Board index › General Discussion › Autism Politics, Activism, and Media Representation

you would have never thought

Page 2 of 5 [ 77 posts ]  Go to page Previous  1, 2, 3, 4, 5  Next

Previous topic | Next topic

Sweetleaf
Veteran
Veteran

User avatar

Joined: 6 Jan 2011
Age: 35
Gender: Female
Posts: 34,989
Location: Somewhere in Colorado

26 Jun 2011, 9:40 am

ci wrote:
Sweetleaf wrote:
ci wrote:
The brain has enough natural drugs from emotion.


Yes and I just happen to have more of the natural drugs in my brain that make me feel like crap then the ones that make me feel good...so i have to balance it out somehow.


Pills are nothing to be ashamed of when prescribed.


Well yes that is not quite what I was referring to.....last time I was prescribed pills it did not work out too well.



Sweetleaf
Veteran
Veteran

User avatar

Joined: 6 Jan 2011
Age: 35
Gender: Female
Posts: 34,989
Location: Somewhere in Colorado

26 Jun 2011, 9:44 am

ci wrote:
Sweetleaf wrote:
vermontsavant wrote:
ok well maybe weve just started a anti infighting movement on this form,ill update you if autism speaks responds or deletes my account ha ha ha


The impression I have gotten is Autism Speaks does not really care about how people with autism or aspergers feel about it. And I certainly have no use for an organization that claims to represent people like me while ignoring anything I or anyone else might have to say about it.


Perhaps it is hard for them to both support individuals that are proud of difficulties and those who feel specific aspects of themselves are disabilities.


Well that is no excuse for behaving like people with the conditions opinions and feeling do not matter, its like they care more about putting people in their place or whatever.



Sweetleaf
Veteran
Veteran

User avatar

Joined: 6 Jan 2011
Age: 35
Gender: Female
Posts: 34,989
Location: Somewhere in Colorado

26 Jun 2011, 9:47 am

vermontsavant wrote:
@sweatlief,sorry my previous response to you didnt go through.the whole point of my post was to show AS doesnt always exclude autistics from there org.also AS is a sapport group for parents of autistic children,they dont claim to be represnting autistics,what this forum is for


Well shouldn't they be encouraging parents to try and find the skills their child does have and be encouraging about it? It just seems like its for parents who see their kid as a horrid disability then a child with a disability that still has the chance to develop and such........that is really the impression I got from their website.



ci
Veteran
Veteran

User avatar

Joined: 28 Nov 2010
Age: 43
Gender: Male
Posts: 3,546
Location: Humboldt County, California

26 Jun 2011, 10:37 am

draelynn wrote:
The Autism Speaks forum on NING is heavily vaccine politics. not very active either. Only a handful of people arguing the same topics over and over with a sprinkling of rational parents honestly looking for help tossed in. There are a few on the spectrum as well and usually their advice is very welcomed. But I've aslo seen the negative side of that - people who think those here on WP aren't 'autistic enough' if they can all type and express themselves. There also seems to be some negative attitudes as well about WP becasue of all the outspoken Aspies (apparently a 'curebie' parent got himself lambasted here).

Seriously - I agree vermontsavant. Can't we all just get along?


That is very fascinating. Yet I am not going to any other forums to study. Some pride folks cost me allot of productivity already and I am leaving this forum as well. I am going to post up my native American instrument flute music though.


_________________
The peer politics creating intolerance toward compassion is coming to an end. Pity accusations, indifferent advocacy against isolation awareness and for pride in an image of autism is injustice. http://www.autismselfadvocacynetwork.com


draelynn
Veteran
Veteran

User avatar

Joined: 24 Jan 2011
Age: 56
Gender: Female
Posts: 2,304
Location: SE Pennsylvania

26 Jun 2011, 10:42 am

ci wrote:
That is very fascinating. Yet I am not going to any other forums to study. Some pride folks cost me allot of productivity already and I am leaving this forum as well. I am going to post up my native American instrument flute music though.


Hmmm... I would have thought you took the temperature on several forums - not just this one. Since Autism Speaks is so vilified here I would have thought that would be one of the first places you would monitor outside of WP.

Good hunting to you ci.



ci
Veteran
Veteran

User avatar

Joined: 28 Nov 2010
Age: 43
Gender: Male
Posts: 3,546
Location: Humboldt County, California

26 Jun 2011, 10:50 am

Analysis of this kind does not create funding. I must focus on creating funding. I have learned enough to protect my organization from pride individuals that are harmful toward organization that do not follow their explicit agenda and whom they try to force.

The music will be about inclusion.


_________________
The peer politics creating intolerance toward compassion is coming to an end. Pity accusations, indifferent advocacy against isolation awareness and for pride in an image of autism is injustice. http://www.autismselfadvocacynetwork.com


draelynn
Veteran
Veteran

User avatar

Joined: 24 Jan 2011
Age: 56
Gender: Female
Posts: 2,304
Location: SE Pennsylvania

26 Jun 2011, 11:04 am

ci wrote:
Analysis of this kind does not create funding. I must focus on creating funding. I have learned enough to protect my organization from pride individuals that are harmful toward organization that do not follow their explicit agenda and whom they try to force.

The music will be about inclusion.


