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Noca
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06 Feb 2019, 7:10 pm

I had Long QT syndrome, which is a heart arrhythmia and rapid heart rate(resting at 130bpm) as a result of high doses of anticholinergics used to treat my chronic urticaria along with domiperdone to treat gastroparesis(domiperdone has a really high risk of long qt). I knew I was having Long QT when I had sudden severe nausea, lightheadness even lying down, and rapid heart rate nonstop for hours. I went to the ER but because they were incompetent and wrote it off as anxiety, delaying my EKG, by the time they got around to doing it 5 hours later there was only a slight reading of Long QT. I saw a cardiologist who put me on a 7 day EKG monitor which wasn't able to pick it up. My doctor put me on 5mg of Bisoprolol and I swapped out Domiperdone for another med and I have it mostly under control. My resting heart rate is down to 92bpm or below and if my BP gets too low, I just drink some salt water. Betablockers like Bisoprolol can fix heart arrhythmias apparently as well as lower bp and heart rate.



Ms.Berg
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08 Feb 2019, 7:31 am

^
Good to hear you are being helped by your medication Noca. Hope it means you are feeling all well now.

The symptoms from my PH was also thought to be anxiety because it is a disease that doesn`t show many clear symptoms really and is hard to detect on regular EKG and the other basic excamination methods at a doctors office.

I wasn`t having anxiety back then and my condition wasn`t of course anxiety either.

But after I started having the irregular heartbeats I have had a few occations where I got so worried I think I got worse simply due to myself panicking when I didn`t understand what was happening. I have gotten used to the sensations now though. Experience always comes sin handy :wink:



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13 Feb 2019, 6:58 pm

I went through a period of strong, prolonged palpitations right after receiving an iron infusion. My heart felt like it did during my teen years when I'd come across a heartthrob or something - but scary instead of nice!

There are all sorts of reasons for palps. I'm glad you're finding some relief from yours. :)


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Ms.Berg
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14 Feb 2019, 4:38 am

Alita wrote:
I went through a period of strong, prolonged palpitations right after receiving an iron infusion. My heart felt like it did during my teen years when I'd come across a heartthrob or something - but scary instead of nice!

There are all sorts of reasons for palps. I'm glad you're finding some relief from yours. :)



I begin to realize that heartthrobs is a real thing..? I thought it was just a phrase for describing an emotion :lol: At the hospital when I have had my regular cardiac catheterizations the nurse and surgeon have sometimes made jokes about how the doctor is giving me a heartthrob when the catheter is touching the inside of the heart making it jump. It is to non-dramatize the experience; and I thought it was simply a metaphor.

But it is a thing then? That falling in love causes physical palpitations in the heart? I have never experienced that. Not that I haven`t felt strongly in love and felt it strongly in the chest but it never affected my heart in that way to cause palpitations. And I tink I am glad I haven`t as I think I would feel uncomfortable with it. :lol:
But it is really interesting to hear about how other people experience things I must say.

By the way I have had the 24 hour EKG and this time I did have palpitations while wearing it so I think I can have an answer to this this time, having the resaults sent to my local doctor(and since I haven`t already been called up, I already assume it isn`t anything serious).



Alita
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14 Feb 2019, 4:03 pm

Ms.Berg wrote:
Alita wrote:
I went through a period of strong, prolonged palpitations right after receiving an iron infusion. My heart felt like it did during my teen years when I'd come across a heartthrob or something - but scary instead of nice!

There are all sorts of reasons for palps. I'm glad you're finding some relief from yours. :)



I begin to realize that heartthrobs is a real thing..? I thought it was just a phrase for describing an emotion :lol: At the hospital when I have had my regular cardiac catheterizations the nurse and surgeon have sometimes made jokes about how the doctor is giving me a heartthrob when the catheter is touching the inside of the heart making it jump. It is to non-dramatize the experience; and I thought it was simply a metaphor.

But it is a thing then? That falling in love causes physical palpitations in the heart? I have never experienced that. Not that I haven`t felt strongly in love and felt it strongly in the chest but it never affected my heart in that way to cause palpitations. And I tink I am glad I haven`t as I think I would feel uncomfortable with it. :lol:
But it is really interesting to hear about how other people experience things I must say.

By the way I have had the 24 hour EKG and this time I did have palpitations while wearing it so I think I can have an answer to this this time, having the resaults sent to my local doctor(and since I haven`t already been called up, I already assume it isn`t anything serious).


Ms.Berg, yes, from what I know, it's a term used to describe a person who gives you heart flutters. :heart:

I envy you never having that. You must be a cool cucumber. 8)
You're so brave for going through the catheterizations - they sound nasty! Do you need to have them for much longer?


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Ms.Berg
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15 Feb 2019, 8:10 am

Alita wrote:
Ms.Berg wrote:
Alita wrote:
I went through a period of strong, prolonged palpitations right after receiving an iron infusion. My heart felt like it did during my teen years when I'd come across a heartthrob or something - but scary instead of nice!

