Maudsley

Post Reply New Topic

Has anyone in the UK had experience with this place or have you been referred?

If you prefer to PM me, please do so.

i have, they gave me a brief assessment over 2 separate days.. diagnosed me with OCD, Agoraphobia & Generalised anxiety disorder.. said something like "borderline ADHD & Asperger's" but not enough childhood evidence..

que?

Last edited by quantum42 on 12 Jan 2010, 8:27 pm, edited 1 time in total.

Did they explain their verdicts properly or provide a detailed report?

I think I was diagnosed there when I was little... I was diagnosed after a few appointments as autism.... And it started from when I was at school and my behaviour was unusual and I did try to electrocute myself a few times which it seemed like fun to put things in the plug like it was a puzzle to me. unluckily the plug was off.

After having to be diagnosed, I got transferred to special ed, but the fact that I wanted to fit in with everyone else, I just can't, because I didn't have the ability to... But I did make friends with the kids, they were far more friendly compared to the NT's, I guess this had changed my life forever...

they assessed me first for AS & provided a report explaining to some extent their decision & containing the aforementioned diagnoses..
then on a separate occasion one doctor assessed for ADHD & if i recall correctly they provided a report also, though i only remember that this contained basic results for intelligence tests they carried out.. not sure what else if anything.. annoyingly the second doctor(who assessed for ADHD) asked after a short while if i had been assessed for AS.. i couldn't get my local psych to even read the reports, much less apply for funding for a more in-depth assessment.. good luck if you're going there.. can only advise having as much information on you as a child as possible.. unless person being assessed is a child.. anyways hope this helps.
fudo

que?

Last edited by quantum42 on 12 Jan 2010, 8:28 pm, edited 1 time in total.

my friend was assessed there and he got his diagnosis and said they were very nice. If you are wanting an AS asessment the main thing is to read the diagnostic test first
http://www.udel.edu/bkirby/asperger/asp ... twood.html

also read some asperger books and make notes on the things that you do, I found a lot of the questions were phrazed in a very NT way such as 'does your interest have more rote than meaning' which I did not understand, my psych rephrazed that as 'do you like to buy complete sets of books which you wont actually read but want the whole set' which of course I said yes to , but I would not have guessed that is what the 'rote not meaning' meant. So check what they mean by the questions and give examples that you have noted from books. For example when I read about AS people often not being invited to parties as a kid I remembered I had never been to a party so I could say that to the psych, where as I would not have thought of that myself as it is all normal to me.

I think often we do not divluge the correct info for the diagnosis as we do not know what is significant and what is not and with our theory of mind probelms we find it hard to know what they do not know and need to be told.

I was diagnosed there, specifically by behavioural genetics ASD and ADHD team. I wasn't impressed to be honest, but then I need more than diagnosis. They were not interested in helping me with the problems that I went there for, but if you only need diagnosis then that fine. Bear in mind it takes a long time to get seen, and you will need relatives who are interviewed by nurses.

It is a research program disguised as a care program. Three is three stages evaluation, neuropsychology testing and MRI plus a blood test. But in practice they are not even connected or sequential with regards to diagnosis. It is the first one were you will receive your diagnosis. You will be pressured to sign consent forms to use your data at nearly every stage. I am pro-research; however in a care program I expect them to do something for me. I would hold off signing anything until you are absolutely sure. You don’t have to sign it whilst they are leaning over you shoulder, take the form home.

I would avoid a guy called Dr. Robertson, that guy is an arse.

“Treatment”, should you wish to take it up, is a shoddy CBT program with no real objective. There is a really good CBT program at the Maudsley for social anxiety. I went to a talk with the guy that runs it. He stressed the importance of recording success rates, transparency, and objectivity in CBT. Let’s just say the ASD scheme didn’t match up to that benchmark. I am also knowledgeable because I have done CBT on myself, you don't need to wait to be seen by an institution.

Last edited by 0_equals_true on 11 Jan 2010, 6:17 am, edited 1 time in total.

There were major factual inaccuracies in the first report, I got it redone.

The report is long but they repeat themselves at lot.

In the nurses' report they implied I reacted badly to a vaccine, it turns out it was totally exaggerated based on a leading question posed to my parents. But overly the nurses were better writing reports than the physicians.

I went to the Maudsley about 2-3 years ago when I was 19 (sorry can't count!). Unfortunately the professor who assessed me has now left which is a real shame because he was REALLY good. The bloke who took over seemed to know what he was doing, just spoke broken English (irritating...). The written report was very accurate although had a few spelling mistakes (which I dutifully corrected and sent back!). I was diagnosed with Aspergers, Tourette syndrome and OCD. Thankfully the OCD has pretty much cleared up since...

The Maudsley are VERY good as far as I am concerned, it is up to the local authority whether they do anything about it or not. Mine didn't pay ANY attention to the Maudsley report.

Procrastination is the problem