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goatfish57
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30 Nov 2023, 2:27 pm

For most of my life, I hid because I did not understand the NT world where my actions were met with the back of a hand. Now, I hide because the sting from the slap makes sense.

So how did I get here? About twenty years ago, I realized that something was missing in me. I did not know what it was. There is a line in Tolstoy's Anna Karenina by the character Levin. "They are dancing to music I can not hear." He meant something different. Still, it hit me hard.

Slowly, my skills at recognizing, understanding, and reacting to emotions in myself and others improved. There were moments when I understood. It shocked me. Painful memories that were never well processed came flooding back, demanding attention and needing emotional resolution. I felt overwhelmed. All those strange painful things inside me were emotions I refused to recognize.

The more I worked at it, the more music broke through. Then came empathy or the lack of it. How do others react to me? Why do they treat me like a jerk? Because I did not understand their emotional response to my actions like your average NT. So, they assumed my actions were intentionally hurtful. I can not undo the hurt I caused, nor can they.

There was no light going on or off. It is more like a blurry image gaining a little focus. I will be 66 years old soon. This lesson came late. I owe the members of this community a big thank you.

Please be kind, this is still a work in progress.


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CockneyRebel
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01 Dec 2023, 12:55 am

I hid a lot when I was in high school. I didn't know who to trust and who not to trust.


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goatfish57
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01 Dec 2023, 5:14 am

CockneyRebel wrote:
I hid a lot when I was in high school. I didn't know who to trust and who not to trust.


I am the same way. My threat detector is always running at full for the past 60-plus years


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CockneyRebel
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01 Dec 2023, 1:48 pm

I hid in a different way behind a Union Jack for 30 years so people would accept me.


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goatfish57
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01 Dec 2023, 3:29 pm

CockneyRebel wrote:
I hid in a different way behind a Union Jack for 30 years so people would accept me.


Did it work?

There are lessons that most people learn as children. For me, there were only rules to follow and I did not understand them. Learning late in life is much tougher than learning as a child.


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NowWhatDoIDo
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01 Dec 2023, 4:41 pm

goatfish57 wrote:
For most of my life, I hid because I did not understand the NT world where my actions were met with the back of a hand. Now, I hide because the sting from the slap makes sense.

So how did I get here? About twenty years ago, I realized that something was missing in me. I did not know what it was. There is a line in Tolstoy's Anna Karenina by the character Levin. "They are dancing to music I can not hear." He meant something different. Still, it hit me hard.

Slowly, my skills at recognizing, understanding, and reacting to emotions in myself and others improved. There were moments when I understood. It shocked me. Painful memories that were never well processed came flooding back, demanding attention and needing emotional resolution. I felt overwhelmed. All those strange painful things inside me were emotions I refused to recognize.

The more I worked at it, the more music broke through. Then came empathy or the lack of it. How do others react to me? Why do they treat me like a jerk? Because I did not understand their emotional response to my actions like your average NT. So, they assumed my actions were intentionally hurtful. I can not undo the hurt I caused, nor can they.

There was no light going on or off. It is more like a blurry image gaining a little focus. I will be 66 years old soon. This lesson came late. I owe the members of this community a big thank you.

Please be kind, this is still a work in progress.


This is beautifully written, and I bet a lot of people here can relate to you. Especially the part about emotions flowing back from some hidden chest with a padlock on it. Getting diagnosed is like being granted to the key to the chest of memories, and sometimes there are memories there we wish were forever buried and locked away.

Like you, my life is coming into focus. It's nice to look in the mirror and meet myself for the first time.



CockneyRebel
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01 Dec 2023, 11:00 pm

goatfish57 wrote:
CockneyRebel wrote:
I hid in a different way behind a Union Jack for 30 years so people would accept me.


Did it work?

There are lessons that most people learn as children. For me, there were only rules to follow and I did not understand them. Learning late in life is much tougher than learning as a child.


I had 6 breakdowns during the course of those 30 years.


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Cataclysmic Psychlone
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02 Dec 2023, 2:05 am

I can relate.

I don't know WTF was wrong with my parents. The school I attended in the late 70's called in a 'specialist' because of what I eventually found out: I was Autistic. When I was 6 years old, it was not widely known.

