US spends 18 times more than UK on autism research

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whirlingmind
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09 Jul 2013, 11:14 am

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Levels of autism research in the UK fall way behind those of the US, finds new research published today by the Centre for Research in Autism and Education (CRAE) at the Institute of Education (IOE), London and King's College London's Institute of Psychiatry.

The research, undertaken on behalf of Research Autism, found that the US spends an average of 18 times the amount the UK does on autism research in accordance with population size. The US spent the equivalent of £75.79 per person with autism in 2010, while the UK spent just £4.26.

US research is also relatively evenly distributed across a range of autism areas, including diagnosis, support services and causes, whereas UK research is dominated by work on biology, brain and cognition, which makes up 53% of all autism research nationally.

Furthermore, the study found that autistic people and their families often felt excluded from the research process. Many said they had no say in how research projects are designed, conducted and publicised. They were especially concerned that the balance of research topics in the UK is gravely uneven and fails to match up to what they want for their or their families' lives. For example, of more than 100 UK funded autism research projects between 2007 and 2011, only 21 explicitly included adults and just 11 focused specifically on adult needs.

Dr Liz Pellicano, Director of CRAE, said:
As far as research in the UK is concerned, too often people with autism are treated as if their opinions don't matter. This report shows that there is a huge gulf between what autistic people and their families would like to see, and what is actually being researched. We have to turn that around."

"Most importantly, we need to listen to autistic people and their families. Research investment needs to reflect people's everyday concerns. It needs to be refocused towards enhancing people's life chances, understanding how they think and learn, and how we can develop public services that better serve autistic people and their families."

Professor Tony Charman, Chair in Clinical Child Psychology at King's College London's Institute of Psychiatry, said:

"Without better strategic oversight and targeted investment the world class research into autism that is being done in the UK will not deliver the most benefit for autistic people, their families and society as a whole. The gap between the aspirations of the autism community and the research that is being funded and published in the UK is very wide and the research we have published today needs to act as a wake-up call for funding agencies and UK autism researchers".


Full article here.

http://www.ioe.ac.uk/newsEvents/88494.html

Our government should be ashamed. So should the NHS.


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zer0netgain
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09 Jul 2013, 12:56 pm

Not to go political, but that's probably because a socialized healthcare system doesn't reward the financial motivations to find new treatments or even a cure for a condition.

If a US company finds a way to enable autistics to live better lives or even prevent autism from happening, they will make money on their discovery. Nations that have more socialized systems put limits on profits, and that means investing heavily in R&D will not get a worthwhile reward.

A similar issue was made about Airbus compared to Boeing. Of course, Airbus is burdened with socialist policies that make it non-competitive to try and innovate, so the government kicks in money for R&D so Airbus remains competitive and innovative. Boeing is not similarly hampered, so there isn't the need for government to subsidize its R&D.



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09 Jul 2013, 1:06 pm

I don't know what the reason is, but the sad truth is that the US is the only country in the world that cares to discover new things. All other countries are too busy caressing their own egos and stealing from each other. I'm an admirer of American will to innovate and solve and discover, always have been. This is why I asked my parents adamantly to send me to English classes. I wanted to be informed of new advances in the US, and I was 5 when I noticed the difference!


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grahamguitarman
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09 Jul 2013, 2:39 pm

Yes, its all very political isn't it, you can read it and get angry, then you re-read it and see the political manoeuvring being presented as journalism.

Look at the authors. This is an article written by an educational establishment, in concert with a psychiatric establishment, about themselves. They are jointly forwarding arguments that funding should be directed more towards Autism education & intervention research, rather than Autism medical research (no surprises there then). If you read the bios at the bottom of the page, of the organisations involved in the survey, they are all mainly education/intervention based. This article spends more time basically arguing for more of the available money to be given to them instead of to the medical people, than it does arguing for more money overall.

Once you see the hidden agenda behind this article, its bias becomes much more obvious.

Also, what their article doesn't point out, is that most of the money being spent in America is coming from multi billion dollar drug companies and other commercial entities, not from the American Government. And those companies only concern, is how much money they can make from the general public (which usually far overshadows the amount of money they spend on the initial research). To them the autistic community is a potential commodity to be plundered for more wealth, not people to be helped with their everyday problems.

