jammie wrote:
In short if you stilllive with your parents you do not know how lucky you are.
If you live alone and you can handle it you do not know how impressed i am
Note that "live alone" in my case means that nobody else lives in the same apartment with me.
I get two to three staff in my apartment throughout the day, and at night there is an electronic surveillance system where staff will show up if certain things happen or if I press a button to call them. I also have a friend three doors down the hall from me who helps me out with stuff, and there's a full-time nurse who works downstairs in the building.
In short, I actually get more assistance now than I did in institutions, but sleep without anyone there overnight (although there can be someone there at a moment's notice if I need anyone, and in addition to that I have a friend three doors down from me on the same floor of the apartment building, and one of her friends across the hall from us will also help either of us out in emergencies).
There are fortunately in some places options besides living totally without assistance and living in more institutional type arrangements, the key is generally showing them that you qualify which can be a total mess of paperwork and diagnoses and crap. (And which I had help with from two advocacy organizations.)
It can also be really hard to qualify in some places if your diagnosis is Asperger rather than autism -- some have a category for that and some do not, and some officially do but don't really. Since my diagnosis is autism and my scores on functioning tests are so low (I'm in the level just above the absolute bottom level by their standards) it's easier for me to qualify than it is for some people.
Just on my own without any of this, and forget it, but fortunately there is all of this.
_________________
"In my world it's a place of patterns and feel. In my world it's a haven for what is real. It's my world, nobody can steal it, but people like me, we live in the shadows." -Donna Williams