Of course they 'doctor shopped' until they found someone who offered an opinion they could live with.

My parents kept moving. I changed schools 8 times before year 12. With every new school there was new bullying and exclusion for the new kid. Nowadays this is considered 'child abuse' by child protection authorities, and I understand why.

Of course I minimised myself to fly under the radar as much as possible.

My parents were born before WWII and grew up around Swindon in England, and saw a lot of death and destruction. From what I was told, my family history is heavily peppered with 'gifted' people who had severe social difficulties. Of course they were mostly farmers, so socialising wasn't really much of a priority.

I am told that my great grandfather (mother's side) was so good at playing piano that he was recruited by the London Philharmonic Orchestra but was kicked out because he turned up drunk, among other high achieving opportunities where he did the same.

My grandfather (mothers side again) was also a brilliant man, building things such as clocks and innovative farm implements (some designs were allegedly stolen by Massey Ferguson apparently) but he ended his life at the age of 55, gassing himself in his truck with an elaborate pipe fashioned from sheetmetal that went from the exhaust pipe to the window, which must have taken months to build and fitted perfectly.

Hence, I understand why my mother may have believed the 'stiff upper lip' approach - to not acknowledge one's feelings - may have worked for her. However, it did untold damage to her children, especially combined with the fact that Autism runs in the family.

Of course hindsight is 20/20 and I have realised all of this since the 'defining' of my own children as Autistic, which led me to getting defined myself.

Of course I went through a period of anger and depression but I think I am doing better now because I now know it is okay to acknowledge these feelings that have been suppressed for so long.

Children do not ask to be born and it is the responsibility of the parent to do their best for their child. I realise, at the time, the way I was raised was 'acceptable'. With what I have learned from my past, my Autistic children have been raised a lot better than I was.

Overall I realised NONE OF IT IS MY FAULT.

The best emotion you need to develop and explore right now is compassion - for yourself.

I am a work in progress too. I will probably self medicate too much again today. Sometimes I get completely wasted on home brew beer and finish the job with straight Jack Daniels but it hasn't killed me yet, right? I dare you to tell me that SSRIs are better :lol:

Live long and prosper my friend :heart:



goatfish57
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02 Dec 2023, 4:54 am

NowWhatDoIDo wrote:

This is beautifully written, and I bet a lot of people here can relate to you. Especially the part about emotions flowing back from some hidden chest with a padlock on it. Getting diagnosed is like being granted to the key to the chest of memories, and sometimes there are memories there we wish were forever buried and locked away.

Like you, my life is coming into focus. It's nice to look in the mirror and meet myself for the first time.


Thank you, I really appreciate your kind words


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goatfish57
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02 Dec 2023, 4:57 am

Cataclysmic Psychlone wrote:
I can relate.

I don't know WTF was wrong with my parents. The school I attended in the late 70's called in a 'specialist' because of what I eventually found out: I was Autistic. When I was 6 years old, it was not widely known.

Of course they 'doctor shopped' until they found someone who offered an opinion they could live with.

My parents kept moving. I changed schools 8 times before year 12. With every new school there was new bullying and exclusion for the new kid. Nowadays this is considered 'child abuse' by child protection authorities, and I understand why.

Of course I minimised myself to fly under the radar as much as possible.

My parents were born before WWII and grew up around Swindon in England, and saw a lot of death and destruction. From what I was told, my family history is heavily peppered with 'gifted' people who had severe social difficulties. Of course they were mostly farmers, so socialising wasn't really much of a priority.

I am told that my great grandfather (mother's side) was so good at playing piano that he was recruited by the London Philharmonic Orchestra but was kicked out because he turned up drunk, among other high achieving opportunities where he did the same.

My grandfather (mothers side again) was also a brilliant man, building things such as clocks and innovative farm implements (some designs were allegedly stolen by Massey Ferguson apparently) but he ended his life at the age of 55, gassing himself in his truck with an elaborate pipe fashioned from sheetmetal that went from the exhaust pipe to the window, which must have taken months to build and fitted perfectly.

