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Phonic
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22 Jul 2011, 5:59 am

This information was originally posted by calista, i don't know where he got it from but it's a facinating look at functioing levels

Let's conconsider the 50th to 95th percentile as regular high functioing autism/aspergers and the 25th and 5th percentile as mid functioning.


Quote:
Employment:
95th percentile: Successful; may be highly paid; highly competent; respected in their profession.
75th percentile: Steady job in their area of interest.
50th percentile: Repeated tries to get employed; eventually found a job that they could keep. Generally has some problems with co-workers, but is a good, hard-working employee. By middle age will have a steady job, though perhaps not an ideal one.
25th percentile: Repeated short-term employment. May be working in supported employment, or may be on disability. May be doing volunteer work or part-time work or be employed by family.
5th percentile: Unemployed and unemployable. On disability; cannot work in supported employment. Probably does chores around the house and/or helps take care of self.

Family (Does not apply to those who don't want to marry):
95th percentile: Good marriage, strong family connections. If a homemaker, is capable and competent.
75th percentile: Married; some marital problems, but none unmanageable. Will probably be a good, though fallible, parent. Will probably need to have "time alone" away from family but can arrange it without problems.
50th percentile: Has probably been married, or is married, but with problems. May have poor communication with spouse. May have fallen into an abusive relationship. Requires "alone time".
25th percentile: Has had romantic relationships; may have had a child, and will probably need help from family to raise the child. May be overloaded by presence of family and need to live alone even if married.
5th percentile: Wants romance, but does not have the skills required to find a partner.

Self-care:
95th percentile: Lives independently; takes care of all own affairs.
75th percentile: Lives independently; does all own basic self-care; may need help with unusually difficult things like buying a new home, but can find help independently.
50th percentile: Lives independently; does all own basic self-care; needs occasional help with things like doing taxes, finding a new doctor, moving, etc.
25th percentile: Does all own basic self-care; lives with family or roommates. May not be able to drive. Needs occasional help with things like shopping, paying bills, cleaning the house.
5th percentile: Probably does basic self-care, but with help. Unable to drive; likely needs companion or service animal when outside the home independently. Lives with family or in assisted living facility/group home, or employs an aide.

Education (Assuming it is desired):
95th percentile: Doctoral degree or master's degree; law school, medical school; may be a professional researcher, professor, engineer. Probably making new contributions to his field.
75th percentile: Master's degree, multiple bachelors degrees, or may be an autodidact with post-graduate level knowledge in areas of interest.
50th percentile: College graduate or associate's degree; average grades. May have learning disabilities. Probably still quite motivated toward academics in areas of interest.
25th percentile: High school graduate or GED; probably needed special education and/or an aide in school. May go to trade school or go for a professional certificate. Probably has learning disabilities.
5th percentile: Special education diploma; probably required special classroom. Areas of talent are likely to be non-educational (art, music, etc.). Unlikely to achieve high-school-level education.

Friendships & Social Skills:
95th percentile: Extroverts will have many friends; introverts, a few close friends they depend on. Social skills are mostly automatized, though likely still needs to relax after a day spent with others.
75th percentile: Some friends; many acquaintances. Can effectively communicate with NTs and is not thought of as threatening, though may be perceived as eccentric or quirky. Proficient in social skills, but only with a good amount of effort. Will likely be exhausted after a few hours of socializing.
50th percentile: A few close friends; extroverts will also have many acquaintances. Probably thought of as odd by most people. Can communicate with NTs but occasionally misreads messages or sends the wrong message. Will likely be able to sustain socialization for an hour or two at a time.
25th percentile: One or two friends. Most people think of him as odd or eccentric and a few people perceive him as unpredictable or threatening. Can communicate with NTs, but often miscommunicates. May not be able to deal with misread communication; may be unaware of miscommunication when it occurs. May have problems with things like using the phone, talking to a grocery store clerk. May not be able to approach strangers.
5th percentile: May have no friends, or may have one or two close friends who have learned to communicate with him effectively. May not be able to communicate what is desired at will, and probably cannot read body language or facial expression. His oddity is obvious to strangers, and he is likely to be unable to initiate social interaction at will. Body language may be misread by police as "drunk" or "aggressive".

