Why so many ASD and ASD like people portrait it as failure?
Btw, I do check my resources... usually based on DSM 5, university resources. I'm sorry. Btw an image isn't a resource.
So, what does the DSM 5 say is the cause of autism and other neurodivergence disorders, and what are the recommended guidelines for reducing symptoms? There are no causes laid out, nor are there any recommendations for helping reduce symptomology, because all the DSM 5 is used for is diagnostic guidelines and criteria for mental health classification. Autism cannot be detected through blood, brain scan, genetic, or and other biological type of test which means all diagnoses are done subjectively through observation, interaction, and cognitive/psychological testing.
What causes autism is a complex discussion with wide ranging theories ranging from purely genetics to strictly vaccine induced and everything in between. Modern research by open minded researchers are now slowly coming to the realization that there appear to be many factors that are involved to varying degrees and looking at autism in a whole body perspective rather than the classic 'mental disorder'. Genetics, brain and neurological structures, physiology, environmental factors, society and family factors, and development differences are just a few of the things recognized as playing a role in the development of autism. This is important as in some ways it does validate some of what you say while negating other things.
There is nothing any of us can do to 'fix' or improve our genetical material we inherited from our parents, that part of autism we are stuck with. Personally I am great with that as I love the genetic gifts, even if I didn't love the donors. We really can't change our brain structure or neural pathways into a different pattern in any positive ways to benefit mental health and autism, we can't be 'fixed'. Our individual physiology both stays the same and is changeable, depending on several variables both environmental and genetic. We cannot change our environment, not in any meaningful way at least, as most of us lack access to the resources and support needed to make any real changes.
Our environment can, and does change us in ways both known and unknown. Out of sight, out of mind mentality that allows our environment affect our whole body health in both positive and negative ways. Just because we don't see it or know it's there doesn't make it unreal or not happening, that is reality. Where we live and work, where we get our food and water, the sky above and the air we breath are all factors that affect our mental and physical health. Here we can change our circumstances and environment for the better, but only if we are able to gain access to the necessary resources and support needed and even then there is no guarantees about results.
Autism has been shown in recent meta analysis research to be a whole body issue, not merely a brain only issue believed in the past. Autistics as a whole exhibit a wide range of symptomology such as metabolic, immunological, gastrointestinal, and neurological which supports this theory completely. Some of the issues can be affected by diet and/or other measures while others can't.
The biggest thing for many of us on the autism spectrum is mental perspective and health, especially when also dealing with the stigma and attitude we and the world holds about autism and autistic people. Emotional, mental, and physical abuse are all too common factors that play a significant role in how each of us develop and grow mind, body, and soul. For most the outside world is at minimum confusing and often times terrifying and overwhelming as well. Self esteem is developed from birth and not everyone is the same because everyone's life and development is different. Having a healthy self esteem is incredibly important in life, yet this is incredibly difficult for many autistics to find without help. Without help low self esteem spirals down into despair and beyond eventually into total apathy, a dark and lonely place that many autistics sadly call home. When we get to that place, with no way obviously to verbalize our thoughts and emotions and with no known source of help, what should we do?
Modeling autism: a systems biology approach
Whole article is an amazing read but much to long to post here.
Autism is the fastest growing developmental disorder in the world today. The prevalence of autism in the US has risen from 1 in 2500 in 1970 to 1 in 88 children today. People with autism present with repetitive movements and with social and communication impairments. These impairments can range from mild to profound. The estimated total lifetime societal cost of caring for one individual with autism is $3.2 million US dollars. With the rapid growth in this disorder and the great expense of caring for those with autism, it is imperative for both individuals and society that techniques be developed to model and understand autism. There is increasing evidence that those individuals diagnosed with autism present with highly diverse set of abnormalities affecting multiple systems of the body. To this date, little to no work has been done using a whole body systems biology approach to model the characteristics of this disorder. Identification and modelling of these systems might lead to new and improved treatment protocols, better diagnosis and treatment of the affected systems, which might lead to improved quality of life by themselves, and, in addition, might also help the core symptoms of autism due to the potential interconnections between the brain and nervous system with all these other systems being modeled. This paper first reviews research which shows that autism impacts many systems in the body, including the metabolic, mitochondrial, immunological, gastrointestinal and the neurological. These systems interact in complex and highly interdependent ways. Many of these disturbances have effects in most of the systems of the body. In particular, clinical evidence exists for increased oxidative stress, inflammation, and immune and mitochondrial dysfunction which can affect almost every cell in the body. Three promising research areas are discussed, hierarchical, subgroup analysis and modeling over time. This paper reviews some of the systems disturbed in autism and suggests several systems biology research areas. Autism poses a rich test bed for systems biology modeling techniques.
Keywords: Autism, Mitochondrial dysfunction, Oxidative stress, Immune dysfunction, Gastrointestinal disease
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If you're always trying to be normal, you will never know how amazing you can be.
Maya Angelou
If I were to comment on anything further, it's that mindfulness is mainly useful for cognitive stuff. And yes, it can help with autism. A course I took recently for autistic people also talked about this. A lot of ASD is cognitive, and we do have high rates of anxiety and depression as secondary, gained conditions due to our inability to innately read social cues and just overall difficulties in life.
I have done a lot of mindfulness with my RSD (which is similar to C-PTSD) and have been able to reduce my overall symptoms this way.
