What do you hate the most about having autism/aspergers ?

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crazycrazyjohn
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04 Jan 2011, 3:26 pm

Two questions
What do you hate the most about having autism/aspergers ?

What stereotype in society do you hate the most that is used to describe with this disorder ?



foobabe
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04 Jan 2011, 3:35 pm

Whilst I don't have ASD I am mom to 2 great kids (AS and AS/ADD).
I am sad for them when they don't get invited to parties or out to play and when I see school "friends" giggle about them behind their backs.
Those things make me sad/angry
I feel like ASD is preventing them from enjoying the typical things kids their age take for granted.

Not sure I really answered your question ':oops:'

I aslo hate it when people say "oh like Rain Man" when you talk about autism/aspergers



wavefreak58
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04 Jan 2011, 3:36 pm

I hate being misunderstood - even by other aspies.


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04 Jan 2011, 3:47 pm

I hate having to deal with the antics of Jenny McCarthy and Autism Speaks.

I hate the stereotype that we're all a bunch of grunting zombies, who ruin life for our families.

You asked. 8)


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wavefreak58
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04 Jan 2011, 3:52 pm

CockneyRebel wrote:
I hate the stereotype that we're all a bunch of grunting zombies ...


Damn. So the zombie apocalypse starts with us? Cool. It makes sense. Our neurology is messed up so we need to eat NT brains (dark humor people - some zombies eat brains ...)


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Last edited by wavefreak58 on 04 Jan 2011, 4:05 pm, edited 2 times in total.

Verdandi
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04 Jan 2011, 4:02 pm

I hate not knowing, or rather letting myself know, sooner.



Amik
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04 Jan 2011, 4:04 pm

I hate having meltdowns and I hate the fact that an incredible number of people thinks we don't have any feelings or emotions.



Angnix
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04 Jan 2011, 4:07 pm

Amik wrote:
I hate having meltdowns and I hate the fact that an incredible number of people thinks we don't have any feelings or emotions.


Ditto, meltdowns. I keep saying I'm not diagnosed, but I have this symptom. Daily meltdowns caused by emotional overreaction to mundane things ruined my childhood. As an adult, I had overreacting when something upsets me. It's hard to explain.

And when I first learned about autism, I was told by my manager that my AS coworker had no feelings so I could treat him anyway I wanted to. But for someone that might have AS, I can pick up on feelings pretty well and I could tell if he was angry for example and what the manager said confused me.


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04 Jan 2011, 4:10 pm

The difficulty with non-verbal communication and socialising. I find this the most difficult aspect of having AS. It's very frustrating not knowing what to say, when to say it, who to say it to, how to say it. Everything has to be thought through, very little is natural and spontaneous, it's a bit exhausting at times with depression and OCD thrown in on top.



Ariela
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04 Jan 2011, 4:24 pm

The anxiety issues and mental illnesses.



amusedviews
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04 Jan 2011, 4:28 pm

I hate forgetting words all the time, and not being able to properly explain things. I just hate seeing the confusion in someones eyes when im explaining something even slightly complex. 8O And they look at me like im crazy or a moron (when i'm smarter than them, thats REALLY annoying).

The social aspect is really hard though, I used wish more than anything that I could be that life of the party, the girl with soo many good friends. But that will never be me. It still kinda hurts but I've gotten used to having one or two close friends.



Amik
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04 Jan 2011, 4:45 pm

amusedviews wrote:
And they look at me like im crazy or a moron (when i'm smarter than them, thats REALLY annoying).

Yeah, that's annoying. I get that a lot too, when explaining something that seems to simple to me but is apparently too complex for them, or when I know or sense something they don't. It's like they automatically assume we must be crazy, and then they get all awkward when they find out that we're right about it and were not just imagining stuff or speaking out of our arses.

amusedviews wrote:
The social aspect is really hard though, I used wish more than anything that I could be that life of the party, the girl with soo many good friends. But that will never be me. It still kinda hurts but I've gotten used to having one or two close friends.

Yeah, the lack of friends bugs me sometimes. I wish I had some close friends that I could talk to and spend time with. The social isolation sucks sometimes. I don't have to be the life of the party, but it would be nice to not be ignored all the time or treated like I'm invisible, unimportant or not there.



TheSpecialKid
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04 Jan 2011, 4:59 pm

corroonb wrote:
The difficulty with non-verbal communication and socialising. I find this the most difficult aspect of having AS. It's very frustrating not knowing what to say, when to say it, who to say it to, how to say it. Everything has to be thought through, very little is natural and spontaneous, it's a bit exhausting at times with depression and OCD thrown in on top.

So true. I feel the exact same here!
For me, it's not only the non-verbal communication, but also the verbal communication that get's frustrating. :?



Ariela
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04 Jan 2011, 5:21 pm

I'm not against a cure especially for the more seriously impaired.

I'm just sick of being underestimated and talked down to.



ADHDorASDorBoth
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04 Jan 2011, 5:28 pm

If I'm PDD-nos, on the As, then my personal opinion is that I can sgive in to the moment..

If I wanted to give the weak emotions out like crying, I could, but I'm not sure that it wouldn't seem so weird and overdone.
Hence, I have to lock these things up, apart from anger and venting of course.

pfffffft
Meltdowns, yes, they can happen if I don't restrain, but I just have to lie down, close my eyes and regenerate.



evilduck
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04 Jan 2011, 6:08 pm

I'm sick of being wrong.
I'm sick of people not calling me back.

From that - extrapolate a lot.