Meltdowns:
95th percentile: Meltdowns are absent except during extreme stress (loss of a loved one, major disaster, etc.) because this person has learned to predict and prevent them.
75th percentile: Meltdowns and shutdowns may occur, but can predict them and go to a private place; most of the time, able to prevent meltdowns.
50th percentile: Meltdowns/shutdowns are common, but do not endanger anyone. Able to predict/prevent them to a good extent and only rarely has a meltdown/shutdown in public.
25th percentile: Can control meltdowns/shutdowns somewhat, but often ends up embarrassing himself in public anyway. Meltdowns/shutdowns may be unpredictable. May need to wear MedicAlert for instances where speech is shut down or he is unable to calm himself. Assistance animal or companion may be useful.
5th percentile: Needs to have someone with him in case of meltdowns. May hit anyone within range, destroy objects, etc. Has little ability to prevent meltdowns and is unaware of most triggers and stressors. May be using or considering taking major tranquilizers (Risperdal, etc.) to try to deal with meltdowns.

Executive Functioning:
95th percentile: Has some minor problems with concentration, planning, but has developed systems that work for them so that they are able to cope as well as the average NT or even better.
75th percentile: Has problems with concentration/planning and transitions, and has compensatory systems that work most of the time. May be thrown off by new schedules or unexpected events.
50th percentile: Has problems with concentration, planning, transitions, unexpected events, task-switching, time management, etc. Probably diagnosed with ADHD as well as autism. Compensating somewhat by the use of lists/planners/reminders but still tends to lose track of time. May be quite overwhelmed after a transition like a move or a new job and have a much higher stress level.
25th percentile: Has severe problems with executive functioning, but not so severe that they threaten basic self-care ability. Probably has difficulty keeping house clean; may have a lot of clutter or be a pack rat, or may need everything to be in the exact same place at all times. Probably has unpredictable sleeping and eating patterns; or may hold so strictly to a schedule that he is unable to cope with things that throw off the schedule. Likely to have transition-triggered meltdowns/shutdowns. Compensatory strategies are somewhat helpful but do not allow complete independence.
5th percentile: Executive functioning difficulty affects self-care. May forget to eat or clean self; may have problems like not being able to put on a shirt if it is hung backward in the closet. Changes in routine ruin their whole day. May need someone to prompt them through multi-step tasks.

Speech/Language:
95th percentile: Able to speak whenever they desire. Has learned casual speech; has learned to use tone of voice. Able to change vocabulary and style to suit the audience they are speaking to.
75th percentile: Speech may be formal or have odd cadence, but is understandable by NTs. Can use tone of voice, etc., if concentrating in a quiet environment.
50th percentile: Speech is formal, robotic, and definitely odd, but still communicative and original. May occasionally lose access to speech during extreme stress. May supplement speech with writing, sign, or other non-speech symbolic language.
25th percentile: Speech is available most of the time, but occasionally lapses into scripts and functional echolalia; OR may use a communication device, sign language, or other non-speech symbolic communication. Able to express own ideas most of the time. May have problems with figurative language.
5th percentile: Speech consists mostly of communicative or non-communicative echolalia, scripts, non-grammatical sentences or single words. Probably supplements speech with PECS, simplified sign, gesture. Often frustrated by inability to communicate when desired. May be completely non-verbal but has probably learned some form of communication to compensate.