The argument that profit driven research is somehow better than socially motivated research just doesn't hold water. The medical research being conducted in the UK is widely regarded as being World class research, of a high caliber. In commercial research, if a particular line of enquiry does not show the potential of good profits, then the scientists will most likely not get funding for that research. In The UK, and other European countries, research is judged by the potential benefits to mankind, not the potential profits. Therefore any line of enquiry that might be seen to be worth investigating can get funding to go ahead if there is a reasonable chance of worthwhile results.

I do agree that we should spend more money on Autism research in this country, £4.26 per Autistic person is pitiful really. But I'm not going to take sides in a spat about research funding between the psychiatrists/educationalists and the medical researchers.


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Enja
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09 Jul 2013, 2:41 pm

Yes i think on the whole, America dreams bigger than the rest of the world. The UK is really just a mess... Although Brit's have done a lot of good stuff, many of them end up in America or bought and work for an american company.
The UK's situation is pretty sad, pretty sad indeed. But i am grateful for some things from the UK.



Moondust
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09 Jul 2013, 3:02 pm

The UK is the first runner up. Especially with the BBC. And regarding Asperger's, Australia has shown admirable initiative. It's the only country in the world with clinics offering therapy for Aspies. The rest of the world just pass laws that repeat the DSM like a parrot, mindlessly.


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LookTwice
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09 Jul 2013, 5:43 pm

zer0netgain wrote:
Boeing is not similarly hampered, so there isn't the need for government to subsidize its R&D.


Completely off-topic, of course (sorry for that), but you're wrong. Boeing is being subsidized plenty. Link:
http://www.nytimes.com/2012/03/13/busin ... .html?_r=0

The financial motivations are just the same in a "socialized" healthcare system - in fact, it might even be better because the people who pay for stuff don't have a say in how it is spent, which easily leads to exploding costs - you should take a look at how much money pharmaceutical companies make in some parts of Europe because of that. In the end, everybody would rather be paid for someone else's work, but I suppose the reasons for the disparity in research are multifactored.


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grahamguitarman
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09 Jul 2013, 5:52 pm

Moondust wrote:
The UK is the first runner up. Especially with the BBC. And regarding Asperger's, Australia has shown admirable initiative. It's the only country in the world with clinics offering therapy for Aspies. The rest of the world just pass laws that repeat the DSM like a parrot, mindlessly.


Actually there is a clinic devoted just to Aspergers in Sheffield,UK. I know because it's where I was diagnosed. And its where I'll be going for counselling as soon as they can find a slot for me in their schedule (more underfunding problems) I don't know about other cities, but I'd hazard a guess that Sheffield is not the only Aspergers clinic in the UK.

What they are doing in Australia sounds great though, we could certainly do with more of that sort of thing here in the UK.


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Tyri0n
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09 Jul 2013, 6:01 pm

whirlingmind wrote:
Quote:
Levels of autism research in the UK fall way behind those of the US, finds new research published today by the Centre for Research in Autism and Education (CRAE) at the Institute of Education (IOE), London and King's College London's Institute of Psychiatry.

The research, undertaken on behalf of Research Autism, found that the US spends an average of 18 times the amount the UK does on autism research in accordance with population size. The US spent the equivalent of £75.79 per person with autism in 2010, while the UK spent just £4.26.

US research is also relatively evenly distributed across a range of autism areas, including diagnosis, support services and causes, whereas UK research is dominated by work on biology, brain and cognition, which makes up 53% of all autism research nationally.

Furthermore, the study found that autistic people and their families often felt excluded from the research process. Many said they had no say in how research projects are designed, conducted and publicised. They were especially concerned that the balance of research topics in the UK is gravely uneven and fails to match up to what they want for their or their families' lives. For example, of more than 100 UK funded autism research projects between 2007 and 2011, only 21 explicitly included adults and just 11 focused specifically on adult needs.

Dr Liz Pellicano, Director of CRAE, said:
As far as research in the UK is concerned, too often people with autism are treated as if their opinions don't matter. This report shows that there is a huge gulf between what autistic people and their families would like to see, and what is actually being researched. We have to turn that around."

