Mom to new diagnosis of PDD-nos son

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After several years of saying something isn't quite right, we finally have a diagnosis of PDD-nos. Our son Lucas appears "normal" to everyone else, until you sit down with him for a few minutes, which then could turn into hours of talking about "Star Wars", "Minecraft", or "Lego" depending on the day! He has some social problems, like not knowing when things are socially correct, and not realizing that if he does something that is wrong he will get into trouble for it. Its a constant battle of not knowing how to get these things to stick in his head, and tonight I am feeling so lost and alone. I know there are other parents out there who are dealing with this, who have probably been dealing with this a lot longer than I have, but sometimes when you are staring it in the face you just wonder if it will ever pass, will you ever feel like life is going to start moving again.

We are relieved to finally have a diagnosis, no matter what type it is, but it just leaves us with more questions than answers. Yes, so we have a name for it, but how do we get through to him. I guess tonight I'm just venting because he was suspended from school for three days due to misbehavior which has to do with the social ques of not knowing what is acceptable and what is not. We went over it again tonight, but how long it will stay in his head is anyone's guess.

I love my son, but it is days like this that I wonder... I just wonder!! !

Mel

Welcome!

My AS son is 15 and what we have found is anythuing visual works wonders. A visual schedule works out real well. Also we use social stories. They have pictures with them so not only do they read it they visualize it. I will tell you it is a long process to get accustomed to but eventually you get into a structured routine and things get easier. I know how you feal wanting to vent because I still have those days. Trust me though it eventually gets easier with time and pacience.

Welcome to WrongPlanet!

Whilst I probably can't be of any help, there are many people here who can. You might want to go into specifics about your son in the Parents Discussion if you haven't done so already.

Welcome to Wrong Planet Lucasmom

I hope you find support with your experiences.

I would dispute the suspension and get an advocate to come with you. With his diagnoses, they need to understand that your child has learning deficits and by suspending him, is not going to prevent another situation from happening. What he would benefit from is to participate in some Socials skills club/group. My son is in one. I mentioned a program for it and his school thought it was a great idea that would help other children.

Talk with the school!

Welcome to Wrong Planet!

I love Minecraft

Now that you have a DX, you need to get him an IEP. It's been a while since I've been through the process, but I believe you will also want what's called a BIP (Behavioral Intervention Plan), this will deal with behaviors that stem from his DX.

Maybe start by calling your local Department of Disabilities and Special Needs and asking about advocacy services in your area. An advocate could probably tell you exactly what you need for your son as it pertains to school or at least point you in the right direction.

For right now, maybe post the school issue in the Parents section. I'm sure many of the parents here have been through this very same thing.

Welkome to WrongPlanet.

The WP Kink

Hello. Apparently I am quite good to talk to about certain issues regarding ASDs. I've put a lot of people's minds at rest so if you have any questions that aren't to do with school, then fire away because I might be able to help. I have started attending a support group for parents and sufferers of Tourette syndrome and quite by chance, two of the parents have a child with Tourettes and ASD. They said it was great to meet me and talk to me because it felt less like a horrible dead end and it gave them hope.

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I have HFA, ADHD, OCD & Tourette syndrome. I love animals, especially my bunnies and hamster. I skate in a roller derby team (but I'll try not to bite )