Sensory:
95th percentile: Has few sensory issues, and has learned to deal effectively with those they have.
75th percentile: Has a few sensory issues which can be annoying/distracting but not extreme. May require some minor accommodations (incandescent lighting, cotton clothing, etc.)
50th percentile: Sensory issues are definite and cause problems, some of which are difficult to solve. Probably has issues with things like TV monitors, seams in clothing, texture of food. Takes active steps to adjust the sensory environment to reduce stress level, but is not always successful. May be unusually vulnerable to injury because of undersensitivity.
25th percentile: Sensory issues are a major source of stress, and careful planning is required to manage them. May have a restricted diet. Probably has delayed processing of sensory information; probably qualifies for auditory processing disorder and other sensory processing disorders. If undersensitive, may have had one or more significant injuries due to being unaware of or unable to process pain; or may be undersensitive to heat/cold to the point of wearing T-shirts in freezing weather.
5th percentile: Sensory issues likely cause multiple meltdowns/shutdowns per week. Restricted diet is likely. Sensory processing is likely to be conscious and difficult, especially under stress; raw sensory data is not necessarily given meaning by the brain unless effort is made. May be unable to detect serious medical problems or injuries. May be unable to detect heat/cold. May be unable to detect source of sensory discomfort/stress.


Not it's really aimed at adult autistics, so younger autistics like me (18) will naturally come off as lower
You may answer like this for convenience:

Employment = 5th
Family= DNA (does not apply)
Self Care = 5th
Education = 25th
Friendships & Social Skills = 5th
Meltdowns = 50th
Executive Functionin = 50th
Speech = 50th
Sensory = 25th


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YellowBanana
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22 Jul 2011, 6:19 am

Employment =75th
Family= 75th to 95th (have a good marriage but need significant alone time, and don't have strong connections with rest of family)
Self Care = 25th to 75th (my level in this area varies a lot!)
Education = 75th (I did, however, start my doctorate but quit when my interests changed)
Friendships & Social Skills = 5th to 25th (usually around 25th, but often I am "unable to communicate what is desired at will" and struggle with body language)
Meltdowns = 50th
Executive Functionin = 25th to 50th (more usually around 25th)
Speech = 25th (but also from 5th: "Often frustrated by inability to communicate when desired")
Sensory = 50th to 75th

It seems to me that in the "achievements" functioning levels which I would class as Employment, Family, Education, I am doing pretty well (all 75th percentile and above), yet my basic "background" functioning levels (self care, social skills, executive functioning, speech) are significantly lower.

I am not sure how I manage this, but it probably accounts for the very high level of stress noted by my psychiatrist, and the consequent tendency towards depression & anxiety when left unchecked.

My functioning level also varies alot depending on the current level of stress which depends on previous interactions, amount & quality of solitude (aka "decompression time", number of stressors encountered during the day (i.e. things not going to my "plan"), and quality/quantity of sleep (which in turn is affected by stress).

What I'm saying is: One day I might appear to be doing well and towards the top end of my functioning levels. Then next day might be a write off where I am at my lowest functioning levels. It can feel like being hit by a bus ... that sudden loss of skills.

I am 38 btw.


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ChrisP
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22 Jul 2011, 6:55 am

What an interesting set of ideas! I'm new around here so don't want to post precipitately, but just wanted to say that this looks like the most interesting tool for self-analysis I've seen in a very long time. Thank you for the original posting, and for the interesting responses thus far!



Kiana
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22 Jul 2011, 7:00 am

Employment 50th
Family 50th
Self Care 95th (had to be, took a long time to get there)
Education 75th
Friendship & Social Skills 50th - maybe.. no friends although most people talk to me ok
Meltdowns 50th
Executive Functioning 75th
Speech/Language somewhere between 75th and 50th neither quite fit
sensory 50th

I am a female age 37, these would have been much higher when I was younger.

I agree, they can change day to day.


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Your neurotypical (non-autistic) score: 7 of 200
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Niamh
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22 Jul 2011, 7:04 am

25th in everything though on good days could pass as 50th. Hope this gets better over time with strategies or at least that I'll have supports in place to fall back on.