Hence, I understand why my mother may have believed the 'stiff upper lip' approach - to not acknowledge one's feelings - may have worked for her. However, it did untold damage to her children, especially combined with the fact that Autism runs in the family.

Of course hindsight is 20/20 and I have realised all of this since the 'defining' of my own children as Autistic, which led me to getting defined myself.

Of course I went through a period of anger and depression but I think I am doing better now because I now know it is okay to acknowledge these feelings that have been suppressed for so long.

Children do not ask to be born and it is the responsibility of the parent to do their best for their child. I realise, at the time, the way I was raised was 'acceptable'. With what I have learned from my past, my Autistic children have been raised a lot better than I was.

Overall I realised NONE OF IT IS MY FAULT.

The best emotion you need to develop and explore right now is compassion - for yourself.

I am a work in progress too. I will probably self medicate too much again today. Sometimes I get completely wasted on home brew beer and finish the job with straight Jack Daniels but it hasn't killed me yet, right? I dare you to tell me that SSRIs are better :lol:

Live long and prosper my friend :heart:


Thank you, I was hoping to hear similar stories from others. Both my parents were mental health professionals and should have tried to help more. But, they did the best they could and I am grateful. I was very angry at them for years and I do regret it, they are gone and I miss them.


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goatfish57
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02 Dec 2023, 4:59 am

CockneyRebel wrote:
goatfish57 wrote:
CockneyRebel wrote:
I hid in a different way behind a Union Jack for 30 years so people would accept me.


Did it work?

There are lessons that most people learn as children. For me, there were only rules to follow and I did not understand them. Learning late in life is much tougher than learning as a child.


I had 6 breakdowns during the course of those 30 years.


I am sorry, that must have been very difficult for you.


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goatfish57
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02 Dec 2023, 11:31 am

@Cataclysmic Psychlone, I needed to read your post a few times to understand. Thank you for the advice on finding compassion and forgiveness for myself. It is difficult. I am very tired of beating myself up over every stupid thing I did. Self-medication, weed, can only do so much. I am hoping that time will heal this wound and I will be stronger.


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Cataclysmic Psychlone
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02 Dec 2023, 10:24 pm

goatfish57 wrote:
@Cataclysmic Psychlone, I needed to read your post a few times to understand. Thank you for the advice on finding compassion and forgiveness for myself. It is difficult. I am very tired of beating myself up over every stupid thing I did. Self-medication, weed, can only do so much. I am hoping that time will heal this wound and I will be stronger.


You are welcome!

I have been on a long journey, I am starting to feel a bit happier. It has been incredibly hard to overcome patterns of negative thinking.

I suffered from a lot of intrusive, self deprecating thoughts. Such when attempting, or even thinking about an upcoming challenging task, thoughts like 'I am a useless dickhead' and others with more colourful language would pop into my head. The trick is to pause and hold that negative thought for the moment, and challenge it. Find out what evidence there is for this. Counter it with an example of some small or big positive victory from recent or distant past (it doesn't matter) - such as 'if I am a dickhead, how was I able to get to the dentist on time yesterday?'

There is a huge amount of stuff on the internet. One lovely person who I found most useful:

https://drjonicewebb.com/

There are tons of resources on the internet along these lines. Some of them expect you to buy things but I got everything I needed by just reading up on their posts or watching You Tube videos etc.

It takes a lot of effort to change one's internal monologue, but I found it to be worth the effort. Eventually, the negative thoughts become quieter, and after a while, hardly pop up at all.



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03 Dec 2023, 7:42 am

yes, what a relief to see everything from the perspective of autism diagnosis. Learning that everything was not after all, "all my fault" meant I was able to give myself credit for surviving all those years of pain and turmoil and to finally understand how autism worked behind the scenes without anybody knowing or understanding. What a relief!! !! best of all was to learn that there were others out there with similar experiences and who would understand. <3 Diagnosed at age 68 and life keeps getting better now I know!


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goatfish57
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07 Dec 2023, 11:01 am

@autisticelders Your description of Autistic Perseveration was a kick in the head. Thank you, I am getting closer to passing the Duck Test, walks like a duck, and quacks like a duck. I am a duck? I believe so.


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