Thing is, autism also involves, again, sensory processing disorder in many or even most diagnosed individuals. Sensory processing disorder is not cognitive. It is a brain thing where certain sensory input cannot be tuned out and so begins to cause you pain after a while-- literally, this is processed in the parts of the brain dealing with pain.
Sensory overload for me feels like intense overwhelm, nausea, and pain. Sometimes it's similar to anxiety, but when it comes in direction response to certain stimuli, it's SPD. (For me, loud noises, bright lights, and certain smells tend to trigger the overload.) Can also cause headaches from bodily strain. (The number of times in my life that I got a headache because of a lamp that wasn't bothering anyone else....)
I can be mindful of the pain and extreme discomfort all I want - that does not make it go away, nor does it make it easier to deal with.
This was half of my problems at my job-- working at a grocery store is noisy and chaotic. I'd literally react to the grocery carts like a gunshot had gone off. Flinching, recoiling in pain, etc.
I also get sensory overload in my own home sometimes.
There are things that can help, sometimes. But this does severely limit the sorts of jobs I can work.
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He/him or they/them pronouns, please.
ASD level 1 & ADHD-C (professional dx), dyscalcula (self dx), very severe RSD.
Currently in early stages of recovering from autistic burnout.
RAADs: 104 | ASQ: 30 | CAT-Q: 139 | Aspie Quiz: 116/200 (84% probability of being atypical)
I have done a lot of mindfulness with my RSD (which is similar to C-PTSD) and have been able to reduce my overall symptoms this way.
Thing is, autism also involves, again, sensory processing disorder in many or even most diagnosed individuals. Sensory processing disorder is not cognitive. It is a brain thing where certain sensory input cannot be tuned out and so begins to cause you pain after a while-- literally, this is processed in the parts of the brain dealing with pain.
Sensory overload for me feels like intense overwhelm, nausea, and pain. Sometimes it's similar to anxiety, but when it comes in direction response to certain stimuli, it's SPD. (For me, loud noises, bright lights, and certain smells tend to trigger the overload.) Can also cause headaches from bodily strain. (The number of times in my life that I got a headache because of a lamp that wasn't bothering anyone else....)
I can be mindful of the pain and extreme discomfort all I want - that does not make it go away, nor does it make it easier to deal with.
This was half of my problems at my job-- working at a grocery store is noisy and chaotic. I'd literally react to the grocery carts like a gunshot had gone off. Flinching, recoiling in pain, etc.
I also get sensory overload in my own home sometimes.
There are things that can help, sometimes. But this does severely limit the sorts of jobs I can work.
Somehow true in my case.
Kinda why I'm pursuing health related solutions.
I'm mostly done with what's virtually free.
And my primary sensory intensity is around interoception. It's not often talked about because most of the discussions are focus around external.
To a point that any external accomodations are pointless.
But not in a way that autism should be cured, either. Because autism isn't the root cause for me, but autism makes me afford less in carrying around whatever untreated crap that people dismissively never had to take seriously all because "everyone is struggling".
The best way for the world to ever accomodate my case is simply prevention of any further secondary crap that could've been prevented in the first place.
Left unresolved, it'll become a mental illness on top of whatever affliction.
Or a source of it anyways. And when I don't experience it's symptoms, there's nothing I need to fight. Nothing to fight, nothing to accomodate.
I don't know, but I just know whatever untreated physical illness this was, it's using my own neurodivergence against me and it's fueling the dysfunctional mental related stuff I have to fight on a daily basis.
And people misattributing these issues with autism instead of thinking that there's a reason why I just do certain things, or worse, ill the whole time.
Really.
I can ignore the world. Pierce through the patterns of thought and emotions and other concepts of 'what makes a human person'.
But not my damnable physical vessel. And the only person I can trust to accomodate it is myself.
What triggers me more is not the noise of the outside world and the situations around it, but the noise my own body makes that had been an enabler to unwanted thoughts, unwanted cognitive effects by being a processing space thief, unwanted behaviors all because I spent too much time fighting it...
I cannot afford getting real mental illness. Hell, I cannot afford particular mindsets even.
If I'm down, I'm down.
I cannot mask my inner states, which is very different from the common topics around just regulating emotions, thoughts born from beliefs, sentiments and towards socializing.
And I don't have anyone else to talk about it.
Not even other autistics. More than not, cases of autism have issues with interception and expressing things related to it.
Thus I'm on my own, disability or not.
I got no one to trust, no one to rely on over it except that the world should let me be.
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Well, I suppose there should be a DSM 5 by now, but I doubt I'll get around to studying it. After much such of the DSM 4, I was forced to conclude that their methodology amounts mostly to: we don't know how to categorise this, so lets dump it with all the other unconected issues in the autism "spectrum"!
The label "Autistic" when Leo Kanner borrowed from it, was quite straightforward, based on the historical meaning, which was in common use around the end of the 19th century. Since the 60s, though, this "autism research" industry (sic: thier main concern is prolonging their careers, by keeping things confused) has turned it into an incomprehensible plum pudding (or should that be vegetable soup?)! To label someone as autistic, with no reference to the aspect of personality that label properly describes, is pure nonsense!
Speaking of Leo Kanner, does googling him still diplay his preeminent status as the author of the word "autism", or has his biography now been watered down to irrelevance? This process has been going on for the last 20 years or so, and at one time I attempted to make corrections, but it became pointless, as, within days, the lies were back again.
It seems a long time since people believed the web was a haven for truth, but those who've thought about it, should have realised by now that,in fact, it's just another tool for propoganda, under the control of the establishment.
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