Social Security Disability Review Worries

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As the title said above i'm on Disability because of how severe my aspie condition is when they diagnosed me. I cant maintain a job for long periods because of the loss of interest and when that happens to an aspie such as my self or others like me, I fail to preform and therefore would get fired which has happened before. I honestly believe now after having worked in different types of jobs that I can no longer maintain a steady job. Now jobs such as volunteering and being paid for a 3 -day event thing is fine because its usually short, sweet, and relatively very easy.

Now where's is the worry? Well it so happens I never ever received my paperwork for the disability review, which for me it's 7 years meaning my condition is set to never improve which I very well see it now then I did 7 years ago. In turn I never receive my monthly check and when Called my local SS Office they told me I was under Suspension (or is it No pay) until they receive said papers. I told them what happened on how I never got them and they could either put me off the suspension and re sent the papers ( or fill it out at their office) or keep me in it until they get it.

I didn't know you could lose Disability in the first place or there was a law making sure we are disabled. what got me worried more is what is on those papers and Honestly don't want to lose it because some higher up person might think I'm just lazy and faking it when I am not at all. Hell there is a reason I'm on disability that even I still don't know but the most basic answer I cant tell them is to just get to know me..you wont see it at first but then it will hit you like a ton of bricks which has happened to almost every person I meet in which they did see something but I dont know what...nor I want to know.

Here's the question for other people on Disability like myself...How bad is this paperwork and is it really as simple as other people have said to continue your disability ?? Because if I lose my disability I might have a nervous breakdown again.

I don't know how much right I have to complain since I live off SSI/SSDI, but they're really a nightmare to work with. They suck big time when it comes to paperwork and record keeping. I was just up for that same review. It's no big deal, and it was done over the phone. If you contact them and explain that you never received the form, they should resend it or let you or the person who handles your account (in my case, my mom does all the talking) do it over the phone. They just ask you questions about your "disability," things like "are you still experiencing symptoms?" They also ask about your income. How much you make from working, how much money you have in your bank account, things like that. Just so they know you're still unable to make a living because of your disability. If nothing's changed for you in terms of employment or finances, it should just be a quick thing to give them the info they need and have your case opened again. Anyway, like I said, they mess up their paperwork a lot, so you'll probably have to keep calling them or go to their office to get it straightened out.

AlexPhillips is correct. The U.S. Social Security Administration reviews a disability determination about every two years. Mine was also by telephone, but the SSA can require a new physician's diagnosis if the staffer who calls wants to confirm a recipient's answers especially because certain disabilities can be expected to improve over time (not always the case for AS). The SSA is required to encourage its recipients to try to return to work, but realize that, for most recipients, doing so is medically a long shot. Still, it can be very disturbing to have a review. For me, every review I had during the first 12 years before I received benefits, as well as this year after I received benefits, made me doubt myself and believe that they think I had lied. Don't let that feeling sidetrack you.

If the SSA sends written paperwork to a recipient and asks for the recipient to complete it, the best strategy for the recipient is to answer honestly and in detail about how the recipient is still experiencing symptoms and whether some symptoms are better or worse than they were previously. Getting a written review from a physician or other medical professional to confirm a disability is a good idea for the recipient.

I suspect that, because a recipient has an administrative-law judge's opinion that the recipient is disabled, the only legitimate ways the SSA can suspend or deny future benefits is by showing that the recipient isn't "playing along" (providing requested updated evidence, failing to get a requested updated physician's review or showing improvement which would change the disability determination).

So, speaking for myself, I would contact the SSA office and ask them to deliver a new set of the paperwork that they tried previously to deliver (they might even speed things up by offering to have you complete the paperwork over the phone), complete the paperwork ASAP (make and keep copies) and ask if there is a way to return the paperwork to the office quickly (like offering to fax it to their office). I would be nice and friendly, and answer their questions by describing how the symptoms have become worse than they were before (if they have, of course).

Good luck!

Found the vid, which describes my thought process (Like a blueprint) ....just not as extreme as the vid portrays. mine has more common sense in it, but his reaction is defiantly on point to mine when something important doesn't go right/as planned.

UPDATE: Ok, I didn't receive a call from them to day until my brother-in-law suggested I call them. I thought if I did; it might throw a monkey wrench in the whole process because they didn't give my a extension number or anything to get back to. So I called them only to find out they are closed because of MLK day.

That means tomorrow I'll be going with my older sister to their building to get all that sorted out and paper work done once and for all. call or no call from them.

I forgot to mention I have a disease related to lupus called antiphosoliptid (NOT spelled right) that makes by blood thick and MUST be on blood thinners for the rest of my life. Not sure if that was taken into account when I first got disability but I think its a good Idea to mention it now if not because after a recent blood test its shown that my blood has to be even Thinner now because (and there are records of this.) I have the HIGHEST antibody count my specialist has ever seen..which isn't a good thing at all which in turn would prevent me from working in most places.

let me paint a picture...

the average human being has about 20% antibodies.....I have 140% ( 7 times a much)

Basically I have a double whammy/ wombo combo against me should I get a job so I can earn a little something or give me something to do. (Yes I am also on medicare which all the more reason to get this sort this out ASAP)

over all I'm still scared/worried but a little more relaxed now that I see a little more the picture with me being a aspie on one hand and my blood disease on the other.

Maybe I'm just looking for someone to truthfully tell me if I should worry about it and its it going to be ok with my current condition. : /

Update 2: Ok I went to the SS office and when I got to them they said I missed the 60-day time frame window...I DIDNT KNOW there was even a 60-day time window!. I told the guy about how I was told a couple months back about being on the lookout for it and how I never got the mail. He eventually gives me the review form (the 10 page one) and case worker name and number and extension to call when I return the review completed, That's pretty fubar and I am now angry and scared and upset at the same time this happened. I NEVER EVER like getting behind on this type of stuff..basically i'm in full panic mode.

The questionnaire basically asked all my current diseases I have and last medical visits regarding any of them. last place of education within 12 months and training, etc. so I included my blood disorder since I am currently getting my blood drawn for it to be checked, and on the back describe why I am being late one this review which I wrote down on how I never got it in the mail after being told I was on the lookout for it and how I hate being behind on this kind of stuff.

So now I completed my form and having someone check over it to make sure I did it correctly...

Basically what do I do now after I return the form to the office? Should I bring my medicine bottles and medical bill for my blood when I do turn it in? When should I give this person a call?

If you are over the age of 18 and can fill out the paperwork yourself, all they require is your signature. If a family member or someone else filled it out for you, you would just sign and the other person would sign as Witness. It harkens back to the days of someone incapable of reading and writing who would sign an X and the person who could vouch for them provided their signature.