"Most importantly, we need to listen to autistic people and their families. Research investment needs to reflect people's everyday concerns. It needs to be refocused towards enhancing people's life chances, understanding how they think and learn, and how we can develop public services that better serve autistic people and their families."

Professor Tony Charman, Chair in Clinical Child Psychology at King's College London's Institute of Psychiatry, said:

"Without better strategic oversight and targeted investment the world class research into autism that is being done in the UK will not deliver the most benefit for autistic people, their families and society as a whole. The gap between the aspirations of the autism community and the research that is being funded and published in the UK is very wide and the research we have published today needs to act as a wake-up call for funding agencies and UK autism researchers".


Full article here.

http://www.ioe.ac.uk/newsEvents/88494.html

Our government should be ashamed. So should the NHS.


So which country spends more on services for autistic people?

I've seen a few members here from the UK who talk about full-time care workers and others who help them navigate through the bureaucratic maze. I am not aware of any services for autistic people at all in the United States. I wish there was someone who could so much as help me find a specialist for NLD, but there isn't.



btbnnyr
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09 Jul 2013, 10:22 pm

Biology, YAY! Brain, YAY! Cognition, YAY! :albino:


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ker08
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09 Jul 2013, 11:07 pm

the US spends the most for almost all scientific research and development so this doesn't surprise me in the least.



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10 Jul 2013, 12:54 am

Tyri0n wrote:
[I wish there was someone who could so much as help me find a specialist for NLD, but there isn't.


I keep hoping and checking the web.


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Funkwelle
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10 Jul 2013, 3:56 am

Moondust wrote:
It's the only country in the world with clinics offering therapy for Aspies. The rest of the world just pass laws that repeat the DSM like a parrot, mindlessly.


That's not true. There are several autism clinics in Germany (at least 2 in a 20km radius from where I live) and they offer therapies for Aspies. And they diagnosed me with AS using the ICD-10, not the DSM.

Moondust wrote:
the sad truth is that the US is the only country in the world that cares to discover new things.


That's not true, neither nowadays nor in the past.



whirlingmind
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10 Jul 2013, 4:41 am

Moondust wrote:
Tyri0n wrote:
[I wish there was someone who could so much as help me find a specialist for NLD, but there isn't.


I keep hoping and checking the web.


But you have social services in the US. Surely they can do an assessment and see what you need (to both)?


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neilson_wheels
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10 Jul 2013, 5:50 am

In america you can also get a bleach enema to 'cure' your child of Autism, they're not too popular in the UK.



Rudywalsh
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10 Jul 2013, 6:17 am

A couple of weeks ago I read that Britain spends 28 Billion pounds on Autism research and various other things attributed to autism, education, medication and so on. Times 28 Billion 18 times, someone’s telling porky’s. Whether it’s the States or Britain telling lies, I’m pretty sure all those involved are enjoying a good life style from these funds.

A nice car, nice house and a good couple of holidays a year. It’s money generated by tax’s payers. It’s almost as if there is a bottomless pit of money certain clever clogs realize will always be there.

What upsets me is in the last hundred years or so since autism came on the scene, there is still no cure and no medication for the main symptoms of autism, with all the billions going on research into autism, no one can even put their finger on what causes the condition. (Some countries still think autism is a desease) In the last hundred years or so we are none the wiser.

All this money has given us no results, a researcher might spend 30 years looking in all the wrong places whilst collecting a nice fat wage at the end of the week.

I believe the real experts when it comes down to autism are those who live with the condition and can talk about their experiences. Why is there no money spent on researching those who live with the condition (adults) and asking them what they think and believe.

As far as I’m concerned, some people are living the good life from these funds whilst actually achieving nothing, a waste of money, where are the results?

We have gone from blaming the mother in the 1950s up until the late 70s (Refrigerator Mother) for the behaviour seen in autistic children, and then over to the father giving out his sperm at too late a time in his reproductive cycle. Even the grandfather has been blamed.
Oh, maybe we can blame it on a vaccine, I know, lets spin it on bad genetics. Meanwhile, there are still no results and certain experts are living it up, money well spent.

It’s sad.