Sharing what helps with Autism
Im creating this thread because I want to find out what has helped people on this thread deal with the issues they face in having an Autistic Spectrum Disorder or what has helped someone get along better with someone on the spectrum.
Please keep posts relevant, Im hoping this can be a place where people can refer to for answers to their problems.
Ben
Knowledge.
At first blush, this might seem overly general. But I am terrible at knowing how I am perceived and how to interact with people (among other typical ASD problems ). Just learning about these things helps me learn new ways of understanding what goes on around me, how to make adjustments in my behavior, and understand what I can't change. Knowing these things helps release a lot of the self destructive ideas (I suck, I'm a loser ...) that build up over time when continually faced with perplexing frustrations.
_________________
When God made me He didn't use a mold. I'm FREEHAND baby!
The road to my hell is paved with your good intentions.
So people on the spectrum must come across as shy/introverted
Im wondering if having regular social contact would help improve these setbacks - would a group to meet up with other people on the spectrum help?, because they would share the same problems and should be more understanding
The problem with a lack of knowledge [eg of social convention], thats what Im hoping to address in this thread
Ben
So people on the spectrum must come across as shy/introverted
Im wondering if having regular social contact would help improve these setbacks - would a group to meet up with other people on the spectrum help?, because they would share the same problems and should be more understanding
The problem with a lack of knowledge [eg of social convention], thats what Im hoping to address in this thread as well as help give autistics more confidence.
Ben
The problem with retreating when someone comes near is that it will be a lot more difficult to form friendships. So while retreating may help in the short term may be damaging in the long term. Speaking to someone about a shared interest would be a good way to meet new friends hence going to groups where the special subject is the focus of the group should help.
Has anyone tried sticking around instead of avoiding social situations- and maybe tried making conversation, how did you feel and did you benefit from it?
Im wondering if having regular social contact would help improve these setbacks - would a group to meet up with other people on the spectrum help?, because they would share the same problems and should be more understanding
The problem with a lack of knowledge [eg of social convention], thats what Im hoping to address in this thread
Ben
Shy and introverted is too simplistic. I am not particularly shy if the situation is of great interest to me. I am often clueless about the particulars of the required social interactions. So I blunder through life knocking over a lot of china. A shy person wouldn't break so much stuff, so to speak.
_________________
When God made me He didn't use a mold. I'm FREEHAND baby!
The road to my hell is paved with your good intentions.
No, this does not help me, since it's the social contact which gives me anxiety. More immersion does not equal less sensitivity to me. It never has. I'm with wavefreak58, the only thing that's helped me is knowledge, which has helped me to form a working context and to develop self-acceptance.
Knowing other people have the same problem as me doesn't help me in the slightest. I really wish it did, but I'm so far removed from people (I'm not physically isolated, just mentally and emotionally isolated) that I cannot derive comfort from shared experiences.
Mind you, this is all because I have to live a normal, seemingly-NT life and it's very, very taxing to my system. I don't have the option of dropping out.
At first blush, this might seem overly general. But I am terrible at knowing how I am perceived and how to interact with people (among other typical ASD problems ). Just learning about these things helps me learn new ways of understanding what goes on around me, how to make adjustments in my behavior, and understand what I can't change. Knowing these things helps release a lot of the self destructive ideas (I suck, I'm a loser ...) that build up over time when continually faced with perplexing frustrations.
_________________
Leading a double life and loving it (but exhausted).
Likely ADHD instead of what I've been diagnosed with before.
Sweetleaf
Veteran
Joined: 6 Jan 2011
Age: 34
Gender: Female
Posts: 34,911
Location: Somewhere in Colorado
I think doing a casual volunteering job (eg one shift a week) would be good for social development and manually improving executive functions in a more structured environment. Usually most of the people who are in the same volunteering job for a few years are doing it out of altruism and not coz they want to step up the corporate ladder, so there's less incentive for them to be manipulative and bullying.
I also second the knowledege bit. We NEED knowledge, it helps make the world seem more predictable to us so we're less likely to get overwhelmed and enter a meltdown.
First thing is, I dont think Cannabis is a good idea for someone with Autism to take - or anyone else
Individuals with autism should do their best not to get in trouble with the law and it may be possible that individuals on the spectrum may be more predisposed to developing schizophrenia (Psychosis) if certain triggers happen- one I think is Cannabis intake [my theory].
Not encouraging future cannabis use, but what improvements have occurred with you taking cannabis - Im interested to find out more and of the possibility that it may help various conditions such as some cancers and autism but I think any benefits that occur should come from taking a synthetic derivative or pure extract of the components which would help [ie without psychoactive component] and be more acceptable
My theory arose that cannabis may be more likely to cause schizophrenic illness in autistic individuals after looking at news stories where scientists found the brains of individuals with Schizophrenia shrunk faster than expected, that cannabis causes psychosis and may lead onto Schizophrenia and that some brain areas are smaller in autism [already].
