Aspergers and chronic fatigue syndrome

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Hi everyone,

Just interested to hear if anyone has been struggling with these two and how it effects you daily. I am going to be treated for the chronic fatigue by a specialist GP in nutrition and vitamin/mineral deficiencies to help my immune system.

I am on a disability payment and have days of very little functionality. I have found it to be quite difficult as the mind wants to go but the body doesn't

I have a feeling that years of living in a very stressful way has brought me to my knees, physically. I was only dx with AS a bout 4 months ago. I am interested in the correlation between stress/anxiety, constant viral/bacterial infections and Aspergers......

Any thoughts?

Thanks,

Mics

I don't have CFS, but I wanted to add something. I am AS and I have a condition called Addison's Disease/Adrenal insufficiency and one of the symptoms is lethargy/chronic fatigue. So I do experience a lot of fatigue, just not from the same condition. It's really rare, but I'll add a link so you can see if you match any of the symptoms as it is underdiagnosed. There is also 'adrenal fatigue' which isn't a recognized medical condition, but you can find info out there for it and some docs (usually alternative) treat for.

http://en.wikipedia.org/wiki/Adrenal_insufficiency

I don't have a diagnosis of Chronic Fatigue Syndrome, but I do feel very lethargic.

I don't have a diagnosis of Chronic Fatigue Syndrome, but I do feel very lethargic.

I have FMS which I'm told is the same as CFS. So yes I do have it. My doctors told me when I was diagnosed that I had far too much stress for an extended period of time that made the fibromyalgia and the chronic fatique rear its ugly head. I already have another disease that is genetically connected to the FMS. It has to do with the brain chemistry. I have extreme nerve pain from it so maybe there is. AS/HFA is neurological. I want to go to the university library and see if anyone is researching it because I am also curious to know if it is all connected. Thank You for creating this post.

Taupey

Thanks so much everyone........Hopefully this specialist GP will be able to point me in the right direction treatment wise. You are all brave people to deal with such fatigue, for whatever reason. It can be VERY debilitating, can it not?

The hard time for me is pin pointing exactly where it comes from and my GP is hoping that this other GP can help me. All other doctors in the past have just put it down to mental health(anxiety, depression and so on) but my doc is convinced that it is not "all in my head") and that there is something physical going on.

I am in chronic pain, recurrent infections, and CANNOT exercise. As soon as I start to exercise I get shingles, or sinus infection and sleep for days. It makes it very hard as I know how important exercise is. I have been tested for lupus and RA.......as well as a number of other tests. My ESR and CRP has been elevated at times, but no-one could really explain why.

I am on HRT(perimenopause started at 31 for me) and have an enlarged thyroid but thyroid antibodies within normal range. I do know there is a correlation between autoimmune disruption and early menopause........but we shall see.

Thanks so much for sharing guys,

Mics

I have had CFS and fibromyalgia for over 25 years and it has completely devastated my life. I'm too exhausted to do anything. I don't have a job, can't support myself, can't raise a family, etc. It has gotten progressively worse over the years.

If you're wondering whether you might have it, I think the gold standard in Dx-ing CFS is "post exertional malaise," meaning that if you force yourself to do something that takes more effort than you are normally able to put forth, it leaves you debilitated for days and even weeks afterward. (As opposed to healthy people, who eventually get stronger if they exercise more and more, rather than weaker.) Exercise is very bad for people with CFS.

I'm sorry to tell you, though, that there is no treatment.

I have recently been wondering if there could be some correlation between CFS and AS. For instance, a lot of people here on WP talk about becoming exhausted after trying to carry on a conversation or being in a social situation. For me it's always been more exhausting to talk to people than to do light physical tasks. I also wonder if the stress of dealing with AS is not some kind of contributing factor that has worn me down over the years.

I was dxed with CFS but my current doctor thinks it was a misdx of something different that may or may not have a name yet. But I definitely understand low stamina, my muscles stop working (go ultra-limp) after I do even a fraction of what most people do in the day. Including breathing muscles. I'm better than I was when this started (I can move myself in bed without collapsing for hours, and it took months of bedrest to get me to the point where that was no longer an issue) but I hit a plateau and now live in bed aside from a tilting powerchair.

I didn't know there was a correlation between autoimmune stuff and early menopause. Autoimmune disorders run in my family. And my periods stopped last year when I was 28. I can get a period with hormones (which they do every six months) which means it's not quite menopause yet, but at the same time the period the hormones start is much smaller than expected so they say there is a menopause component.