Have you appealed to Autism Speaks for funding? They do set aside a percentage of their funding for programs like yours. If you suggest it as a pilot program for possible future franchising it might just catch their attention. An experienced nonprofit grant writer should be able to put the proper spin on it...



ci
Veteran
Veteran

User avatar

Joined: 28 Nov 2010
Age: 43
Gender: Male
Posts: 3,546
Location: Humboldt County, California

26 Jun 2011, 12:12 pm

I have enough spin and my decision is by the fruits of my and our labor. People buy candles all the time to support this private sector program. The government will be funding it directly soon enough in the tune of $100,000 - $500,000 a year as it grows. Yet when this happens (likely in 4- 6 months) the company will split into two. One being the social service agency and the other area inclusion campaign and products. Seeking non-profit 501c3 or related status is important.

All Autism Society and Autism Speaks chapters / locations are being mailed shortly.

I am ordering 10,000 lotion bottles and candle pouring robotics equipment soon.


_________________
The peer politics creating intolerance toward compassion is coming to an end. Pity accusations, indifferent advocacy against isolation awareness and for pride in an image of autism is injustice. http://www.autismselfadvocacynetwork.com


draelynn
Veteran
Veteran

User avatar

Joined: 24 Jan 2011
Age: 56
Gender: Female
Posts: 2,304
Location: SE Pennsylvania

26 Jun 2011, 5:24 pm

Awesome! Go git 'em, ci!



ci
Veteran
Veteran

User avatar

Joined: 28 Nov 2010
Age: 43
Gender: Male
Posts: 3,546
Location: Humboldt County, California

26 Jun 2011, 6:08 pm

[youtube]http://www.youtube.com/watch?v=SsV2O4fCgjk[/youtube]


_________________
The peer politics creating intolerance toward compassion is coming to an end. Pity accusations, indifferent advocacy against isolation awareness and for pride in an image of autism is injustice. http://www.autismselfadvocacynetwork.com


ProudAspie
Toucan
Toucan

User avatar

Joined: 13 May 2011
Age: 45
Gender: Male
Posts: 274

26 Jun 2011, 11:57 pm

ci wrote:
draelynn wrote:
The Autism Speaks forum on NING is heavily vaccine politics. not very active either. Only a handful of people arguing the same topics over and over with a sprinkling of rational parents honestly looking for help tossed in. There are a few on the spectrum as well and usually their advice is very welcomed. But I've aslo seen the negative side of that - people who think those here on WP aren't 'autistic enough' if they can all type and express themselves. There also seems to be some negative attitudes as well about WP becasue of all the outspoken Aspies (apparently a 'curebie' parent got himself lambasted here).

Seriously - I agree vermontsavant. Can't we all just get along?


That is very fascinating. Yet I am not going to any other forums to study. Some pride folks cost me allot of productivity already and I am leaving this forum as well. I am going to post up my native American instrument flute music though.


See ya Ci! :D



ci
Veteran
Veteran

User avatar

Joined: 28 Nov 2010
Age: 43
Gender: Male
Posts: 3,546
Location: Humboldt County, California

27 Jun 2011, 12:05 am

I have only allocated so much time. I am sure I will be emailed if when needed again. Also if them pride-mite folks want to banter again by messing with my organization I have a whole lot more political ammunition then before. I am eager to assure fundamental liberties of myself and those who benefit from the civil rights platform I have established where I live. For now the YouTube videos against pride have been removed. Yet I long for the opportunity to prove myself in defending and advancing the prerogative should they attack it again.


_________________
The peer politics creating intolerance toward compassion is coming to an end. Pity accusations, indifferent advocacy against isolation awareness and for pride in an image of autism is injustice. http://www.autismselfadvocacynetwork.com


vermontsavant
Veteran
Veteran

Joined: 7 Dec 2010
Gender: Male
Posts: 6,110
Location: Left WP forever

27 Jun 2011, 5:22 am

well the good news is that my post is still up and has not been moderated and my account is still active but no one has replied yet


_________________
Forever gone
Sorry I ever joined


draelynn
Veteran
Veteran

User avatar

Joined: 24 Jan 2011
Age: 56
Gender: Female
Posts: 2,304
Location: SE Pennsylvania

27 Jun 2011, 10:14 am

vermontsavant wrote:
well the good news is that my post is still up and has not been moderated and my account is still active but no one has replied yet



Link?



ci
Veteran
Veteran

User avatar

Joined: 28 Nov 2010
Age: 43
Gender: Male
Posts: 3,546
Location: Humboldt County, California

27 Jun 2011, 10:58 am

Are you speaking about the Autism Speaks forum post or this one? Context..


_________________
The peer politics creating intolerance toward compassion is coming to an end. Pity accusations, indifferent advocacy against isolation awareness and for pride in an image of autism is injustice. http://www.autismselfadvocacynetwork.com


vermontsavant
Veteran
Veteran

Joined: 7 Dec 2010
Gender: Male
Posts: 6,110
Location: Left WP forever

27 Jun 2011, 4:02 pm

draelynn wrote:
vermontsavant wrote:
well the good news is that my post is still up and has not been moderated and my account is still active but no one has replied yet



Link?
autism speaks social network, my life with autism group forum


_________________
Forever gone
Sorry I ever joined