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ToughDiamond
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26 Nov 2024, 6:59 pm

I see the exact definition of fatigue is hard to pin down:
https://en.wikipedia.org/wiki/Fatigue#Definition
"A 2021 review proposed a definition for fatigue as a starting point for discussion: "A multi-dimensional phenomenon in which the biophysiological, cognitive, motivational and emotional state of the body is affected resulting in significant impairment of the individual's ability to function in their normal capacity".

Another definition is that fatigue is "a significant subjective sensation of weariness, increasing sense of effort, mismatch between effort expended and actual performance, or exhaustion independent from medications, chronic pain, physical deconditioning, anaemia, respiratory dysfunction, depression, and sleep disorders"."


Also: "fatigue is complex and in up to a third of primary care cases no medical or psychiatric diagnosis is found."



Jakki
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27 Nov 2024, 12:03 pm

Well normally would not contest anyones legal definitionof Chronic fatigue , as most all I have seen are quite representative of cfs symptoms . but this is not something you want in your country . If your country had this as a real diagnostic criteria by
anyones standard . Your economy might have issues . And might have to change your entire medical establishments guidelines for care and treatment. Chronic fatigue. Is a symptom of systemic issue .. Not just old age and a lack of ability to recover or something as direct and simple to deal with . Am only able to speak for myself in reality, but I have been around too many people in support groups and organizations that claim CFS/ME as a symptom. And been battling those similiar/ same symptoms for a big part of my life ,So I feel as if my opinion inthis matter could be considered a strong one.. As wrote before. That there seems to be a mere handful of bacteria that seems to show up in the bloodstream when these people have been tested . And subsequent . bacterial loading in the blood stream of these same bacteria.. Causing the blood to appear as if the bloodstream is full of sludge eventually . Similiar to slide observation found in ME , also known as Mad Cow disease . Particularily noted in spinal fluid / brain fluids....
Would postulate the direction connection to the brain/ blood sludge,contributing lack of ability for the blood to carry its normal nutrients to to various parts of the body , Most particilarily the brain . Hence a chronic faitigue situation.
It takes a dedicated doctor to ferret the cause and effect out of anyone, patients case. But as you might have already
figured out , Western Medicine, has a huge following . Around the world , ( for treating symptomatic medicine)
NOT causitive medicine .. But CFS/ ME is a causitive medicine based situation . And diffcult to treat. :ninja:
Been somewhat successful using various methods to keep that stuff at bay.Thank you to some dedicated Docs and a ton of research.


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bee33
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27 Nov 2024, 12:30 pm

ME/CFS is a specific disease. It's not fatigue in general. It is a serious illness of unknown cause and with absolutely no available treatments. There is absolutely nothing that doctors or any other kind of practitioners can do for ME/CFS. The only thing to do is to try to rest as much as possible but that doesn't make it better, it only prevents a worse crash.

I know because I have had it for over 40 years.



Jakki
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27 Nov 2024, 1:14 pm

Sources for medical info in this country USA are extermely biased .And I have seen them corrupt a normal persons critical thinking processes . The Post above by myself is / was based on personal experiences . Over a lifetime .
And was barraged by every symptomatic literature and Allistic medical opinions . And I applaud anyone who is dealing with this disease. This would be a very expensive medical situation to dx. and treat. If you have cfs/ me symptoms
please find a cheapo live blood cell analysis and interpetation of the results ,as I had done at 18 yrs of age Without telling the person doing the diagnosis on your blood ,about your CFS / ME ..and listen to their results....This was what prompted me into the long couse of study on this topic. There is no cost effective way to treat a blood born disease. And dealing with it "imho" is generally considered a situation where big lifestyle changes are necessary. IMHO. this stuff has to be dealt with from a systemic point of veiw . Closest,I can come to a limited understanding infectious disease Doctor , turned out to be a LLMD ,
( Lyme ,Literate,Mefical Doctor) .
Sorry if this does not fit with popular definition of what , Other people have convinced people of the current public POV
Just putting this out there,as a extra: consider that a low level blood infection, would/ might create a issue in the body, where it is responding to a infection,in the only way it knows how . Through Inflammation . Lots of low level inflammation system wide . Causing a large variety of symptoms. I had success using lots of anti- inflammitory supplements and cold medicines .And allopathic docs will want to only treat what they are familiar with....Which means if their are things beyond their scope .. Most likely the patient may repeatedly hear ,negative outcome things.
But they will give lots of symptomatic medicine treatments . If your lucky , and you word your requests correctly?
Never ever got a single reccomendation to a ID , (Infectious disease doc) by all the doctors ,I had see over the years.
Turned out to be the only doc that remotely had a handle on the issue.

It is not my job to spread awareness, of this dire situation. And am just speading what I learned from my own life long experiences with this stuff. ( give the body the nutrients it needs to combat a illness, and a little extra immune support
and the immune system will do its job. IMHO .


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ToughDiamond
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27 Nov 2024, 1:57 pm

I'm sure it's real. I was a tired teenager for a few years, couldn't bring myself to do anything remotely energetic, couldn't get up in the mornings. Never found out what was causing it, never found any intervention that helped. It just faded away all by itself. Best guess, in my case the educational system I was being subjected to was so frustrating and boring that it affected me physically. But I'll never know. And I doubt every case is caused by such things, even if mine was.



