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Douglas_MacNeill
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26 Feb 2008, 8:22 pm

For what it's worth:

I just put my John Hancock on that petition, too.



one1ai
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27 Mar 2008, 2:26 am

I watched the 7-minute version. http://www.youtube.com/watch?v=FDMMwG7RrFQ
"Cure autism". "I hope the researchers will make progress and they do to find a cure for autism"?.

I felt there was 1 woman and only one speaking of a cure. She is like the LeaderCurebie. She's like "I want you to smile this moment! and if you don't I'll make the scientists make you smile". This is sick.



Jainaday
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27 Mar 2008, 3:08 pm

Could someone post a link to more info on the suing of 14 year old case?


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reika
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01 Apr 2008, 11:02 pm

Itv already signed the petition but just to let you know...
I'm the Mother of a 6 year old autistic daughter.
When she was 5 I was STILL changing diapers, getting maybe 3 or 4 hours sleep a night, because I refuse to medicate her into submission just to make my life easier,
and even now it can turn into a wrestling match to get her in the car,
to brush her hair,
her teeth,
get dressed,
sit down and eat.
come inside,
... pick something.( I started lifting weights again just to be able to stay ahead of her :D )
She hasn't been in a store for over a year because she goes Off! Into a screaming meltdown.
She would run right in front of a car if she had the opportunity because she hasn't grasped the concept of "It will kill you!"
Every MINUTE of her life she is watched and kept from harm by either myself or her older sister.

Get my hair done... I haven't had my hair done in years...not vacuum, I'm lucky if I get to vacuum once a week. My dream is to have a "maid"
That is the reality I face every day. Oh wait, I didnt mention the FEAR. That CONSTANT fear and worry that never leaves you and lives in the back of your mind at ALL times.
What will happen to her when I die.? You yearn to know that she'll not be put in an institution and that people will always be kind to her and care for her and not let any harm or negativity enter her life. But there's NO guarentee of any of that. So you worry and live in fear.

And I'm one of the LUCKY parents,
Shes miles ahead of all her classmates, is smart as a whip, and can read, and is verbal.
I would never "cure" her because shes not "sick" shes just different, like me. She makes me smile when nothing else can and is the epitomy of "pure joy." She keeps me young, fit, and laughing and eager to start each day to see it thru her eyes. It sickens me that someone could ever say they find death preferable to raising an autistic child.("Gimmee your kid and just go kill yourself" is what rolled thru my mind when I heard that.)

However, my point is, that IS what it's like, for lots of parents so you might want to actually "raise" an autistic child before you decide to make such a blanket statement about how much is "faked" or not.


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Bopkasen
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02 Apr 2008, 1:42 am

squier wrote:
Didymus wrote:
beau99 wrote:
squier wrote:
there not speaking for us though! there speaking for the people who are affected to the point where they can't take care of themselves! okay! not us!! !!


They want to speak for us though, and are trying to.


Right. Remember, Autism Speaks is the same organization that just sued a 14 year old kid for $90,000.00 because they didn't like the website the kid put up.

well they couldn't have goten away with it without good reason,


According to my marketing analysis, it doesn't even come close to AutismSpeaks.org . The kid's domain was Ntspeaks.org . Most people don't know "NT" slang.

It was nothing but bullying. Should the kid defend himself, he would have risk shelling out money and exposed the matter to his parent. Both of it was not an option so he bailed out.

Again... the kid was autistic and it was about mocking the Autism Speak slogan.

Have nothing to do with stealing donation as it was play out by the lawyers. The kid reported that there were about 70 signature if I were to recalled. Most signature can come from more than one lawyer. General Electric could supply just a small band.

Now if we want to debate over Naughty Auti in Second Life then that another story.



blue_bean
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02 Apr 2008, 1:52 am

Quote:
It was nothing but bullying. Should the kid defend himself, he would have risk shelling out money and exposed the matter to his parent. Both of it was not an option so he bailed out.


Actually, the kids parents knew she had the site, and were supportive of it.



Bopkasen
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02 Apr 2008, 2:11 am

blue_bean wrote:
Quote:
It was nothing but bullying. Should the kid defend himself, he would have risk shelling out money and exposed the matter to his parent. Both of it was not an option so he bailed out.


Actually, the kids parents knew she had the site, and were supportive of it.


That not what he said... he end it because he didn't want this to bring up to his parent.

He wrote it out in AFF why he did it so I am not making this up.

If the parent were supportive, he knew that that he would immediately lost his support dues to legal threat.

You have to pay lawyer and court cost not to mention taking out of your time and parent's work hours. It not even worth it.



dawndeleon
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02 Apr 2008, 10:51 am

Reika, thanks for giving insight on the life of a parent with an autistic child.. I am sure it is difficult. Thank you for including the good part of it too. It gives a more balanced view from someone who is there.
It does bother me on the clip that some of these moms almost seem like their child is just a burden to them. I am sure it may have been edited that way. I hope that is the case. These moms are asking for help. Lets see if we can help them. Who knows, aspies may be able to offer insight as to why some of these behaviors are present. Maybe help interpret for them. Just a thought



LadyMahler
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02 Apr 2008, 11:22 am

Quote:
Could someone post a link to more info on the suing of 14 year old case?


I also want that, please. I think it's good to get the facts straight on this one. If anyone knows where it is published, please would you post the links in this discussion?



Jainaday
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06 Apr 2008, 3:22 pm

LadyMahler wrote:
Quote:
Could someone post a link to more info on the suing of 14 year old case?


I also want that, please. I think it's good to get the facts straight on this one. If anyone knows where it is published, please would you post the links in this discussion?


Yes, an actual link rather than "someone said this" and "someone else said that" would be nice, if anyone knows where to get one. . .


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And if I die before I learn to speak
will money pay for all the days I lived awake but half asleep