MMR Autism Doctor Denies Submitting Kids To Painful Tests

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DW_a_mom
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31 Mar 2008, 12:28 pm

zendell wrote:
Mage wrote:
Can you post a link to the actual article? I can't find it anywhere on that site. Also, why doesn't it site the research studies that supposedly back up the MMR link? All the studies sited only listed a GI link, which could be a symptom of autism the same way large tongues are a symptom of Down's syndrome. But that doesn't have anything to do with proving MMR causes autism.


http://www.asd-forum.org.uk/forum/lofiv ... t8564.html

The parents claim their NT kids suddenly became autistic within days of the MMR vaccine so finding a measles infection in their gut is good evidence that the live measles virus in the vaccine gave them autism.

Note: None of the kids had infantile autism. They all had regressive autism meaning they weren't born with it but developed it shortly after getting vaccinated.


This puts us back on the "what is autism" treadmill. I realize that many believe autism is defined by the symptons, but that is not the prevelent opinion among posters at sites like this one. I personally believe that separate diagnosis is VERY important because there is no point in parents with brain-wired autistic children pursuing treatments designed to help children with symptons that cause them to appear to be autistic, but without the brain-wiring. The separation is critical, I believe, and I think that various members of this group are correct in hounding on it. As long autism is defined soley by symptons, proper treatment guidelines cannot be made.


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zendell
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31 Mar 2008, 12:36 pm

DW_a_mom wrote:
zendell wrote:
Mage wrote:
Can you post a link to the actual article? I can't find it anywhere on that site. Also, why doesn't it site the research studies that supposedly back up the MMR link? All the studies sited only listed a GI link, which could be a symptom of autism the same way large tongues are a symptom of Down's syndrome. But that doesn't have anything to do with proving MMR causes autism.


http://www.asd-forum.org.uk/forum/lofiv ... t8564.html

The parents claim their NT kids suddenly became autistic within days of the MMR vaccine so finding a measles infection in their gut is good evidence that the live measles virus in the vaccine gave them autism.

Note: None of the kids had infantile autism. They all had regressive autism meaning they weren't born with it but developed it shortly after getting vaccinated.


This puts us back on the "what is autism" treadmill. I realize that many believe autism is defined by the symptons, but that is not the prevelent opinion among posters at sites like this one. I personally believe that separate diagnosis is VERY important because there is no point in parents with brain-wired autistic children pursuing treatments designed to help children that symptons that cause them to appear to be autistic, but without the brain-wiring. The separation is critical, I believe, and I think that various members of this group are correct in hounding on it. As long autism is defined soley by symptons, proper treatment guidelines cannot be made.


I agree. I hope more research will be done so that separate labels can be given based on the different causes.



DW_a_mom
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31 Mar 2008, 12:38 pm

zendell wrote:
Good news. I found the article still listed at another newspaper, also in the UK as the US media appears to censor articles that don't agree with their agenda. The research by Dr. Krigsman provides more evidence that the MMR vaccine causes measles in children that can lead to autism and serious bowel problems. I posted a few quotes below but check http://www.telegraph.co.uk/news/main.jh ... nmmr23.xml to get the full article.

US experts back MMR doctor's findings
Last Updated: 12:01am BST 23/06/2002

"Scientists in America have reported the first independent corroboration of the research findings of Dr Andrew Wakefield, the specialist who has questioned the safety of the childhood MMR vaccine.

Dr Arthur Krigsman, from New York University School of Medicine, has observed serious intestinal inflammation in autistic children identical to that described by the controversial British doctor and his colleagues in a research paper four years ago.

Dr Krigsman's discovery is significant because it independently supports Dr Wakefield's conclusion that a previously unidentified and devastating combination of bowel and brain disease is afflicting young children - a claim that the Department of Health has dismissed as "bad science".

Pathologists at Trinity College, Dublin, have since identified measles virus in bowel tissue samples from 75 of these children and, as reported in The Telegraph last week, now claim to have evidence that the virus comes from MMR."

I think everyone should play it safe and warn others to avoid the MMR shot. Single vaccines may have a better outcome but "In Britain, the Department of Health has rejected calls to allow single measles vaccines on the NHS as an alternative" so it's probably best to avoid this vaccine entirely to avoid contracting measles from the MMR vaccine especially since measles can be deadly. I think giving the MMR to a child in light of this evidence should maybe considered child abuse or child endangerment.


The distinction I would like to make it is that these doctors are finding a connection between the vaccine and a gut illness. That gut illness may make children on the spectrum who would have been high functioning, suddenly become low funcitoning, or it may make an NT child have manisfestations that appear to be autism, but I do not believe that it IS autism. Why nit pick on the distinction? Because it drives what treatments to consider.


