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JamesW
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25 Nov 2024, 4:36 am

carlos55 wrote:
Watching Joe Rogan interview


It's a Joe Rogan interview. Please stop normalising this stuff. Thank you.



carlos55
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25 Nov 2024, 5:11 am

JamesW wrote:
carlos55 wrote:
Watching Joe Rogan interview


It's a Joe Rogan interview. Please stop normalising this stuff. Thank you.


Maybe you missed my point in one of my paragrahs:-

Quote:
Trump referred to the means, the means are connected to RFK Jr. RFK Jr is one of the big 3 in the administration. Trump, Musk , RFK Jr.


They have the support of the next President of the United States, they are going to be the decision makers, they are in control, regardless of what you or i think about it or their views, so what they say cannot be ignored


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MatchboxVagabond
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25 Nov 2024, 2:36 pm

carlos55 wrote:
MatchboxVagabond wrote:
Most likely, we'd be repurposing things that are needed to deal with adults with dementia. Sure, there are differences, but a good chunk of the things that would be helpful for autistic adults already have to be developed for the elderly anyways. Plus, if the population really does start to drop in the next 50 years, there's going to be no getting around having robots and computer assistance to do that stuff anyways.


Some big differences someone with advanced dementia usually may have a lifespan of a couple of years and is usually paid via the persons estate before or after death, with autism lifespan maybe decades with nothing to pay for the care

Realistically there's probably only a small % of autistic people able to hold down a full time competitive job, when you take away ID, spikey functioning and other mental health problems that cripple functioning preventing employment.

Its in other areas too that autism is having an economic impact including education.

From a purely economic standpoint you can see why any government would be wanting to prevent / cure autism

https://www.theguardian.com/education/a ... h-councils

Considering how many autistic people are only being diagnosed as adults, suggesting that it's only a small percentage that can is rather unlikely. It is a relatively small percentage that do, but that's more to do with things like how discriminatory the evaluation process is and a lack of adequate care in terms of providing the appropriate supports for working. If quadrapalegics can have jobs where somebody is there the entire time to do anything that involved handing things out, there's no way that the majority of autistic people couldn't be employed as the necessary supports are oftentimes significantly less than what the law could require in the US.

As far as the cost goes, a lot of that has to do with it being regarded as medical equipment and paid for as such. There's a bunch of stuff that normal people can afford without insurance like an entry level smartphone that would have been horribly unaffordable, or even impossible, a couple decades back. The other thing though is that since autistic people do have a life span of decades, that means that whatever tools are repurposed for that can be depreciated over a longer period of time in some cases as the tools get more mature.

In other words, assuming that the way things are now is how they will be is something that requires a bunch of support. Given how many people on this site were eventually diagnosed as adults, sometimes way late in life, I wouldn't just assume that things aren't already changing. The gear can in many cases be repurposed, and since autistic people are often times in a less dire state that the folks with dementia are, not all of that gear needs to hit the same level of reliability when you can potentially just carry a plan B in terms of a note card with an address and some cash to pay for a cab ride where you need to go.



carlos55
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Yesterday, 6:22 am

MatchboxVagabond wrote:
carlos55 wrote:
MatchboxVagabond wrote:
Most likely, we'd be repurposing things that are needed to deal with adults with dementia. Sure, there are differences, but a good chunk of the things that would be helpful for autistic adults already have to be developed for the elderly anyways. Plus, if the population really does start to drop in the next 50 years, there's going to be no getting around having robots and computer assistance to do that stuff anyways.


Some big differences someone with advanced dementia usually may have a lifespan of a couple of years and is usually paid via the persons estate before or after death, with autism lifespan maybe decades with nothing to pay for the care

Realistically there's probably only a small % of autistic people able to hold down a full time competitive job, when you take away ID, spikey functioning and other mental health problems that cripple functioning preventing employment.

Its in other areas too that autism is having an economic impact including education.

From a purely economic standpoint you can see why any government would be wanting to prevent / cure autism

https://www.theguardian.com/education/a ... h-councils

Considering how many autistic people are only being diagnosed as adults, suggesting that it's only a small percentage that can is rather unlikely. It is a relatively small percentage that do, but that's more to do with things like how discriminatory the evaluation process is and a lack of adequate care in terms of providing the appropriate supports for working. If quadrapalegics can have jobs where somebody is there the entire time to do anything that involved handing things out, there's no way that the majority of autistic people couldn't be employed as the necessary supports are oftentimes significantly less than what the law could require in the US.

As far as the cost goes, a lot of that has to do with it being regarded as medical equipment and paid for as such. There's a bunch of stuff that normal people can afford without insurance like an entry level smartphone that would have been horribly unaffordable, or even impossible, a couple decades back. The other thing though is that since autistic people do have a life span of decades, that means that whatever tools are repurposed for that can be depreciated over a longer period of time in some cases as the tools get more mature.

In other words, assuming that the way things are now is how they will be is something that requires a bunch of support. Given how many people on this site were eventually diagnosed as adults, sometimes way late in life, I wouldn't just assume that things aren't already changing. The gear can in many cases be repurposed, and since autistic people are often times in a less dire state that the folks with dementia are, not all of that gear needs to hit the same level of reliability when you can potentially just carry a plan B in terms of a note card with an address and some cash to pay for a cab ride where you need to go.


