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MrsPeel
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28 Dec 2024, 7:04 am

I had a thyroid peroxidase TPO antibody test and scored 2,800 IU/ml which apparently means I have raging autoimmune thyroid disease (Hashimoto's). I also have a multinodular goitre and high thyroid stimulating hormone TSH level.

Does anyone else here have thyroid disease, and can you share your experiences? I'm wondering what I'm in for.



Jakki
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28 Dec 2024, 12:21 pm

Hmm.. have known folks with Wilsons disease . Know of Hasimotos....And as I understand periods of. fatigue are a factor ..And know people who had goiters removed off the thyroid.. Have had a "few very competint doctors ."
Inform me about the long term consequences of eating lots of USA style diet food. And due to the Lack of nutrient the body needs to normally fend off disease. People get sick. And starts to manifest as non life threatening diseases in the body .. based on those Doctor opinions. before becoming life threatening .( Quote by Dr Caudill ) Learn to listen to your body) basically do not ignore symptoms .. Best option imho, and experiences find a quality Naturopath ....And then see if you can find one that might specialize in Hashimotos..Just a thought. Natutopaths general attempt to treat the cause of the Health issue. Not just treating symptoms .As most ALL md,s. do in the USA.


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MrsPeel
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01 Jan 2025, 3:01 am

Thanks Jakki.

I have been trying to eat a natural diet without junk food or highly processed food, and I temporarily cut out gluten and dairy, but it doesn't seem to be helping much. Still getting headaches and fatigue, joint pains etc. I don't really know what else I can do, until the doctor puts me on thyroid medication.

I got a lump on my forearm which I thought might be a rheumatoid nodule and the Dr agreed to do a blood test for that as well, just in case. As it's possible to have multiple autoimmune conditions at the same time. If that comes back positive she's going to refer me to a rheumatologist.



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01 Jan 2025, 7:11 am

Good Luck on the Reumatologist..Peeps seem to not always realise , that it takes years to develop bigger systemic
issue ..And generally might take a long time to resolve them. Might get yourself tested for the gluten intolerance ?
Just a thought ....Low level allergic reactions tend to get ignored by people, eventually potentially turning into bigger issues . After a few years.. The low level chronic allergic stuff, causes a low level of chronic inflammation . Which starts to affect other areas of the body ,as a side effect of extended periods of inflammation. After awhile ( years) .
Systemic dysregulation , can lead to a weird collection of lots of minor issues, that stack up on themselves.
At least this has been my experience ..Hope things go better for you in this New Year.


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MrsPeel
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Yesterday, 7:36 pm

Well, I seem to be making progress, tests in late January had thyroid hormones back in the normal range. There isn't a cure for Hashomoto's but maybe I've gone into a temporary remission? So the gluten and dairy free diet might have been working even when I thought it wasn't.

I've been trying some other things also - 2 Brazil nuts every day for the selenium, a fish oil, and some Nigella seeds. And cooking Chinese herbal soup once a week. There are certain Chinese herbs which have been shown to help, although you have to balance them with other herbs to avoid toxicity, and because I don't know much about it I only made a minor variation on a standard Chinese soup mix to be safe. But it does seem to help.

It's a poor reflection on Western medicine that the doctors do absolutely nothing for autoimmune thyroid disease until your thyroid has been destroyed and can no longer produce hormone. Then they put you on a daily hormone pill. It's like Type 1 diabetes which is an autoimmine detsruction of the pancreas - except you take a levothyroxine pill instead of injecting insulin.

In Chinese traditional medicine they are actually looking at how to lower the anti-thyroid antibodies to delay the disease process.



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Yesterday, 8:58 pm

My PCP suggested Ashwagandaha KSM-66 for anxiety.
It may also help with Hashimoto's disease.