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paolo
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15 Feb 2007, 12:30 pm

I have frequently read about an alleged increase of cases of autism both in the US and particularly in the Silicon Valley. There is surely an increase in Dxing due to a better understanding of the problem. But I haven’t seen attempts to extrapolate figures, with due consideration to the fact that, presumably, the percentages available are based only on children and young people in developed urban environment and that there certainly is a submerged mass of adult and old people who suffer of the condition without anyone knowing. Even here I have seen very few cases of people over 50. Would it be possible to start tackling the problem of old people in the spectrum, who may suffer more than anybody else?



fjm
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15 Feb 2007, 2:54 pm

paolo wrote:
I have frequently read about an alleged increase of cases of autism both in the US and particularly in the Silicon Valley. There is surely an increase in Dxing due to a better understanding of the problem. But I haven’t seen attempts to extrapolate figures, with due consideration to the fact that, presumably, the percentages available are based only on children and young people in developed urban environment and that there certainly is a submerged mass of adult and old people who suffer of the condition without anyone knowing. Even here I have seen very few cases of people over 50. Would it be possible to start tackling the problem of old people in the spectrum, who may suffer more than anybody else?


They really didn't start diagnosing Asperger's and autism back then unless the family could afford a psychoanalyst. Which was very few. Medical doctors didn't know about it back then.

So question -- are you over 50? I'm 53.

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paolo
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15 Feb 2007, 3:07 pm

I am 73. As for psychoanalyis it has only had a disatrous effect. Anyhow a psychoanalist wouldn' even admit the existence o Asperger, at least in France or Italy.
I want to point out that many aspies or others in the spectrum may in the last resort rely on relatives. When you advance in age, lest you have been married, you find that sometimes you have no relatives who may support you (at least psychologically).
For what concerns married people with autism I would like to do a special thread if possible.



Last edited by paolo on 15 Feb 2007, 3:17 pm, edited 1 time in total.

Emettman
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15 Feb 2007, 3:14 pm

I'm 50, and was diagnosed two years ago, but only after I'd started to research the possibility for myself.
Despite an atypical childhood, it wasn't a condition that was on the agenda.
I did get called on occasion "A little professor" which nowadays might set bells ringing.

But my relative social isolation was just put down to being brighter than all the other kids in the village: I was bored by their games, they couldn't follow what I was interested in.

Late fifties, early sixties, was some time ago.



Starr
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15 Feb 2007, 3:21 pm

paolo wrote:
For what concerns married people with autism I would like to do a special thread if possible.


I would be interested, should you decide to start that thread Paolo.



SteveK
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15 Feb 2007, 3:27 pm

Starr wrote:
paolo wrote:
For what concerns married people with autism I would like to do a special thread if possible.


I would be interested, should you decide to start that thread Paolo.


Same here!



kpupg
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15 Feb 2007, 3:57 pm

Count me in as well.

I have a bil who was "born ret*d," according to the family. He received numerous and various therapies through adolescence, and was mainstreamed in school around age 11 or 12. Now I look at him and know that he's HFA, not ret*d. He's incredibly lucky that his family could afford the therapies he received, and that many of them were similar to what autistic kids get now. But there wasn't a word for it in the 60's when he was born, so it was "ret*d." My conclusion -- there is no explosion in autism -- it's all a matter of what you call it.



vanrand
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15 Feb 2007, 4:02 pm

The number of cases that will be diagnosed is directly proportional to the number of 'professionals' who earn a living treating them.



paolo
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15 Feb 2007, 4:40 pm

vanrand wrote:
The number of cases that will be diagnosed is directly proportional to the number of 'professionals' who earn a living treating them.


This might be an explanation for the scarcity of DXs for AS and other forms of functioning autism, because these conditions are not treatable. I have known several psychiatrist, and, given also their reliance on freudian and postfreudian theories, they would never admit that some of their patients were or are autistic.



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15 Feb 2007, 4:50 pm

After I got diagnosed and read more about AS I come to realize just how much of my family is affected. Besides my parents being probably somewhere on the spectrum my dad's stepbrother I now realized probably has Aspergers. I vaguely remember being told as a child that he was "ret*d or something". He always lived with my grandmother, yet he did not act like the ret*d and Downs Syndrome people in my school. Yes they put the Downs kids in mainstream classes where I grew up and let them sit their in a seat all day and learn nothing. Anyways my uncle is real smart in some things like he can take cars apart and put them back together and about anything else mechanical. I remember he expressed strong politcial views one time and spoke quite fluently and was certainly cognitive. So I remember thinking then why do they say he's ret*d? He was just different. He didn't like to bathe, had no friends, hardly ever held down a job only dated one woman in his life that I know of. Sounds more like Aspergers doesn't it? Only thing is he didn't sit and stim as far as I could tell and doesn't have the sensory issues like I do with noise, light, etc.

So I don't think there is an autism explosion. Ok maybe a few more than previously just because of environmental poisons and too many preemie births. But I think autism has been around for hundreds and thousands of years. Those people just either fell through the cracks, were cared for by family and hid from society, trudged through life as best they could, were misdiagnosed with something else or got murdered early in life by NT bullies who ganged up on them for being different.