Aimless
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22 Jul 2011, 7:08 am

Employment: @ 85%- I have a steady job, as is my pattern, but it not an area of interest and it is in fact bottom of the barrel status-wise. I also do not have to interact with co-workers but do OK with clients. I clean offices btw.

Family 25%

Self Care 50%

Education 50%

Friends & Social Skills 50%

Meltdowns 75%

Education 50%

Speech/Language 75%

Sensory 75%

with an average of about 60% overall functioning level


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ChrisP
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22 Jul 2011, 7:13 am

OK, here we go....

Employment: 75th
Family: 75th
Self-care: 75th
Education: 75th
Friendships: 50th
Meltdowns: 75th
Executive functioning: 75th
Speech: 75th
Sensory: 75th

I agree that all of these are pretty variable according to context and how tired/stressed I am, but all in all maybe I'm not as extreme as I sometimes think/feel?

I've held a steady people-related job for 34 years, but am retiring in 10 days as I've just got burnt out with the effort of bridging the communication gap. The best best way I can describe it is like doing a job all day in a language which is other than my own. No matter how good a linguist I might be, it's always harder living where you constantly have to communicate in another language.

(BTW: I've actually had to do this 'living in another language' bit, and ran out of steam after about 5 years: I knew I was doing OK when I managed 4 days in hospital without speaking English!)



Lucywlf
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22 Jul 2011, 7:32 am

Employment 5th
Family 95th-75th. I have a strong marriage but would like time alone I don't usually get.
Self Care 95th-50th. I have very active autistic twin boys whom I'm assured even NTs would have a hard time taking care of.
Education 75th
Friendship & Social Skills 75th-I have some very good friends but never go out that often. Would have been lower in the past.
Meltdowns 75th-50th. I had a lot worse problems with this in the past.
Executive Functioning 95th-75th. I occasionally have real problems with this that have been ignored in the past.
Speech/Language: 75th.



Last edited by Lucywlf on 22 Jul 2011, 11:11 am, edited 1 time in total.

sfreyj
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22 Jul 2011, 7:36 am

Employment: 25th–50th
Family: N/A
Self-Care: 25th (18 and living with parents)
Education: 50th–75th (Undergraduate with high grades)
Friendship and Social Skills: 25th–50th
Meltdowns: 75th–95th (Meltdowns generally consist of emotional/social withdrawal; nothing major)
Executive Functioning: 25th–50th
Speech/Language: 50th–75th
Sensory: 75th

Average of 44–62.



Last edited by sfreyj on 22 Jul 2011, 11:25 am, edited 2 times in total.

PaoloTrep
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22 Jul 2011, 7:39 am

All 25th but occassionly dip into 50th on good days. What do these percentiles mean exactly? Are they a guage of where yyou on the scale or something else?



Noop
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22 Jul 2011, 7:42 am

Employment doesn't apply to me (Never had a job)
Family doesn't (I don't have a family in that sense. I'm only 16!)
Self-care doesn't really apply (Still live with parents)
Education (Haven't finished school yet...)

Friendships: 25th/50th, sort of a mix of the two. However, I don't think I have any friends, really. Just acquaintances.
Meltdowns: Not entirely sure what this means, but if it means what I think it does, I'd say 50th.
Executive Functioning: 75th? Not sure.
Speech/Language: 50th/75th? I don't know really, because I don't really analyse my own voice & compare it to other's. Not sure if I speak V. formally or sound robotic or anything like that. No-one's particularly pointed these things out explicitly. I've been told I sound 'boring' & 'posh', but is that because of the content of my words or how they're presented? :huh: Not at all sure on this one.
Sensory: A pretty firm 75th I think. I sometimes have to cut clothes tags off & lower the brightness on my laptop, have music players on a quiet setting & that sort of thing. I also have trouble talking to people sometimes because it sounds like they're speaking really loudly.

