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BehaveinLA
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26 Feb 2014, 3:18 pm

Are there any parents on Wrong Planet or is it mostly for people who are diagnosed with Autism or Aspergers? I was wondering if parents would share what they use to choose a high-quality service provider (like speech therapist, OT, ABA therapist, etc.). Here are some things that I think are important:

- Being on time
- Being polite
- Not being judgmental
- Answers questions easily

What else?



LupaLuna
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26 Feb 2014, 3:40 pm

Most people here are on the spectrum. Occasionally there will be a parent or two asking questions, but they are mostly addressed towards other people on the spectrum. Once they have there questions answered. They never come back unless they have more questions to ask later on.



The_Walrus
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26 Feb 2014, 3:45 pm

I see you've already posted here: http://www.wrongplanet.net/forum19.html

That forum has the highest concentration of parents.

This forum is generally only frequented by autistic people, some of whom have autistic children of their own.



b_edward
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26 Feb 2014, 10:32 pm

I consider myself ASD but no official diagnosis. Although I've been told by a psychologist that he would be very surprised if I could come out of an official eval without an ASD(Aspergers) diagnosis. This was the autism specialist at BYU.

[b]However[\b] I have 3 kids who have an official ASD diagnosis. (2 of the Aspie persuasion and 1 PDD(nos). )

One more of our kids seems very ASD in many areas as well, but he's never had a diagnosis -- he seems better at executive function than the rest of us, and is able to get by without help (good grades, no meltdowns, etc.) -- we've never pursued an evaluation for him.

Then we have a younger one, who, as far as we know is NT but who knows what the future will hold.

I feel like reading this forum helps for our whole family.



b_edward
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26 Feb 2014, 10:41 pm

I am at a loss for choosing therepists and service providers. The only thing I know so far that helps is don't go to someone who doesn't know much about autism.



y-pod
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27 Feb 2014, 4:20 am

I'm a parent and aspie as well. Unfortunately my kids don't qualify for aspies (speech issues) so I can't say we're all aspies. :) I suspect there are a lot of parents with similar issues but are undiagnosed.


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MjrMajorMajor
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27 Feb 2014, 5:52 am

b_edward wrote:
I am at a loss for choosing therepists and service providers. The only thing I know so far that helps is don't go to someone who doesn't know much about autism.


Same here. My son received speech therapy, and a lot of social and organizational support through our (tiny) school system. They've worked with him long enough that they have a good feel on how his mind works.



Waterfalls
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27 Feb 2014, 7:02 am

Instinct. Does what the person says and what they do match? Do they generally unconfuse rather than confuse me and my children? Do they more often calm or agitate?