I wouldn't be surprised if some women hung at the Witch Trials in Salem might have been autistic.

On another note I just recently read in New Jersey they are saying 1 in 94 kids is autistic. So they must have a lot of autistim specialists there right?



fjm
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15 Feb 2007, 5:29 pm

Ticker wrote:
After I got diagnosed and read more about AS I come to realize just how much of my family is affected. Besides my parents being probably somewhere on the spectrum my dad's stepbrother I now realized probably has Aspergers. I vaguely remember being told as a child that he was "ret*d or something". He always lived with my grandmother, yet he did not act like the ret*d and Downs Syndrome people in my school. Yes they put the Downs kids in mainstream classes where I grew up and let them sit their in a seat all day and learn nothing. Anyways my uncle is real smart in some things like he can take cars apart and put them back together and about anything else mechanical. I remember he expressed strong politcial views one time and spoke quite fluently and was certainly cognitive. So I remember thinking then why do they say he's ret*d? He was just different. He didn't like to bathe, had no friends, hardly ever held down a job only dated one woman in his life that I know of. Sounds more like Aspergers doesn't it? Only thing is he didn't sit and stim as far as I could tell and doesn't have the sensory issues like I do with noise, light, etc.

So I don't think there is an autism explosion. Ok maybe a few more than previously just because of environmental poisons and too many preemie births. But I think autism has been around for hundreds and thousands of years. Those people just either fell through the cracks, were cared for by family and hid from society, trudged through life as best they could, were misdiagnosed with something else or got murdered early in life by NT bullies who ganged up on them for being different.

I wouldn't be surprised if some women hung at the Witch Trials in Salem might have been autistic.

On another note I just recently read in New Jersey they are saying 1 in 94 kids is autistic. So they must have a lot of autistim specialists there right?


I'd be really leery of statistics like that. Reminds me of back when they used to diagnose every other problem kid as ADHD and put them on medication. Then they find out later on that the majority of them weren't ADHD, there were family problems that were stressing the kids or the teachers just wanted compliant kids that created no problems at all.

On the other hand, supposedly the high tech areas attract a lot of high-functioning people, so it is possible that there is now pockets where the ratio is much higher. Some one someplace else pointed out that the majority of people working at NASA fit the description of Asperger's.



kpupg
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15 Feb 2007, 5:33 pm

Ticker wrote:
I wouldn't be surprised if some women hung at the Witch Trials in Salem might have been autistic.


Interesting thought ...



Starr
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15 Feb 2007, 5:38 pm

It wouldn't surprise me at all, shadow projections onto the 'odd' ladies of the village. I'd probably have been strung up myself if I'd been there at the time.



paolo
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15 Feb 2007, 5:39 pm

Ticker wrote:
. But I think autism has been around for hundreds and thousands of years. Those people just either fell through the cracks, were cared for by family and hid from society, trudged through life as best they could, were misdiagnosed with something else or got murdered early in life by NT bullies who ganged up on them for being different.

I wouldn't be surprised if some women hung at the Witch Trials in Salem might have been autistic.



Apart from premodern labelling of eccentric and solitary people as possessed by demons (or divinities), as saints and witches. I suspect the a large percentage of inmates of asylums are autistic in one form or another. Same holds for many hoboes, bag ladies, cronic alcolists and also for some who have found a slot in paid activities like librarian, archivists, mechanics, programmers an the like, not requiring social interaction. I also have known very well a person 100% AS who has a chair of algebra in the universiy.

Herman Melvile, who was himsef probably autistic decribes an Asperger in "Bartelby the scrivener"



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15 Feb 2007, 6:09 pm

SteveK wrote:
Starr wrote:
paolo wrote:
For what concerns married people with autism I would like to do a special thread if possible.

I would be interested, should you decide to start that thread Paolo.

Same here!

same here


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15 Feb 2007, 8:13 pm

paolo wrote:
I have frequently read about an alleged increase of cases of autism both in the US and particularly in the Silicon Valley. There is surely an increase in Dxing due to a better understanding of the problem. But I haven’t seen attempts to extrapolate figures, with due consideration to the fact that, presumably, the percentages available are based only on children and young people in developed urban environment and that there certainly is a submerged mass of adult and old people who suffer of the condition without anyone knowing. Even here I have seen very few cases of people over 50. Would it be possible to start tackling the problem of old people in the spectrum, who may suffer more than anybody else?


It would be fantastic to try and do something like this. But since so many adult auties are undxed or, those who are diagnosed, aren't receiving aid from any agencies with which their dx would be on record, it would be extremely difficult to do an adult headcount.

The main reason they used kids, aside from the fact that's really where the focus has been on, is because it's easier to do a headcount of kids in school districts and health agencies. Especially now since more are being diagnosed and parents are really pressured to get them services like ABA, etc.

As for Silicon Valley though, as an area it does truly have higher autism rates. It's nerd haven and "nerdom" is definitely related to ASDs. Lots of Broader Autistic Phenotypes or high-functioning auties who have computer jobs out there and end up having their kids there.


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