Autism Speaks Canada Closing Down!
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Autism Speaks Shrinks Its Footprint
Quote:
The nation’s largest autism advocacy group is shuttering part of its organization.
Autism Speaks will close Autism Speaks Canada at the end of this month, the nonprofit said.
Autism Speaks officials indicated that no changes are being made in the U.S. with regard to the nonprofit’s offices or scope. Further, the organization said it plans to “continue fostering key collaborations with Canadian institutions and other global partners.”
Autism Speaks Canada was created in 2006, not long after the organization’s inception in the U.S. in 2005. Financial reports to the Canada Revenue Agency indicate that the group had over $2.8 million in revenue in 2023, down from a high of $5.55 million in 2020.
Nonetheless, Autism Speaks officials stressed that closing the Canadian entity was not a financial decision.
The decision to close Autism Speaks Canada was made based on a number of strategic factors and partner conversations,” Autism Speaks said in a statement to Disability Scoop. “Our belief is that the progress our organization has made over the last two decades, combined with the strong foundation that has been established by our network of partners in advocacy, research and supports for autistic people, has well positioned Canadian institutions to continue this work across the country. We are proud of what we have achieved together and we look forward to partnering with them in the future as we all continue to build a better world for autistic people, their families and friends.”
The nonprofit pointed to its work advocating for the National Autism Strategy in Canada’s Parliament in 2024 and establishing research and scientific collaborations with DNAstack, McGill University and The Hospital for Sick Children, known as SickKids, in Toronto.
In addition, Autism Speaks Canada offered support to families through its Autism Response Team and My Autism Guide and provided nearly $5 million in community grants, the organization said.
Zoe Gross, director of advocacy at the Autistic Self Advocacy Network, said she hopes that Autism Speaks leaving Canada will lead to less support in that country for interventions like applied behavior analysis, which some people on the spectrum have reported negative experiences with. She also is optimistic that it will mean that “autistic advocates working towards inclusion and meaningful research can get more traction.”
“I don’t think we can assume that similar changes are coming in the U.S.,” Gross said.
Regardless of the reasons for Autism Speaks’ departure from Canada, Tiffany Hammond, an author and speaker from Texas who has autism and is the parent of children on the spectrum, said the move begs the question of what will happen to the families the organization is serving.
“Whatever I feel about an organization, I do know someone is being served,” Hammond wrote on Substack. “They might not be served in the way that they deserve, but they are receiving something they otherwise would not have if not for that organization.”
Hammond noted that despite her own qualms with Autism Speaks, the organization provided her son with his first iPad and her family has found community and valuable resources at the organization’s annual walks.
To date, Autism Speaks said that no other organization has agreed to take over its Autism Response Team in Canada, which provides information and referrals to support services.
Autism Speaks will close Autism Speaks Canada at the end of this month, the nonprofit said.
Autism Speaks officials indicated that no changes are being made in the U.S. with regard to the nonprofit’s offices or scope. Further, the organization said it plans to “continue fostering key collaborations with Canadian institutions and other global partners.”
Autism Speaks Canada was created in 2006, not long after the organization’s inception in the U.S. in 2005. Financial reports to the Canada Revenue Agency indicate that the group had over $2.8 million in revenue in 2023, down from a high of $5.55 million in 2020.
Nonetheless, Autism Speaks officials stressed that closing the Canadian entity was not a financial decision.
The decision to close Autism Speaks Canada was made based on a number of strategic factors and partner conversations,” Autism Speaks said in a statement to Disability Scoop. “Our belief is that the progress our organization has made over the last two decades, combined with the strong foundation that has been established by our network of partners in advocacy, research and supports for autistic people, has well positioned Canadian institutions to continue this work across the country. We are proud of what we have achieved together and we look forward to partnering with them in the future as we all continue to build a better world for autistic people, their families and friends.”
The nonprofit pointed to its work advocating for the National Autism Strategy in Canada’s Parliament in 2024 and establishing research and scientific collaborations with DNAstack, McGill University and The Hospital for Sick Children, known as SickKids, in Toronto.
In addition, Autism Speaks Canada offered support to families through its Autism Response Team and My Autism Guide and provided nearly $5 million in community grants, the organization said.
Zoe Gross, director of advocacy at the Autistic Self Advocacy Network, said she hopes that Autism Speaks leaving Canada will lead to less support in that country for interventions like applied behavior analysis, which some people on the spectrum have reported negative experiences with. She also is optimistic that it will mean that “autistic advocates working towards inclusion and meaningful research can get more traction.”
“I don’t think we can assume that similar changes are coming in the U.S.,” Gross said.
Regardless of the reasons for Autism Speaks’ departure from Canada, Tiffany Hammond, an author and speaker from Texas who has autism and is the parent of children on the spectrum, said the move begs the question of what will happen to the families the organization is serving.
“Whatever I feel about an organization, I do know someone is being served,” Hammond wrote on Substack. “They might not be served in the way that they deserve, but they are receiving something they otherwise would not have if not for that organization.”
Hammond noted that despite her own qualms with Autism Speaks, the organization provided her son with his first iPad and her family has found community and valuable resources at the organization’s annual walks.
To date, Autism Speaks said that no other organization has agreed to take over its Autism Response Team in Canada, which provides information and referrals to support services.
_________________
Professionally Identified and joined WP August 26, 2013
DSM 5: Autism Spectrum Disorder, DSM IV: Aspergers Moderate Severity
“My autism is not a superpower. It also isn’t some kind of god-forsaken, endless fountain of suffering inflicted on my family. It’s just part of who I am as a person”. - Sara Luterman
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Canadian Freedom Lover wrote:
Any idea why Autism Speaks Canada is closing up shop?
I understand there was/is a lot of hatred towards this organization, can someone tell me why that is?
I understand there was/is a lot of hatred towards this organization, can someone tell me why that is?
Mostly it is because Autism Speaks put up massive resistance to autistic persons being allowed to offer input on policymaking decisions.
I liken it to the protests that happened when Mayor Tom Bradley appointed an able-bodied person to head up the Mayor's Office on Disability in Los Angeles back in 1988.
I covered the protest for local news, and the complaints were very similar in nature.
https://www.youtube.com/watch?v=M03dxugyO8c
https://www.latimes.com/archives/la-xpm ... tory.htmlv
lostonearth35 wrote:
Autism $peaks is a hate group run by NTs that demonizes and dehumanizes autistic children in order to get money from their witless parents while ignoring adults on the spectrum. There is a PSA by Autism $peaks called "I Am Autism". If you can find it on Google, it might help you to understand.
I think it may be this:
https://www.youtube.com/watch?v=9UgLnWJFGHQ
But I seem to remember an even worse version that didn't have the contrived upbeat response from families at the end of it. So maybe they created a watered-down version in the light of the outcry.
Eventually they issued a retraction:
https://www.autismspeaks.org/i-am-autism
Don't know whether that's a genuine statement of the truth or not. I note they didn't put the video itself on that page. No doubt they don't want anybody to see it any more.
Having no direct experience of Autism Speaks I don't have a personal opinion on whether they're a force for good or harm. For me, the video is rather off-putting - the brainwashing tricks alone were enough to make me reach for the sick bucket. Maybe they're different these days, maybe not. I remain suspicious of them.
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