There are all sorts of reasons for palps. I'm glad you're finding some relief from yours. :)



I begin to realize that heartthrobs is a real thing..? I thought it was just a phrase for describing an emotion :lol: At the hospital when I have had my regular cardiac catheterizations the nurse and surgeon have sometimes made jokes about how the doctor is giving me a heartthrob when the catheter is touching the inside of the heart making it jump. It is to non-dramatize the experience; and I thought it was simply a metaphor.

But it is a thing then? That falling in love causes physical palpitations in the heart? I have never experienced that. Not that I haven`t felt strongly in love and felt it strongly in the chest but it never affected my heart in that way to cause palpitations. And I tink I am glad I haven`t as I think I would feel uncomfortable with it. :lol:
But it is really interesting to hear about how other people experience things I must say.

By the way I have had the 24 hour EKG and this time I did have palpitations while wearing it so I think I can have an answer to this this time, having the resaults sent to my local doctor(and since I haven`t already been called up, I already assume it isn`t anything serious).


Ms.Berg, yes, from what I know, it's a term used to describe a person who gives you heart flutters. :heart:

I envy you never having that. You must be a cool cucumber. 8)
You're so brave for going through the catheterizations - they sound nasty! Do you need to have them for much longer?



I may be messing with the English terms here.. even in my own language I can feel confused what people really mean when they use the different terms for what the heart is doing. I often stutter my way throught my explanations for the doctors not knowing what word to use for what experience. :lol:

And for love interests; I feel it, but not as heart flutters. I just thought it funny that I have misunderstood that part for all these years.. :oops:

I will need to have those catheterizations done preferably annually through out my life. I told my doctor I really didn`t like them so I have had a break now due to my condition being much better, but it is a progressive disease so my doctor wants me to have another one soon again. Bracing myself :lol:



kokopelli
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15 Feb 2019, 8:40 am

I had to give up both tea and coffee about 20 years ago because of them.

On the other hand, cokes don't bother me at all.



Alita
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18 Feb 2019, 6:21 pm

Ms.Berg wrote:
Alita wrote:
Ms.Berg wrote:
Alita wrote:
I went through a period of strong, prolonged palpitations right after receiving an iron infusion. My heart felt like it did during my teen years when I'd come across a heartthrob or something - but scary instead of nice!

There are all sorts of reasons for palps. I'm glad you're finding some relief from yours. :)



I begin to realize that heartthrobs is a real thing..? I thought it was just a phrase for describing an emotion :lol: At the hospital when I have had my regular cardiac catheterizations the nurse and surgeon have sometimes made jokes about how the doctor is giving me a heartthrob when the catheter is touching the inside of the heart making it jump. It is to non-dramatize the experience; and I thought it was simply a metaphor.

But it is a thing then? That falling in love causes physical palpitations in the heart? I have never experienced that. Not that I haven`t felt strongly in love and felt it strongly in the chest but it never affected my heart in that way to cause palpitations. And I tink I am glad I haven`t as I think I would feel uncomfortable with it. :lol:
But it is really interesting to hear about how other people experience things I must say.

By the way I have had the 24 hour EKG and this time I did have palpitations while wearing it so I think I can have an answer to this this time, having the resaults sent to my local doctor(and since I haven`t already been called up, I already assume it isn`t anything serious).


Ms.Berg, yes, from what I know, it's a term used to describe a person who gives you heart flutters. :heart:

I envy you never having that. You must be a cool cucumber. 8)
You're so brave for going through the catheterizations - they sound nasty! Do you need to have them for much longer?



I may be messing with the English terms here.. even in my own language I can feel confused what people really mean when they use the different terms for what the heart is doing. I often stutter my way throught my explanations for the doctors not knowing what word to use for what experience. :lol:

And for love interests; I feel it, but not as heart flutters. I just thought it funny that I have misunderstood that part for all these years.. :oops:

I will need to have those catheterizations done preferably annually through out my life. I told my doctor I really didn`t like them so I have had a break now due to my condition being much better, but it is a progressive disease so my doctor wants me to have another one soon again. Bracing myself :lol:


I'm glad to hear you're doing much better - who knows, maybe after the next one, you will be even better still. :) Sending you strength through my screen because it sounds like no walk in the park, anyway.


I know what you mean about misunderstanding language or just not picking up on it. I never got when people said their hands got sweaty when they were scared or their vision went blurry. My hands have always felt too dry. Then one night I was working my first shift at a gas station and I wondered why it was easier to separate the receipt slips during busy times. Then I realised my hands were slightly sweaty from having to serve so many people at once, and it made the receipt slips stick to my fingers. The good thing was the customers didn't have to wait long to get their receipt. :)


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"There once was a little molecule who dreamed of being part of the crest of a great wave..."
(From the story 'The Little Molecule' - Amazon Kindle, 2013)