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Fenn
Veteran
Veteran

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Joined: 1 Sep 2014
Gender: Male
Posts: 3,020
Location: Pennsylvania

08 Dec 2024, 1:01 pm

Devoted wrote:
Fenn, I wish I could help with your first post. :( We share similar parenting worries ("Am I doing enough?" "Am I doing too much?" "What the heck should I even *be* doing???").

For the following, though, I have an idea:

Fenn wrote:
To add insult to injury the HOA (Home Owners Association) just announced much stricter parking regulations. If my DS (Dear Son) had a full time job and had moved out the two car limit wouldn’t be a problem.

[....]

P.S. I probably should have mentioned my son is ADHD+Autism (diagnosed) and so am I


Contact your HOA and ask for a disability variance. The actual disability isn't any of their business, but you should be able to say something to the effect of, "I, Fenn, residing at [wherever-you-live], request a variance/exception to the newly adopted 2-vehicle limit. My household contains individuals with medically diagnosed disabilities, requiring the on-property use and storage of 3 working vehicles. Thank you for your consideration."

What are your thoughts...? :)


Thanks for the reply. Worthwhile trying. Irritated thing: there really is no parking problem on my block: evidenced by several empty parking spaces every evening when I go for a walk. Apparently other areas it is a real problem. We are in the process of trying to rent garage space.

Had our weekly meeting. DS is looking into an adhd executive function coach. He continues to work part time at Amazon. Has been applying to jobs on LinkedIn and did a second visit to the Zoo (he would love to work there, but like Broadway or Hollywood everybody wants to work there so they can afford to be picky.). First visit I had to go with him because he kept balking and anxiety and EF (Executive Function) issues would stop him. Second visit he drove his brother and actually talked to people about working there. They have a union. They choose union members first. You must have experience to become a union member. Catch 22 (need to have experience to become a union member; need to be a member to get experience). They have volunteer opportunities. (Catch 22 the volunteer positions do not work with the animals - they are people facing - he has autism and social anxiety). He is taking horseback riding lessons (no catch 22: you pay you get to work with real live animals - horses are animals). Next week he will visit Del Val (a local college with a Zoo Animal Science program that has internships with the zoo) just to show up and walk around campus. One step at a time. He continues to work on the “What Color Is My Parachute” workbook and the DBT workbook. Also adding the Project Management for Dummies to help with EF and Time Management (time less than one day or a few hours )/Project Management (things that take more than one day or more than 3 hours)


_________________
ADHD-I(diagnosed) ASD-HF(diagnosed)
RDOS scores - Aspie score 131/200 - neurotypical score 69/200 - very likely Aspie


Devoted
Yellow-bellied Woodpecker
Yellow-bellied Woodpecker

Joined: 9 Aug 2024
Age: 45
Gender: Female
Posts: 73

09 Dec 2024, 5:54 pm

Fenn wrote:
Irritated thing: there really is no parking problem on my block: evidenced by several empty parking spaces every evening when I go for a walk. Apparently other areas it is a real problem. We are in the process of trying to rent garage space.


Ugh. I hate it when HOAs 'fix' things that aren't broken. :roll:

Fenn wrote:
[...] the Zoo (he would love to work there, but like Broadway or Hollywood everybody wants to work there so they can afford to be picky.). [....] He is taking horseback riding lessons (no catch 22: you pay you get to work with real live animals - horses are animals).


Ages ago, I worked for a small-animal veterinarian.... Does the zoo have any cleaning/maintenance/landscaping jobs he might like to do? Porters/painters/gardeners typically have infrequent customer interactions, especially if they work outside normal operating hours. Might be a way to get his foot in the door?

Fenn wrote:
Next week he will visit Del Val (a local college with a Zoo Animal Science program that has internships with the zoo) just to show up and walk around campus. One step at a time.


This is fantastic!

I don't think there would be anything wrong with just showing up and walking around, getting familiar with the place. It reminds me of when I attended university, I frequently sat in on large lectures that I wasn't signed up for, to fill time between classes and see if I'd be interested in the subject before committing. I never took exams or did assignments, and no one ever mentioned anything to me about my attendance. This was over 25 years ago at a large public university, so it's possible things have changed, but it might be worth trying.



deedi
Emu Egg
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Joined: 1 Feb 2025
Age: 55
Gender: Female
Posts: 2
Location: Hudson Valley NY

01 Feb 2025, 7:46 pm

Trying to navigate helping my 26 yo aspie daughter launch too, or at least be able to help me manage our home financially and physically. We now have to get by on just my income, as her father left the picture. I also think it would help her depression and make her feel better about herself to have a job that paid well and to be able to drive, or even overcome her fears to Uber. Or to be able to do things like help cook and clean.

The other related difficulty is the judgement I am receiving from my family. They don’t understand the difficulties involved with this and feel I am just an “enabler” and that my daughter and I are “codependent.” It is so hurtful and isolating, but I don’t know how to make them understand. The fact that she has learned to present as very neurotypical makes it harder for them to continue to believe her diagnosis.

There aren’t any supports in my area unless my daughter goes on disability, which would then prohibit her from getting a job that makes better money. And she really doesn’t want to go that route. We haven’t had much luck with therapists, but I continue to look for a good one. At this point, I just feel utterly exhausted, dejected, and alone.