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DW_a_mom
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31 Mar 2008, 12:40 pm

zendell wrote:

I agree. I hope more research will be done so that separate labels can be given based on the different causes.


I like agreement :D

The main offsetting factor on additional research, however, is going to be, "at what cost?" Not financial, but emotional, for the children and families that are needed to do it. Still, if it means less worthless treatment on children in the future, it could be worth it. These choices are so agonizingly difficult.


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zendell
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31 Mar 2008, 12:43 pm

DW_a_mom wrote:
The distinction I would like to make it is that these doctors are finding a connection between the vaccine and a gut illness. That gut illness may make children on the spectrum who would have been high functioning, suddenly become low funcitoning, or it may make an NT child have manisfestations that appear to be autism, but I do not believe that it IS autism. Why nit pick on the distinction? Because it drives what treatments to consider.


It would be interesting to see what changes after the gut illness is treated. Autism has a pretty broad definition when PDD-NOS is considered part of the spectrum. I think all you need for PDD-NOS is social and communication impairment, highly unspecific symptoms that likely have multiple causes. None of these are infantile autism which is probably what almost everyone here is. They are all regressive autism which is different than the classical autism or AS from birth. I think we will all be happier when separate labels are used so I think we should all support more research into all possible causes of those diagnosed with autism.



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31 Mar 2008, 8:46 pm

zendell, still no rebuttal to my earlier post? Wakefield is a joke among researchers, doctors, and serious students alike. He committed serious breaches of professional ethics and put personal financial gain over the welfare of thousands upon thousands of children.


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31 Mar 2008, 9:14 pm

Orwell wrote:
zendell, still no rebuttal to my earlier post? Wakefield is a joke among researchers, doctors, and serious students alike. He committed serious breaches of professional ethics and put personal financial gain over the welfare of thousands upon thousands of children.

Yeah.

There is no credible scientist in the world that agrees with him.

Hell, The Lancet (about as credible as you can get) retracted one of his articles that they published.


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01 Apr 2008, 5:38 am

zendell wrote:
Autism has a pretty broad definition when PDD-NOS is considered part of the spectrum. I think all you need for PDD-NOS is social and communication impairment, highly unspecific symptoms that likely have multiple causes.


No, the root diagnosis for all Spectrum disorders requires a certain number of traits - and it's definitely more than just the two you mentioned.

Also, even if you took out PDD-NOS it will still be very broad - because of Aspergers. That was the key to a lot of re-DX's and new DX's since 1994 when the DSM-IV came out (the REAL reason for the explosion in numbers on the Spectrum - not what the mercury militia preach!).



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01 Apr 2008, 12:34 pm

Orwell wrote:
zendell, I see you chose to ignore the financial issues involved. Wakefield certainly does need to have his license revoked because he showed a deplorable lack of respect for professional ethics. You aren't supposed to help those you have financial ties to by publishing "research" that supports their side of a lawsuit. I plan to go into biology, and in the class I sat in on at Princeton last week (an upper-level course, mostly seniors who will continue with research careers) people burst out laughing when Wakefield's study was brought up. No real scientists take him seriously, and there are very good reasons for this.


I don't know much about Wakefield. I'm not too interested in MMR because I was autistic before I got the MMR vaccine so it couldn't have been involved in my case. I didn't look up all the reasons why people don't like him. It just seems it's the conclusion he reached that bothers people and I remembered that his findings were confirmed by other researchers.

If Wakefield concluded that the MMR vaccine had nothing to do with autism, I think many people here would support him, quote his studies, and say he's a good researcher. It just seems that many people judge researchers based on whether they agree with their findings. There's a few people here who label everything that disagrees with them as junk science and everything that supports their personal beliefs as good science without even looking at any of the research.



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01 Apr 2008, 1:37 pm

zendell wrote:
I don't know much about Wakefield. I'm not too interested in MMR because I was autistic before I got the MMR vaccine so it couldn't have been involved in my case. I didn't look up all the reasons why people don't like him. It just seems it's the conclusion he reached that bothers people and I remembered that his findings were confirmed by other researchers.

If Wakefield concluded that the MMR vaccine had nothing to do with autism, I think many people here would support him, quote his studies, and say he's a good researcher. It just seems that many people judge researchers based on whether they agree with their findings. There's a few people here who label everything that disagrees with them as junk science and everything that supports their personal beliefs as good science without even looking at any of the research.

The conclusions he reached do bother people, because they are false and have lad to mass hysteria which has damaged public health efforts in parts of the developed world where epidemic disease should not be a serious issue.