Jakki
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27 Nov 2024, 2:28 pm

Please understand , that by """no "" means am I trying to deny the existence of this malady..but I am quite sure that allopathic docs do not treat it . But am saying it needs further understanding . And insightful treatment.
It had robbed me of my willingness to live , for a very longtime. And quality of life was in the dumpster. And I relied
on a AMA qualified Doc, to get me on a path to treat it. Very successfully at the time btw.I gave her the info. she needed to get her past her patients ,not adapting to treatment very well.That included nutritional things But imho it appears to be a very opportunistic disease . And seems to be able to lie dormant for extended periods of time . Waiting for the immune system to weaken . From other research, "had been written in the Lyme community" by researchers that after a prolonged period of growth of this low level blood infection,can cross the bloodbrain barrier . Where its mischevious nature starts to affect normal functions of the sympathetic nervous system, and various component structures in the brain . The afore mentioned related slowing of the blood flow in the general system,happens in the brain aswell.
A leading cause of depression. Per my research , regarding uses of rTMS to stimulate blood flow in the brain .
And personal use of TMS in treating my symptoms , later on after being treated for this blood borne bacteria.
IMHO a multi modal approach may aide in putting these bacteria into a state of remission .


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colliegrace
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27 Nov 2024, 6:20 pm

justanotherpersonsomewhere23124 wrote:
Is fatigue common in autistic people? Might chores that most "normal" people do, like raking, be very fatiguing for someone who is autistic?


100%. Especially cuz I'm in what's called "autistic burnout". Very severely so.

Also... some of it's just executive dysfunction. It takes more for us to be able to override that.


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28 Nov 2024, 6:07 am

justanotherpersonsomewhere23124 wrote:
Is fatigue common in autistic people? Might chores that most "normal" people do, like raking, be very fatiguing for someone who is autistic?


I experience fatigue as an every day occurrence. The reason for my fatigue is mostly physical health related, but my issues with executive function caused autism make it much worse.



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28 Nov 2024, 11:46 am

Canadian Freedom Lover wrote:
justanotherpersonsomewhere23124 wrote:
Is fatigue common in autistic people? Might chores that most "normal" people do, like raking, be very fatiguing for someone who is autistic?


I experience fatigue as an every day occurrence. The reason for my fatigue is mostly physical health related, but my issues with executive function caused autism make it much worse.


Yes,, i can easily identify with this post ...it gets quite inconveinent .,when your trying to do something important .
And all your spoons have gone away . Like having the carpet pulled out from underneath you . It has repeatedly cost me dearly in my lifetimes interaction with the public .


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Ziggy Stardust
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01 Dec 2024, 8:41 pm

For me, having to do anything requiring social interaction is extremely fatiguing. I come home from a trip to the store where I must interact with the cashier and I am zonked! Going to pick up my son and having to talk to the couple that he works for is so taxing that I can start to fall asleep on the drive home!! I am a runner and I also workout with weights, do I am in great shape, I just can't do social situations. The stress just wears me out.



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Yesterday, 12:17 am

justanotherpersonsomewhere23124 wrote:
Is fatigue common in autistic people? Might chores that most "normal" people do, like raking, be very fatiguing for someone who is autistic?
Yes very much so.


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Yesterday, 2:25 pm

Edna3362 wrote:
Depends on individual factors.
If there are aspies that are, even if they're in shape and with the appropriate habits; their senses, feelings or their minds are more fragile or easily overwhelmed, likely either not or not easily accommodated.
This is usually the most known source of exhaustion amongst autistics.


You described me very well. And when I push myself for too long bad things happen.

At the moment, I am slowly recovering from a COVID-induced chronic fatigue illness. All my fatigues are badly amplified and living my prior life is much more difficult.


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SteveD210
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Yesterday, 6:22 pm

I often feel fatigued especially after work that I sometimes scarcely can keep my eyes open on the train ride home. When I get home I often have to isolate myself as some people say to ‘recharge the batteries’.

I’ll play some piano which will temporarily boost some of my energy and then spend time with my partner and my dogs. I get not having enough energy for menial tasks at home. What fatigues me most is being an adult, having to pay bills and dealing with the absurd and disturbing world we unfortunately live in, and also living with an anxiety disorder which is also akin to having a full time job with no pay. :/



Jakki
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Yesterday, 7:10 pm

So you might not xpect fatique from just sitting on your butt, All the time on hold and misleading medicare info sites.
That I do not understand and several people asking invasive questions. More hold ,, then call another number , and no you have to pay us directly ....and do this and do thus and more fees and no part D , this or that .,Every agent wants the commission from your signing up .On the best plan for their commission . Now call this other number and be on hold
JEEZ ....NO MENTAL SPOONS LEFT ..and so goes the physical spoons too.....stress seems to aide in causing fatique :roll:


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Today, 12:36 am

SteveD210 wrote:
I often feel fatigued especially after work that I sometimes scarcely can keep my eyes open on the train ride home. When I get home I often have to isolate myself as some people say to ‘recharge the batteries’.

I’ll play some piano which will temporarily boost some of my energy and then spend time with my partner and my dogs. I get not having enough energy for menial tasks at home. What fatigues me most is being an adult, having to pay bills and dealing with the absurd and disturbing world we unfortunately live in, and also living with an anxiety disorder which is also akin to having a full time job with no pay. :/


I can relate to a lot of this.