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MatchboxVagabond
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25 Jul 2024, 11:34 am

Mountain Goat wrote:
MatchboxVagabond wrote:
I'm sure some people are, there's just too many people on the planet for it to be zero. But, I think the more common issue is with people being misdiagnosed either as autistic when it's something else or as something else when they're autistic.

I keep hearing people swearing up and down that other people are faking it, but in all honesty, I just don't see what's in it for people to fake this diagnosis in particular when there are easier to fake diagnoses that come with a bunch of the same "perks" of being autistic without the same level of stigma. If somebody just wants accommodations, anxiety and depression are a lot easier to fake.


Actually, autism itself is more common than people think. I heard a Ted Talk speach given by one of the worlds leading psycologists. (A Doctor or Psycology) and he travelled the world doing research and found some interesting results. He would gather large groups of at least 1000 people (Usually 1200 people or more) from every country he travelled to and did not tell them what he was assessing them for. He used local psycologists to do the assessments where needed as one would need to know the culteral traits to work out what was normal and what was a trait. Anyone who knew what the assessment was for (E.g. Someone who had sat the assessment before was told not to tell anyone else, as he said this beforehand that if anyone knows what it is, to come to him and let him know without telling anyone else what it is, and he included them in the results to show they were or were not on the spectrum, but he didn't need them to be assessed again if that makes sense?)

What he found from the end results was fascinating as which ever country and people group he assessed, he found the results averaged at 6% of the population which were on the spectrum, and most who were didn't know it.
He said where the results varies from the 6%, they didn't vary much in that some areas had 5.9% and others 6.1% and he found this fascinating.
He said what he was doing had never been done before, as the approach was usually that docots sent patients to be assessed who either they thought needed an assessment, or the patients thought they needed to be assessed. No ones health system at the time just blanket tested everyone, and he found that the countries in the world with the best healthcare systems rarely ever went over 2.5% of their populations being on the spectrum and the countries with the poorest mental healthcare systems had as low as 1.5% or less of their populations diagnosed as being on the spectrum, which gave concern because it means so many people wefe being missed.

I'm not really surprised, I do think that there are things that could be done. In my case, I don't think I would have really missed out on much in terms of quality of life if I hadn't been screened for it until I started to have serious psychological issues in middle school. Up until then, I was doing OK, I didn't really have any friends and did have some issues managing the work load at school, but nothing had happened at that point that was so bad that a time machine would have made me want to go back and address it then as I did get some interventions for things like speech therapy and reading comprehension that seemed to have worked.

IMHO, the place where they really need to spend the money is screening pretty much every teen and tween that goes in for psychological testing for related traits, especially those that have more of an inward focus. The usual tools seem to work OK for the outwardly visible traits, but a bunch of folks get missed when the traits are focused inwardly.



Mountain Goat
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25 Jul 2024, 3:24 pm

Yes, that is it. Many people know that they are struggling but are not (To others) visually autistic because from an early age they have learned to mask their traits to avoid getting picked on by their teachers and other kids. (Mostly teachers believe it or not, not to say they would do the same if they knew the individual was autistic as they would then ease off).



MatchboxVagabond
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26 Jul 2024, 5:18 pm

Mountain Goat wrote:
Yes, that is it. Many people know that they are struggling but are not (To others) visually autistic because from an early age they have learned to mask their traits to avoid getting picked on by their teachers and other kids. (Mostly teachers believe it or not, not to say they would do the same if they knew the individual was autistic as they would then ease off).

Yep and I think that while it was fine to fixate on the outward signs and traits when they were just screening small children for developmental disorders, when you start dealing with older children and teens there really should have been a shift towards permitted diagnose of folks with more inward traits and symptoms using language. The older non-verbal folks would still be picked up and probably earlier anyways, but it would mean that the folks that don't make it obvious would also get support.



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01 Aug 2024, 12:02 am

Andrew Ditch comes to mind.

He does have severe mental health issues but it's not autism and doctors have confirmed that. He deleted his entire channel.


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01 Aug 2024, 9:04 am

Oh yeah, I'm definitely familiar with Andrew Ditch. I can't figure out whether he's a scammer and a really bad guy or if he's just needing help really bad and can't get it.



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01 Aug 2024, 3:37 pm

TikvaBall wrote:
Oh yeah, I'm definitely familiar with Andrew Ditch. I can't figure out whether he's a scammer and a really bad guy or if he's just needing help really bad and can't get it.



Scammer?

He just is a man who is mentally ill and is a poster child for why our mental health system is so bad. He needs to be institutionalized but we don't do that anymore. We don't lock people up for being mentally ill unless they commit a crime or pose a danger to the public.

He is currently locked up in Cleveland jail. Police there take no BS. He got locked up for misuse of 911 and disrupting traffic by being in the middle of the road. They looked into his history and arrested him.

