"Not-ism" - I think it's a way better term than "NT", but that's just me.
Anyway,
Has anyone ever heard of AS being similar to/confused with/misdiagnosed as Marfan Syndrome?
Or has anyone been told they have Marfan Syndrome or been tested for it?
I was told I had it by my doctor at Mayo, but never got the genetic test/diagnosis for insurance reasons. (god bless america) Now, much later in life, symptoms of Marfans never showed up, but the AS got out of control.