(Sorry, I tend to ramble)



haruka
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22 Jul 2011, 8:25 am

Employment: 65th - I am unemployed now and struggling with the process of finding a job. That's the hard part. When I am in a job, mostly my employers see that I have different needs but that I am a hard focused worker who actually has far more skills than I was originally able to / comfortable with letting on.

Family: 85th - but I do not have children. If I did this would be much lower. Also, I'm gay so being able to understand my partner is made easier. I struggle to keep in touch with my family outside my home though.

Self-Care: 60th - If I don't push myself to do things myself, I could easily slip down further and think I'm not capable out of fear. When I was in my early 20s, I just didn't do things like go to the doctor or dentist.

Education: 65th - though I did not go to college or university, I think I would be able to perform well enough at it if I was able to focus on it entirely. I am an autodidact in most things. I think most people assume I've been through some form of higher education.

Friendships & Social Skills: 70th - I do not tend to keep friends well, mostly because I forget to communicate with them. I am capable of "fitting in" with NTs but it makes me feel terrible because I feel like I'm lying and it is extremely tiring.

Meltdowns: 85th - Major stressors like loss of job if I was the only wage earner or divorce would destroy me for many many months. Loss of a loved one as well, though I haven't really dealt with this one yet. I'm usually just withdrawn during major stressors, tearful and unable to function well.

Executive Functioning: 60th - This may be higher. I tend to avoid putting myself in situations that would cause any stress so the necessity of lists and failure with them only affects my personal goals of self-improvement. My ways of coping (lists, online calendar, reminders etc) are varied and I have to switch to new ones as the old ones fail - and they always do eventually.

Speech / Languages: 80th - I tend to choke up, like there's a large ball at the back of my throat if some extreme emotional event is occurring preventing speech and I have trouble talking to kids without being formal for example.

Sensory: 70th - I had a co-workers monitor switched while they were on vacation because it was emitting a high pitched buzzing that no one else seemed to notice / care about. I've had employers remove overhead fluorescent light bulbs at work to make my work environment softer. I have some clothing / seam issues and am particular about clothing. I tend to be overly sensitive to cold and heat.

That's an average of 70th percentile. I am in my early 30s.

Thanks so much for posting this. It's helped me understand where I fit on the spectrum and has helped me solidify that I do qualify as fitting on the spectrum.



abc123
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22 Jul 2011, 8:49 am

Employment: 50
Family: 50-75
Self-care: 95th percentile
Education: 95th percentile: Doctoral degree; (may be a professional researcher, professor, engineer. Probably making new contributions to his field). Er no and no
Friendships & Social Skills: 75 maybe miscommunicates occasionally which is 50 I think what I do is fake very well
Meltdowns: 75 I think
Executive Functioning: 75th percentile
Speech/Language: 95th-75th percentile but could potentially be a lot lower.
Sensory: 95th percentile or maybe 75th

I'm not sure of the social/speech/meltdown/sensory as not really explored as my diagnosis is new and not entirely sure if it is Aspergers or not. I don't know if what I experience is typical e.g. specific loud noises can make me jump (but then I'm anxious). My level of employment-temporary secretary doesn't match my PhD but then my current (evil) employer would employ me for as long as I could stand it and if I applied for the job I don't want permanently.

I have social anxiety so the effects could be due to either. I reckon my husband might score me higher on a few things.



Phonic
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22 Jul 2011, 8:53 am

Quote:
specific loud noises can make me jump (but then I'm anxious).


This is related to autism sensory issues, a lot of people here do this.


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SuperTrouper
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22 Jul 2011, 9:15 am

Employment: 5th
Family: 0th (don't even want a romantic partner)
Self care: 5th
Education: 50th
Friends: 5th-25th
Meltdowns: 5th-25th
Speech: 5th-25th
Executive functioning: 25th
Sensory: 5th



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22 Jul 2011, 9:41 am

Employment 75%
Family not applicable
Self Care 75%
Education 50%
Friendship 5%
Meltdowns 25%
Executive 25%
Language 50%
Sensory 75%


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