My Son's Behavior is Infuriating, and Embarrasing

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CLMANSF
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25 Aug 2014, 2:21 pm

My son is 3. Autistic. I love him very much. I also have another child who is NT.

We are doing our best for our son. Therapy, biomedical alternative therapy, etc.

One problem is that his behavior is flat-out embarrassing at times. I take him to the pool, because he loves it. But now, he continually squeals. I know he doesn't have the language to say "hey this is great!" And although he is learning to talk and is verbal (on some level, anyway), at the pool he keep squealing and shrieking. It's embarrassing. I try to get him to stop; he won't. People start looking. Finally, I just took him home. Got sick of it. It's bad enough that other NT kids are saying "hey daddy, watch me", and that I am excluded from making friends with other parents with NT kids. But he has to shriek on top of it? I'm sick of it. I was so proud of my other kids. This little guy is adorable, but embarrassing. It's bad enough he won't respond when others people talk to him.

And then---the continual obnoxious stimming. Taking the vacuum cleaner apart for hours. Standing on the table swinging the light. Turning the TV on and off. Stepping on the garbage can pedal. Opening and shutting the door. Pushing out the window screen.

And then...the pinching. The scratching.

Don't get me wrong...he's cute, has a sense of humor, playful, affectionate....and he's trying so hard.

I guess I'm the monster here. I actually resent him for putting my family through all of this.

I'm tired of being embarrsed of his squealing and shrieking.

What kind of life he's going to have, I do not know.



kraftiekortie
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25 Aug 2014, 2:25 pm

All kids squeal, even NT ones.

Is your kid in an early-intervention program?

I understand your embarrassment. My parents were embarrassed by me, too. I was probably worse than your kid. I used to knock things off shelves. I used to SCREAM all night. I was nonverbal till age 5.

However, I am now 53 years old, independent, with a college degree and waiting to retire with a decent pension.

All hope is not lost.

Like I said, I could understand your embarrassment. No criticism here. But I wouldn't let this prevent me from allowing your son to interact with others.



Sweetleaf
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25 Aug 2014, 2:39 pm

Probably not a very good one if you don't attempt to be understanding and supportive about the fact HE HAS AUTISM, and will continue to have autism....he'll grow up feeling resented and like he's just a problem for everyone else, so very little sense of self worth most likely.

Also I did not know it was uncommon for 3 year olds to squeal and shriek in excitement, you resent him for putting your family through all this....well what about what he has to go through?

Sorry if that is harsh but you're going to need to make a lot of efforts to be understanding, get him help for things he needs help with....learn about autism, if he has stims that are harmful or very obnoxious maybe try to help him redirect to less disruptive/harmful stims but you have to be willing to work with him and find a way to handle embarrassment or what not you might feel if he acts strange and people judge you or him for it....maybe some therapy could help.


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25 Aug 2014, 2:45 pm

I don't think he sounds that bad to be honest.

Who doesn't like opening and shutting the peddle bin?

And there's nothing wrong with him playing with the vacuum cleaner.

I had a s**t upbringing but nobody ever stopped my behaviour, to the point that I didn't even realise there was anything wrong with me.

You ought to just let him be.

He's just a little boy, you f*****g tyrant!


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CLMANSF
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25 Aug 2014, 2:47 pm

kraftiekortie wrote:
All kids squeal, even NT ones.

Is your kid in an early-intervention program?

I understand your embarrassment. My parents were embarrassed by me, too. I was probably worse than your kid. I used to knock things off shelves. I used to SCREAM all night. I was nonverbal till age 5.

However, I am now 53 years old, independent, with a college degree and waiting to retire with a decent pension.

All hope is not lost.

Like I said, I could understand your embarrassment. No criticism here. But I wouldn't let this prevent me from allowing your son to interact with others.


Thank you for the reply and for sharing. And kudos to you for what you've accomplished.

Yes, my son, has ABA therapy, he goes to a school for autistic kids 1/2 the day, the other half he's at a NT daycare, and he's shadowed by an aide. We are also doing biomedical treatment...gluten free, dairy free, tons of blood/stool/urine tests, supplements, vitamins, etc. He's making progress with speech, pointing, eye contact. But he's light years away from mainstream kindergarten. I want the best for my child. I am deficient as a father in that I am embarrassed, and the stimming and sometimes damaging of my property, and the pinching/scratching is making me lose it.



CLMANSF
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25 Aug 2014, 2:50 pm

Sweetleaf wrote:
Probably not a very good one if you don't attempt to be understanding and supportive about the fact HE HAS AUTISM, and will continue to have autism....he'll grow up feeling resented and like he's just a problem for everyone else, so very little sense of self worth most likely.

Also I did not know it was uncommon for 3 year olds to squeal and shriek in excitement, you resent him for putting your family through all this....well what about what he has to go through?

Sorry if that is harsh but you're going to need to make a lot of efforts to be understanding, get him help for things he needs help with....learn about autism, if he has stims that are harmful or very obnoxious maybe try to help him redirect to less disruptive/harmful stims but you have to be willing to work with him and find a way to handle embarrassment or what not you might feel if he acts strange and people judge you or him for it....maybe some therapy could help.


Thank you for the reply. My wife and I are really trying. I hug him, kiss him, playing with him. But yes, I resent part of this. Yes, I must remind my self, about what HE has to go through. I try, but the squealing and shrieking at the pool made me just say "screw it", and I took him home.

Yes, I need tools to handle the embarrassment, and I need therapy. I'm just trying to find out what kind, and with who.