There are multiple autisms under the ASD umbrella.

Many people get confused by child / adult diagnosis impact on what is happening

The only statistics that matter are the CDC figures of 8 year olds. If your diagnosed at 8 considering the long waiting time for diagnosis its obvious that neurodevelopmental delay & disability were noticed early, usually very early.

This usually means the individual concerned is likely to be more severely impacted so the likelihood of ID or other symptoms that significantly reduce the chances of employment & independent living is greater.

This figure is going up for disputed reasons but regardless its going up.

If your diagnosed as an adult like myself, its likely your symptoms were much milder or invisible usually picked up as separate mental health problems first. Like seen in many undiagnosed teenagers, as was myself, who had invisible symptoms & have a normal or even high education record, then have a huge breakdown in their teenage years.

I`m not saying i & these people don't have our problems sometimes crushing issues, but its more likely we will be able to live independently and be able to support ourselves to a large degree.

From a government perspective the former is going to be a financial burden, the latter less so and can be utilised in some places with a little understanding & accommodations.


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JamesW
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Yesterday, 8:06 am

carlos55 wrote:
JamesW wrote:
carlos55 wrote:
Watching Joe Rogan interview


It's a Joe Rogan interview. Please stop normalising this stuff. Thank you.


Maybe you missed my point in one of my paragrahs:-

Quote:
Trump referred to the means, the means are connected to RFK Jr. RFK Jr is one of the big 3 in the administration. Trump, Musk , RFK Jr.


They have the support of the next President of the United States, they are going to be the decision makers, they are in control, regardless of what you or i think about it or their views, so what they say cannot be ignored


Carlos: I've deleted my original reply, as it really wasn't very kind.

There's no maybe about it. I didn't miss your point. I see it entirely.

Of course there is a discussion to be had around the impact of the election on healthcare and autism. It should, and must, take place. But an alt-right video is not a valid starting point. It pollutes the whole conversation, which can then achieve no purpose other than to empower the bad actor and push his unacceptable views into the mainstream. This is exactly what the bad actor wants; for other people to unwittingly do his work for him.

Bad actors are free to carry on creating their garbage as they please. This is what freedom of speech actually means - that governments aren't going to stop them. What they don't get to do is to push that garbage into my space, or have someone else push it in there, even unwittingly. If these people have anything to say which is worth listening to, it will be reported on a reputable channel somewhere else, which they do not control.

I am more than happy to discuss healthcare from a political standpoint, and listen to both sides, liberal and conservative, with tolerance and open-mindedness. What I will not do, under any circumstances, is engage with unacceptable content, or accept that doing so is the condition of entering the discussion.

Please do keep on creating and prompting excellent conversations.

This is only my opinion. I don't run WP, and therefore I have no business in telling you what to do. I'm merely a board user, who has been very close to leaving the board entirely, out of pure frustration; whether I'm alone or not in this feeling isn't for me to know or say.

But I'll say it again: please, please, do your research on your seed content before posting it. It's not OK to just double down on it whenever you're called out; it makes you look like you're trolling the board on purpose.

In fact there doesn't even need to be any content at all in the initial post. Just the discussion topic is good enough. The debate will flow naturally and healthily.

Thanks for listening.



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Yesterday, 9:12 am

First of all, I don't recall Trump doing anything to the autism community the last time he was in office. If I remember, he signed the autism cares law into effect.



carlos55
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Yesterday, 10:34 am

I believe although Joe Rogan interviewed Trump and later claimed he voted for him as the lesser of two bad choices, since he had no confidence in kamala, he also said he`s a natural Bernie Sanders supporter and now politically homeless.

As far as RFK is concerned, he`s a natural democrat who only joined Trump in exchange for free reign in the health sector.

I`m not sure where alt right comes into it unless its related to other topics i.e abortion , immigration etc.. which as far as i remember (watched a few weeks ago now) wasn't discussed.


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Yesterday, 10:45 am

JamesW wrote:
In fact there doesn't even need to be any content at all in the initial post. Just the discussion topic is good enough.
Another point is that posting a video almost 2.5 hours long, irrespective of its content and without highlighting or referencing some parts of it to make your own point, is likely to be fruitless.
Who's going to wade through all that to try and work out why it was posted?

As regards the content: anything that isn't illegal or doesn't break the site rules is allowable, even stuff that's the polar opposite to your own views.
That can be starved of oxygen and ignored, or it can be torn apart and exposed - but suppressing it entirely helps no-one; it's tantamount to pretending it doesn't exist.


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MatchboxVagabond
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Yesterday, 12:35 pm

JamesW wrote:
carlos55 wrote:

They have the support of the next President of the United States, they are going to be the decision makers, they are in control, regardless of what you or i think about it or their views, so what they say cannot be ignored


Carlos: I've deleted my original reply, as it really wasn't very kind.

There's no maybe about it. I didn't miss your point. I see it entirely.

