hour in a corner all by yourself, what is WRONG with you?!", which ... doesn't quite work wonders, but it does help a great deal.