Source: kiwi farms and reddit. Screenshots has been provided as proof.


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carlos55
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02 Aug 2024, 3:57 am

This subject is very much linked to the previous thread about self diagnosis with no attempt or intention to get an official diagnosis.


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MatchboxVagabond
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02 Aug 2024, 9:42 am

carlos55 wrote:
This subject is very much linked to the previous thread about self diagnosis with no attempt or intention to get an official diagnosis.

I'm what respect? It's extremely well established that there aren't resources to get reliable evaluations done in many areas, how do we really know if somebody is choosing to skip an evaluation that is available,? And even if you do, the reliability is often questionable.

Whether they're faking, or not, the work involved in making the assertion is more work than doing a simple Google, not finding options for being diagnosed and not bothering to look further into it. It's not like a formal diagnosis brings much with it to those not diagnosed in childhood anyways. Not to mention what a complicated mess it can be just to get those appointments.



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02 Aug 2024, 10:23 am

I'd been trying to get an assessment ever since 2011, but couldn't get it until 2024. I can absolutely see where someone could just say heck this noise and just self diagnose.



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02 Aug 2024, 1:54 pm

TikvaBall wrote:
I'd been trying to get an assessment ever since 2011, but couldn't get it until 2024. I can absolutely see where someone could just say heck this noise and just self diagnose.

Kudos to you for sticking it out for 13 years.

That is why these ideas that people are faking autism and and self diagnosers are lazy excuse making attention seekers is so frustrating.


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TikvaBall
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02 Aug 2024, 2:13 pm

The only way I was able to get the assessment is because there's an organization in my state that helps disabled people go to school and get the equipment they need to go to work. I'm back in college now, so they agreed to do it. I would still be self diagnosed and feeling like crap just because I couldn't get people to legit believe me because I couldn't go to the psychiatrist, only a therapist.



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02 Aug 2024, 2:58 pm

I can only talk from UK where private assessment is around £2100 or $2600.

example:

https://www.acorn-autism.co.uk/fees-and-funding

Its a lot of money if your buying a holiday and your in a low income job or unemployed. But not a lot if your mature age & minimally disabled & claiming its central to your identity.

I can understand difficulties for the young (under 21) , severely disabled (usually diagnosed in childhood) & those with limited control over their lives with over controlling parents no access to bank account etc..

I also understand if you just happy to be different & don't need a label

But many of these tic toc`s are older with mild symptoms, They do want the label, they could get hold of $2600 if their lives depended on it.

I remember watching a show about a trans person wanting free surgery on the NHS, he said he was suicidal because of it but capable of working. I remember thinking you would rather cut off your genitals or kill yourself than work a few shifts pumping gas or maxing out a credit card or something.

If your old enough & the money is not too much and its life or death you`ll get the money somehow.

Obviously everyone has their own story so just thinking out loud, your welcome to shout me down as someone missing something here


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MatchboxVagabond
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02 Aug 2024, 8:02 pm

carlos55 wrote:
I can only talk from UK where private assessment is around £2100 or $2600.

example:

https://www.acorn-autism.co.uk/fees-and-funding

Its a lot of money if your buying a holiday and your in a low income job or unemployed. But not a lot if your mature age & minimally disabled & claiming its central to your identity.

I can understand difficulties for the young (under 21) , severely disabled (usually diagnosed in childhood) & those with limited control over their lives with over controlling parents no access to bank account etc..

I also understand if you just happy to be different & don't need a label

But many of these tic toc`s are older with mild symptoms, They do want the label, they could get hold of $2600 if their lives depended on it.

I remember watching a show about a trans person wanting free surgery on the NHS, he said he was suicidal because of it but capable of working. I remember thinking you would rather cut off your genitals or kill yourself than work a few shifts pumping gas or maxing out a credit card or something.

If your old enough & the money is not too much and its life or death you`ll get the money somehow.

Obviously everyone has their own story so just thinking out loud, your welcome to shout me down as someone missing something here

This is kind of why people get upset about folks making assumptions. What is your basis for assuming that they've got minimal disability? Granted I don't know which ones you're watching, but it kind of dismissive to suggest that edited videos give a clear sense of their level of disability. Most autistic people just are not disabled in the sort of ways you're implying.

At least in the US, if you're under 18, it really should have been caught by the schools. Even in my case where there were no available diagnoses at the time, they still picked up the speech impediment and reading issues for services. From what I understand, the number of missed diagnoses have been shrinking in recent years.



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03 Aug 2024, 7:43 am

Unfortunately my school didn't catch anything. My family didn't realize it because I'm blind, so they just thought everything was going on because of that. The people at the school for the blind should have known better, though, especially that blasted guidance counselor who bullied me and straight up abused my cousin. Sorry for the overshare.