Of course there is a discussion to be had around the impact of the election on healthcare and autism. It should, and must, take place. But an alt-right video is not a valid starting point. It pollutes the whole conversation, which can then achieve no purpose other than to empower the bad actor and push his unacceptable views into the mainstream. This is exactly what the bad actor wants; for other people to unwittingly do his work for him.

Bad actors are free to carry on creating their garbage as they please. This is what freedom of speech actually means - that governments aren't going to stop them. What they don't get to do is to push that garbage into my space, or have someone else push it in there, even unwittingly. If these people have anything to say which is worth listening to, it will be reported on a reputable channel somewhere else, which they do not control.

I am more than happy to discuss healthcare from a political standpoint, and listen to both sides, liberal and conservative, with tolerance and open-mindedness. What I will not do, under any circumstances, is engage with unacceptable content, or accept that doing so is the condition of entering the discussion.

Please do keep on creating and prompting excellent conversations.

This is only my opinion. I don't run WP, and therefore I have no business in telling you what to do. I'm merely a board user, who has been very close to leaving the board entirely, out of pure frustration; whether I'm alone or not in this feeling isn't for me to know or say.

But I'll say it again: please, please, do your research on your seed content before posting it. It's not OK to just double down on it whenever you're called out; it makes you look like you're trolling the board on purpose.

In fact there doesn't even need to be any content at all in the initial post. Just the discussion topic is good enough. The debate will flow naturally and healthily.

Thanks for listening.

TBH, I think the biggest difference between our views on these things is simply the direction we're looking from. There clearly is some degree of challenge that is legitimately because of autism rather than other things. But, there's also fairly clearly some degree of it that's unrelated and we seem to largely disagree as to the degree to which it's one or the other.

In terms of umbrella terms, those are absolutely horrible if you can't limit the range of things that fall within the term to something manageable. There was a significant degree of overemphasis on false positives while neglecting false negatives and that a different diagnosis being added might make more sense. Although the lack of a proper replacement for PDD-NOS in particular was a massive mistake as it means that any of the sort of edge cases that might justify a different diagnostic label in the figure are either buried with the ASD diagnosis and expanding it more than is intended, they're buried with other diagnoses or there is no diagnosis at all that really fits and people just have their lives ruined by not having any idea what's going on.

IHMO, at absolute bare minimum, they should have provided a diagnosis to cover folks who don't show traits in early childhood but where the traits are clearly there to be seend in adolescence as it is a major problem as it can be rather hard to judge traits that are turned inwards early on, but if it's happening on it's own as a teen, that's probably not a personality disorder, especially if a bunch of other folks in the family have similar traits and there are sensory differences from the norm.



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Yesterday, 12:38 pm

Cornflake wrote:
JamesW wrote:
In fact there doesn't even need to be any content at all in the initial post. Just the discussion topic is good enough.
Another point is that posting a video almost 2.5 hours long, irrespective of its content and without highlighting or referencing some parts of it to make your own point, is likely to be fruitless.
Who's going to wade through all that to try and work out why it was posted?

As regards the content: anything that isn't illegal or doesn't break the site rules is allowable, even stuff that's the polar opposite to your own views.
That can be starved of oxygen and ignored, or it can be torn apart and exposed - but suppressing it entirely helps no-one; it's tantamount to pretending it doesn't exist.

Not that it's an appropriate solution to what you're referring to, but when I have videos like that and I actually want the information, I'll record them and run them through whisper-AI to generate subtitles to help me do a simple text search for what I want and since it's subtitles, there'll be a time code if I really want to be sure that the transcription wasn't in error.

But, really, even if this were something I was super into, I probably would be put off doing that kind of work when there's probably another video out there that has a similar idea that I could watch with less filler.



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Yesterday, 4:07 pm

I agree it was a long video that would put off many people.

I was simply making a point that we may see big changes in the autism world under a Trump presidency, given RFK`s involvement and Trump`s seemingly going along with his plans.

What i or anyone thinks about it is irrelevant

I agree censorship doesn't really solve anything, if someone doesn't like something posted, tear it apart but i suggest giving intelligent reasons why something is wrong rather than simply because its not politically your side.

Anyway that's enough from me on this thread


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Yesterday, 7:27 pm

MatchboxVagabond wrote:
But, really, even if this were something I was super into, I probably would be put off doing that kind of work when there's probably another video out there that has a similar idea that I could watch with less filler.
Yes indeed.

Unless a video is sort and self-explanatory I think it's simply good posting practice to provide a few pointers to sections (timed points) of a lengthy video, sections that are especially salient to what the poster wants to say with the video, and maybe add some comments on those sections.

This not only makes an efficient use of a reader's time but also provides hooks from which to start a discussion.


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Today, 12:54 am

Summer_Twilight wrote:
First of all, I don't recall Trump doing anything to the autism community the last time he was in office. If I remember, he signed the autism cares law into effect.


Except he wants to cut disability funds and Medicare and the affordable care act. ManybASD people rely on these services. He also wants to cut federal for education which will also affect special Ed students and those with ASD.

This is why people are concerned.


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