I responded to this thread three years ago, but recently took the ADOS again for my re-eval. I didn't get a score this time (which I find slightly frustrating) but I'll share what was written:
Quote:
ADOS -2 - StarTrekker completed Module 4 of the ADOS at XXX on April 15, 2019. S.H served
as examiner. She obtained a score within the range of Autism, moderate symptoms.
StarTrekker presented as a very articulate, bright, polite young woman who was really interesting to talk with
on a variety of topics (e.g., Star Trek, dinosaurs, politics/ethics). Although some of the activities
appeared to be challenging and possibly anxiety-producing, StarTrekker participated in every activity
presented to her and appeared to be doing her best to respond completely and thoroughly.
StarTrekker communicated in complex sentences, using an advanced and, at times, precise vocabulary. She rarely
looked directly at the examiner and rarely used gestures to describe or add emphasis to her
verbalizations. She spoke in a quiet voice, with clear emotional markers for enthusiasm when
discussing her favorite topics, however, her voice tone didn't shift noticeably to communicate other
affective states. She took her time formulating her thoughts before speaking and her thoughtful,
deliberative style conveyed a genuine attempt to respond honestly to each question she was asked.
Most of the time, StarTrekker tended to hold her body very still, which appeared to take some effort; and
when strong interests arose in conversation, she moved her whole body back and forth excitedly, while
moving her arms and hands in bursts of excitement and apparent joy.
StarTrekker responded appropriately to all of the initiations by the examiner, and worked hard to keep
conversations flowing; however, this was markedly easier for her when the topics were of strong
interest to her. StarTrekker frequently made interesting and insightful comments, demonstrating a clear
personal point of view on several issues (e.g., importance of compassion/truth telling). Her knowledge
on several topics (e.g., birds, dinosaurs) was quite impressive and she explained complex concepts in
clear, well-organized ways. She appeared to be concentrating quite hard in order to listen to the
examiner and showed resilience by participating so actively in this intensive 1:1 interaction.
Although StarTrekker was very effective in communicating factual information or describing the sequence of
events in a story, she presented with significant difficulty in a task that requires generating an
imaginative story with 5 unrelated objects. She accepted help with the task and once each object was
given a role in the story, she could collaborate on a narrative. This difficulty shifting her idea about an
object from its "real-life" function to an imaginary function was notable and reflected some of her
challenges as a highly intellectually competent adult trying to navigate the less rational, "gray areas" of
social-emotional thinking. Overall, StarTrekker showed good cognitive understanding of several
socioemotional concepts, but reported difficulty putting them into practice consistently and fluidly in a
reciprocal way. She has a strong sense of personal responsibility and has clearly been quite self reliant throughout her life. At times, she is misunderstood by others, but she has developed a kind, empathic way of accepting that other people may not have the experience to understand her. She reported several examples of how she uses reasoning and logic to figure out social situations. StarTrekker presented in a manner consistent with Asperger Syndrome. Although no longer an official clinical
diagnosis, there may be much to be learned about StarTrekker’s style by exploring the literature developed
for and by people with Asperger Syndrome (now considered part of “Autism Spectrum Disorder”).
_________________
"Survival is insufficient" - Seven of Nine
Diagnosed with ASD level 1 on the 10th of April, 2014
Rediagnosed with ASD level 2 on the 4th of May, 2019
Thanks to Olympiadis for my fantastic avatar!