Joe90 wrote:
I think it stems back to childhood when I first got diagnosed (unlike other females on the spectrum
). It was all completely out of my control and it felt like everybody had to be told about my diagnosis. So now I am my own person, I now have the choice to tell or not to tell.
Yes. Something I became very conscious about as my AS son got older and able to self-advocate, was recognizing that he has the right to control his “image” by deciding whether and to whom to disclose his diagnosis. Which I’m really glad I did because by 14 or 15, he started to recognize that people would treat him differently once they found out; even if it was in a benevolent sort of way, it still bothered him when they would start speaking slower or assuming he is less capable. He has chosen to only disclose it to a very small handful of people. I also had to be mindful about teaching my other children that it is
his right to disclose it, not theirs, unless he gives permission.
For myself, so far only 3 people know: my husband, my AS son, and a coworker that I am close with. I’m not sure when to tell my other children, but I suppose it will come up at some point. There is really no point in telling my other family members because I am not confident that they will be supportive.