If Wakefield concluded that MMR had nothing to do with autism, he might have been commended for carrying out objective research without letting his financial connections influence him. But he did let his financial ties dictate the direction of his research. Really, even if you accept Wakefield's research at face value, it still is based on a basic logical fallacy and doesn't show any causal link.


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01 Apr 2008, 2:05 pm

zendell wrote:
A doctor shouldn't lose his license just because some people are offended by his findings.

You should find out what you are taking about before making such a odd statement.

The reason the GMC is unhappy with Dr. Wakefield is that he continued with "research" which the GMC had told him was unacceptable. He performed lumbar punctures and bowel biopsies with no justification (other than that it was for his research), he paid children for blood samples, he had a financial conflict of interests, and so on. The "findings" of his studies are pretty much irrelevant.

zendell wrote:
For those who accuse him of being a junk scientist, that won't work anymore because his findings have been confirmed by other researchers.

Revealed: more evidence to challenge the safety of MMR
By Lorraine Fraser at http://www.telegraph.co.uk/news/main.jh ... nmmr16.xml
Last Updated: 9:54pm BST 15/06/2002

In which you will read that:
Quote:
Prof O'Leary's results have been made public in a precis of a scientific presentation released ahead of a meeting of the Pathological Society of Great Britain and Ireland next month.

So? This is not a "confirmation". It's not a peer reviewed paper, even. Just some notes on a lecture that he may give.

Even then, all that is being said is that they appear to have a strain of measles present in the gut of some children. Where is the causality? I see none.

No, wait, I do. Inject the MMR vaccine, and the strain of measles in it can be detected inside the child you injected it into.

Anyway, this all sounds so familiar. There's lots of money to be made from lawsuits involving MMR - so fund someone to do "research" that can be "interpreted".


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nory
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07 Apr 2008, 4:16 am

Autism research has its origins in doctors exploiting autistic children, or treating them as less than equal humans. Remember Bruno Bettelheim? Who ran a tyrannical enterprise/cult where children were psychologically, physically and sexually abused. I recently did work in Children's literature and was upset to learn that regardless of this his books such as Uses of Enchantment are still praised and at least there, he was seen as an utmost authority on children's issues with his research on the top of reading lists. I don't care how good (and they're not) his academic thoughts are, after the reports of the nature of his research on autistic children surfaced, I think he has lost all credibility and respect in the community as a whole.

Also, it may be irrelevant but recall the Tuskegee syphilis project. One of the big outrages of American history, where for forty years between 1932 and 1972, doctors conducted research on studying the effects of untreated syphilis on a portion of poorer black population. Throughout they documented the experiment in scientific journals where the language or rhetoric they used so dehumanized their voiceless "subjects" with other doctors, no one thought for some long time to question it. They paid them and their families but it doesn’t matter. It is still a huge moral outrage and yes the findings of the studies are irrelevant.



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07 Apr 2008, 7:40 am

A quandry.

When data has been acquired by thoroughly reprehensible means, should the means of acquiring that data then cause you to discard it?

Unfortunately, the answer has to be no.

You cannot undo the harm that was done. Discarding the data would surely increase that harm.

Certainly, where the researcher has broken all the rules (as it would appear to be the case with Dr. Wakefield), the data he acquired requires much more careful scrutiny. I would agree that, in this case, the doubts surrounding the acquisition may completely invalidate that data and any claimed results of the research.

It the instance you cite (the Tuskegee syphilis project), nory, I'd be more inclined to keep the results. People were paid to die, presumably, in order to produce the data. Discarding that data would be to lose the shred of meaningfulness that remains from their deaths.

I'll reiterate:

A quandry.


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nory
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07 Apr 2008, 8:06 am

Don't throw the baby out with the bathwater you mean? Do I finally understand what that odd expression means?

It is a quandry because does that mean that some people will go on to say, well I'll just do it even though it violates ethics, and my research will vindicate me in the end with those who think like me. I don't think anything really relevant was learned from the Tuskegee project as they already had the means to cure the disease the entire time, but chose instead to watch these men, who could not understand the full ramifications of the project, the language used or the availability of a cure, to die a very painful death that included insanity.

I am tempted to be so angry at this that I would choose to refuse to accept the findings that came with it. But i also understand what you mean about how refusing to teach or use the results from such experiments could take away any possible positive meaning that their sacrifice involved, doing them a great injustice.



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07 Apr 2008, 8:38 am

nory wrote:
... some people will go on to say, well I'll just do it even though it violates ethics, and my research will vindicate me in the end with those who think like me. ...

Good point, and I was going to mention it. I trust the researchers concerned are NOT erased from the history books. We need to keep a clear picture of them and all their related acts. They need to be remembered - in all their infamy.


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