ShwaggyD
Sea Gull
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Joined: 4 Sep 2024
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01 Feb 2025, 11:06 pm

Azzymom wrote:
This is my first post. I have an adult son with Asperger's. Unfortunately, throughout his childhood his condition was misdiagnosed as ADHD, OCD, etc. We have felt pretty let down by the mental/behavioral health community including psychiatrists, psychologists and counselors. Now, at 27 years old, he seems completely lost. He plays video games all of the time (which he has done for years) and has become even more socially isolated. He has both anxiety and depression. He is still living with us and we are at a loss as to how to get him to be independent in the traditional ways (e.g., getting a job, living on his own). He has not been "officially" diagnosed with Asperger's, but we all (myself, my husband and my son) know that that is what it is. I could use advice and wisdom from any other parents who have or are struggling with a similar situation. Should I try to get him officially diagnosed (does that matter at his age)? I have tried to identify someone who specifically works with Asperger's, but have found that most therapists who say they do don't really do anything different. Maybe I need to go through an Autism-specific center or something...? I am also anticipating significant push-back from him given that he has been to a variety of counselors and not experienced any real results.



There is no right or wrong decision when it comes to whether or not to pursue an autism diagnosis as each situation is unique even if they seem similar. The typical reason for someone getting diagnosed seems to be mainly for access to various assistance systems and programs; the other reason is clarity. Knowing the 'truth' about what is going on inside our minds and bodies is extremely important to most of us aspies. It can be perhaps just as important, if not more so, for the parents like you who have the great honor of having us as your child. There are also many aspies like myself who absolutely have no desire, want, or need for a diagnosis. We seem to be mostly the older ones who were able to adapt enough early enough to at least survive with minimal if any help living in the NT world with its expectations, demands, chaos, and noise.

It is important to know and understand that there is no medical/physical test to see if someone is autistic; it is all done subjectively through observation, interviews, psychology tests, and the diagnostician. There are some neurodivergence conditions that can be detected in brain scans, not autism however. This means if you do decide to pursue a diagnosis it is supremely important that you find the person whose opinion you feel you can trust, if at all possible. A bad diagnosis can potentially cause the situation to get worse in many different ways, as you yourself know from your own experiences. Unfortunately the good ones are backlogged meaning waitlists months long, and can be very expensive I hear. If you have assistance from somewhere then you are obligated to use whoever they approve of. These may very well be highly qualified, but because of the situation the waitlist time can be a very long time due to supply and demand.

No matter what you decide in the end, there is one thing that you can do that can help you and your son. Communicate with him as a person, no matter how difficult or pointless it might seem at times. We are usually listening, especially if we sense that you are talking from a place of truth. Try including him in the conversation as much as you can, allow him to have some sort of say in the decisions when possible. Remember, the autistic brain is literally wired differently than the NT brain; there are typically many more neurons and neural pathways causing chaos and beauty in our overactive minds.

I have been reading different articles recently that show how many researchers are starting to look at autism as a whole body condition, which makes sense. There has been cases I read about where the child's moderate to severe autistic symptoms have been eased to varying degrees through improving the health of their gastrointestinal system (there gut health). The gut produces several neurotransmitters, including serotonin, dopamine, norepinephrine, and gamma-aminobutyric acid (GABA). These neurotransmitters are produced by the gut microbiota, which are bacteria that live in the gut. These affect us and help manifest emotions such depression and anxiety.


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If you're always trying to be normal, you will never know how amazing you can be.

Maya Angelou


Devoted
Yellow-bellied Woodpecker
Yellow-bellied Woodpecker

Joined: 9 Aug 2024
Age: 45
Gender: Female
Posts: 73

02 Feb 2025, 2:33 pm

deedi wrote:
Trying to navigate helping my 26 yo aspie daughter launch too, or at least be able to help me manage our home financially and physically. We now have to get by on just my income, as her father left the picture. I also think it would help her depression and make her feel better about herself to have a job that paid well and to be able to drive, or even overcome her fears to Uber. Or to be able to do things like help cook and clean.


Hugs, mama. <3

Regarding the bolded/underlined sentence above, is her inability to help around the house a depression issue, a distracted-and-needs-reminders issue, or an educational/hasn't-learned-yet issue? Or something else...?

deedi wrote:
The other related difficulty is the judgement I am receiving from my family. They don’t understand the difficulties involved with this and feel I am just an “enabler” and that my daughter and I are “codependent.” It is so hurtful and isolating, but I don’t know how to make them understand. The fact that she has learned to present as very neurotypical makes it harder for them to continue to believe her diagnosis.


You've come to the right place -- We *all* understand you here. :heart:

It's really really tough to deal with family, when they either can't understand, or don't want to. Despite having several autistic grandkids for 20 years, my folks *still* think that my Level-3 son "just doesn't want to communicate; he CAN, he just doesn't WANT to talk." :roll: Both sets of my kids' grandparents are in denial that my Level-1s and Level-2s are even autistic. And I'm exhausted, reminding them of the various challenges we have (and that's even after my mom used to visit us for 8 hours a day, every weekday, for a few years after she retired -- and it STILL didn't completely sink in). It sucks, for sure.

deedi wrote:
There aren’t any supports in my area unless my daughter goes on disability, which would then prohibit her from getting a job that makes better money. And she really doesn’t want to go that route. We haven’t had much luck with therapists, but I continue to look for a good one. At this point, I just feel utterly exhausted, dejected, and alone.


Y'all have probably already thought of this... Does she have a strong interest/hobby that can be turned into a way to earn money, even if it's not much at first?