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Brock
Raven
Raven

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Joined: 2 Sep 2012
Age: 38
Gender: Male
Posts: 117

17 Nov 2012, 1:16 pm

"Not-ism" - I think it's a way better term than "NT", but that's just me.

Anyway,

Has anyone ever heard of AS being similar to/confused with/misdiagnosed as Marfan Syndrome?

Or has anyone been told they have Marfan Syndrome or been tested for it?

I was told I had it by my doctor at Mayo, but never got the genetic test/diagnosis for insurance reasons. (god bless america) Now, much later in life, symptoms of Marfans never showed up, but the AS got out of control.