Thank you again.



kraftiekortie
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25 Aug 2014, 2:52 pm

If you continue to nurture him (perhaps being a little "looser" with him), he continues with ABA, and you continue to reinforce him when he's showing progress, it's quite possible that he, in two years, might be ready for a "mainstream" kindergarten.

You should go to the Parent's forum to swap notes with other parents--especially the subform which deals with conditions other than Asperger's/HFA.

Does he have any verbal speech at all?

Please understand the viewpoint of other posters. They have been hurt by their treatment at the hands of unsympathetic parents, etc.



Last edited by kraftiekortie on 25 Aug 2014, 2:53 pm, edited 1 time in total.

CLMANSF
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25 Aug 2014, 2:53 pm

babybird wrote:
I don't think he sounds that bad to be honest.

Who doesn't like opening and shutting the peddle bin?

And there's nothing wrong with him playing with the vacuum cleaner.

I had a sh** upbringing but nobody ever stopped my behaviour, to the point that I didn't even realise there was anything wrong with me.

You ought to just let him be.

He's just a little boy, you f*****g tyrant!


He is not "that bad", you are right. And I am failing to be a good father in some ways and do things right. Being a good father was so easy with my NT kids. I'm tired of being pinched and scratched and hearing him shriek at the pool. I am seeking out therapy to do better.

Thank you for the reply.



loner1984
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25 Aug 2014, 2:58 pm

Let me get this straight, he is 3 years old, and he can disassemble the vacuum cleaner ?. Sounds like a freaking MacGyver genius, if this is the case. :P



CLMANSF
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25 Aug 2014, 2:59 pm

kraftiekortie wrote:
If you continue to nurture him (perhaps being a little "looser" with him), he continues with ABA, and you continue to reinforce him when he's showing progress, it's quite possible that he, in two years, might be ready for a "mainstream" kindergarten.

You should go to the Parent's forum to swap notes with other parents--especially the subform which deals with conditions other than Asperger's/HFA.

Does he have any verbal speech at all?

Please understand the viewpoint of other posters. They have been hurt by their treatment at the hands of unsympathetic parents, etc.


It would be a dream come true for him to be in a mainstream kindergarten.

I will look at the parent's forum.

He says things like:

I want cookie
I want that one
I want mommy
I want to see mommy
I want no (This means no)
I see duck
I see dolphin
again (means throw me in the air and play with me)
that's blue (naming colors)
I want water because I'm thirsty
Hi Mommy
Hi Daddy
Put it back
I like fireworks, they're pretty
and so on...

So lots of naming things, and "I Want" type stuff. There is no two-way conversations or speech. The speech has improved with the biomedical treatment.

I am sympathetic, I love him, and I want to hear from people who have been hurt by people like me in my effort to know I must cope and do better.



Marybird
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25 Aug 2014, 3:01 pm

You need to start being proud of your son with the different neurology. He deserves that.



CLMANSF
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25 Aug 2014, 3:04 pm

loner1984 wrote:
Let me get this straight, he is 3 years old, and he can disassemble the vacuum cleaner ?. Sounds like a freaking MacGyver genius, if this is the case. :P


He take the canister apart, takes the hose apart, then puts the whole thing back, again and again and again and again...

He turns the ipad on, finds his app, and then does his games (mostly educational, like seeing an object and dragging the letters to name the object. (Example, the app shows a house and he drags H-O-U-S-E to the proper slots.

He turns on my electronic drums and fiddles constantly with the plugs and knobs and dials.

He loves toilet plunges and toilet bowl cleaners and mops.

He sees a sign or letters and will say "T goes Tuh!"

And so on.



kraftiekortie
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25 Aug 2014, 3:06 pm

If he's precisely three, he's not even a year behind in speech. He speaks "telegraphically," like most 2 to 2 1/2 year olds There are "normal' three year olds who don't speak that well yet, and "catch up" with the rest of the kids by the time they are in kindergarten.

I studied speech pathology and language acquisition.

At least he's speaking--that probably 3/4's of the battle won right there.

And he knows his letters.

I didn't speak at all when I was three.

I think you know that you should be a bit more patient with your son. If you overdo it, he might rebel into his own world.



Last edited by kraftiekortie on 25 Aug 2014, 3:11 pm, edited 2 times in total.

CLMANSF
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25 Aug 2014, 3:06 pm

Marybird wrote:
You need to start being proud of your son with the different neurology. He deserves that.


I am proud of how handsome he is, I am proud of his smile, his laughter, his sense of humor. And his intelligence. I am not proud of the stimming and shrieking and scratching and the pinching.



CLMANSF
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25 Aug 2014, 3:11 pm

kraftiekortie wrote:
If he's precisely three, he's not even a year behind in speech. He speaks "telegraphically," like most 2 to 2 1/2 year olds There are "normal' three year olds who don't speak that well yet, and "catch up" with the rest of the kids by the time they are in kindergarten.

I studied speech pathology and language acquisition.

At least he's speaking--that probably 3/4's of the battle won right there.

And he knows his letters.

I didn't speak at all when I was three.


He's turning four in just 3 months. Thank you for the encouragement.

I am grateful for the speech.

Do you know what he'd say "I want no" instead of no?

You've done very well, again, kudos to you.



kraftiekortie
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25 Aug 2014, 3:13 pm

I think, if you model for him, and the ABA therapist models for him, that he will acquire the proper grammar. Kids have a way of catching up if allowed to flourish.

He doesn't sound like he confuses pronouns. This means he is self-aware.

My mother was very hard at me at times. This has affected our relationship to this day.

I believe, if you don't offer a reason to rebel, that he'll continue to make progress.