Being autistic doesnt make anyone more likely to develop Schizophrenia without such triggers as Cannabis [theory]
Look at effect of cannabis and also rimonabant [now discontinued] a cannabinoid inverse agonist on short term memory. Cannabis impairs it where as the inverse agonist Rimonabant increased the ability of the short term memory to function.
http://en.wikipedia.org/wiki/Rimonabant
"Memory
Tetrahydrocannabinol (THC) is known to impair short-term memory. It was therefore hypothesised that rimonabant may improve short-term memory. Indeed, in animal studies, it significantly improved the performance of rats to encode information in the short-term memory.[14]"
Link to cannabis and psychosis
http://priory.com/psych/cannabis.htm
http://www.rcpsych.ac.uk/mentalhealthin ... nabis.aspx
Contrast Schizophrenia and brain shrinkage point in what I said with this
http://www.gaia-health.com/articles401/ ... ease.shtml
will need to view article in JAMA myself [Journal of the American Medical Association]
BBC News Story I seen regarding Schizophrenia and brain shrinkage
http://www.bbc.co.uk/news/mobile/uk-sco ... e-12059444
Part of Brain shrinkage [of Amygdalae and autism
http://psyphz.psych.wisc.edu/web/News/B ... utism.html
Interesting links
http://www.bbc.co.uk/news/health-10929032
---
Its just a theory, but wouldn't touch Cannabis both because of it and the fact its illegal.
Id be really interested to know what information help you improve in your abilities to communicate effectively with others.
Something I read on here was not to divulge too much personal information at a time - not any or much more than the other person and see how the conversation goes. I wasn't bad at that anyway but its a good point.
Shared interests help more than meeting people on the basis of being on the spectrum. People are easier to get along with when you share their interests (not only the major ones).
It is more probable that you'll have friends who are less Aspie than you. You can get advices from them. Also, if you've found someone who is as much as you or even more in need of help, you may give him/her advices too.
I'm still not settled down totally by the question, does having a diagnosis (or knowing you have AS) help when you are an adult? I guess it does, in the long term, but I'm not convinced right now, I feel I've lost my faith in myself quite seriously.
_________________
Another non-English speaking - DX'd at age 38
"Aut viam inveniam aut faciam." (Hannibal) - Latin for "I'll either find a way or make one."
Sweetleaf
Veteran
Joined: 6 Jan 2011
Age: 34
Gender: Female
Posts: 34,911
Location: Somewhere in Colorado
Individuals with autism should do their best not to get in trouble with the law and it may be possible that individuals on the spectrum may be more predisposed to developing schizophrenia (Psychosis) if certain triggers happen- one I think is Cannabis intake [my theory].
Not encouraging future cannabis use, but what improvements have occurred with you taking cannabis - Im interested to find out more and of the possibility that it may help various conditions such as some cancers and autism but I think any benefits that occur should come from taking a synthetic derivative or pure extract of the components which would help [ie without psychoactive component] and be more acceptable
My theory arose that cannabis may be more likely to cause schizophrenic illness in autistic individuals after looking at news stories where scientists found the brains of individuals with Schizophrenia shrunk faster than expected, that cannabis causes psychosis and may lead onto Schizophrenia and that some brain areas are smaller in autism [already].
Being autistic doesnt make anyone more likely to develop Schizophrenia without such triggers as Cannabis [theory]
Look at effect of cannabis and also rimonabant [now discontinued] a cannabinoid inverse agonist on short term memory. Cannabis impairs it where as the inverse agonist Rimonabant increased the ability of the short term memory to function.
http://en.wikipedia.org/wiki/Rimonabant
"Memory
Tetrahydrocannabinol (THC) is known to impair short-term memory. It was therefore hypothesised that rimonabant may improve short-term memory. Indeed, in animal studies, it significantly improved the performance of rats to encode information in the short-term memory.[14]"
Why exactly should I more then an NT be careful not to get in trouble with the law? I mean I have done fine so far but I do not feel I should live a lifestyle I do not want just so I can say I'm going by all the rules. As for the schizophrenia thing from what I've researched it can increase the risk in people already predisposed to it but there is also research that suggest one of the other cannabaniods besides THC can help with that disorder. As for my short term memory I did not have much of one to begin with and the cannabis does not seem to have any effect on that.
As for the positive effects.....it reduces my depression and thus the chance of becoming suicidal, it helps me deal with anxiety so I can think about things a bit more calmly instead of with 100's of worst case senerios filling my mind and making it hard to think. It seems to help with my social interactions, as i am more comfortable around people...and it seems to keep the PTSD under control pretty well also.
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