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random1
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03 May 2016, 6:54 pm

what i dont understand tho is that from what people said on here as long as you have repetitive behavior, obsessive interest, and routine you wont be diagnosed with pdd nos.
but i also had a language delay and i have a language impairment.

i also have social issues and the taking things literally and sensitive to sound.

is pdd nos atypical?

a mix of autism and aspergers together?
but i know at this point is kinda does not matter since the dsm 5 came out but im just wondering.


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kraftiekortie
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03 May 2016, 6:58 pm

PDD-NOS no longer exists, according to the DSM-V.

Before then, PDD-NOS covered a very, very broad range of autism. One could be quite functional while under that diagnosis; others were really quite severely affected.

In many cases, though, PDD-NOS meant that you didn't meet all the "requirements" for a diagnosis of Autistic Disorder--but that it was evident that you had some kind of "Pervasive Developmental Disorder."



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04 May 2016, 4:07 am

I feel I have PDD NOS. But I thought that meant Asperger's mixed with NT. I can easily recognize subtle body language from instinct, I get jokes and sarcasm, I make eye contact naturally, I have good TOM, I can lie at appropriate times (in other words I am good at being tactful), I don't have rigid routine, I don't have very good attention or memorization on obsessions, I don't stim, I can identify and express my feelings very well, I can naturally cope with a loving relationship...and there's probably a few more I can't think of at the moment.

But I am sensitive to loud noise, I get really anxious a lot, I am socially awkward, I have a few strange impulsive behaviours, I can get obsessions (with certain people), I feel uncomfortable and bored in most social situations, I used to have outbursts until I went on meds, I NEED time to myself, and did I mention I get anxious about things an awful lot.

So I feel I still qualify for an ASD, but there are an awful lot of common ASD traits I don't have.


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Khamul
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04 May 2016, 4:17 am

I was diagnosed with PDD-NOS last year due to late onset language development (or rather, with atypical autism, but that is the same as PDD-NOS, right?). My country uses ICD, where PDD-NOS is still a thing.

I haven't been able to find much info on PDD-NOS, but apparently it's many things. Most often, it's used for severe cases of autism where infantile or Kanner's autism doesn't apply. But then I have also read that many adults get diagnosed with PDD-NOS, especially if information about their childhood is lacking.

Nobody has all the autism/aspergers traits. I myself lack quite a few - meltdowns/shutdowns first and foremost, but also observable stims (I mostly just fiddle with stuff or doodle). You will need to talk to an psychiatrist (or the like) with experience in adults with autism/aspergers to get a clearcut answer (well, as clearcut as you can get with autism).

If you haven't taken it, I recommend looking at RAADS-R. It's a very long test which can tell you how many autistic traits you have. It's not a diagnostic tool, but if you score high, it's a big hint that you should talk to a professional about it.

http://www.aspietests.org/raads/



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04 May 2016, 6:40 am

http://www.nationalautismresources.com/pdd-nos-checklist.html

Does the link help?
From that I got 13 for Repetitive behaviors/interest, Communication/Language use: 8 and Social skills: 13

Also in atypical autism there are 3 very different subgroups; I'm closest to classic autism except very high resistance to change by meltdowns and very frequent body stimming...handflapped and jumped only when happy and maybe angry.


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mournerx
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04 May 2016, 10:00 am

Khamul wrote:
I was diagnosed with PDD-NOS last year due to late onset language development (or rather, with atypical autism, but that is the same as PDD-NOS, right?). My country uses ICD, where PDD-NOS is still a thing.

I haven't been able to find much info on PDD-NOS, but apparently it's many things. Most often, it's used for severe cases of autism where infantile or Kanner's autism doesn't apply. But then I have also read that many adults get diagnosed with PDD-NOS, especially if information about their childhood is lacking.

Nobody has all the autism/aspergers traits. I myself lack quite a few - meltdowns/shutdowns first and foremost, but also observable stims (I mostly just fiddle with stuff or doodle). You will need to talk to an psychiatrist (or the like) with experience in adults with autism/aspergers to get a clearcut answer (well, as clearcut as you can get with autism).

If you haven't taken it, I recommend looking at RAADS-R. It's a very long test which can tell you how many autistic traits you have. It's not a diagnostic tool, but if you score high, it's a big hint that you should talk to a professional about it.

http://www.aspietests.org/raads/


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04 May 2016, 11:51 am

I was diagnosed with PDD-NOS when I was three, but later on diagnosed with Asperger's when I was about thirteen.


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teksla
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04 May 2016, 4:04 pm

Khamul wrote:
I was diagnosed with PDD-NOS last year due to late onset language development (or rather, with atypical autism, but that is the same as PDD-NOS, right?). My country uses ICD, where PDD-NOS is still a thing.

I haven't been able to find much info on PDD-NOS, but apparently it's many things. Most often, it's used for severe cases of autism where infantile or Kanner's autism doesn't apply. But then I have also read that many adults get diagnosed with PDD-NOS, especially if information about their childhood is lacking.

Nobody has all the autism/aspergers traits. I myself lack quite a few - meltdowns/shutdowns first and foremost, but also observable stims (I mostly just fiddle with stuff or doodle). You will need to talk to an psychiatrist (or the like) with experience in adults with autism/aspergers to get a clearcut answer (well, as clearcut as you can get with autism).

If you haven't taken it, I recommend looking at RAADS-R. It's a very long test which can tell you how many autistic traits you have. It's not a diagnostic tool, but if you score high, it's a big hint that you should talk to a professional about it.

http://www.aspietests.org/raads/

When you were diagnosed what exact ICD 10 code was used??


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xile123
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08 Oct 2016, 2:49 pm

people would get diagnosed with pdd-nos if they didn't quite match autistic disorder or asperger syndrome.



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08 Oct 2016, 4:30 pm

random1 wrote:
what i dont understand tho is that from what people said on here as long as you have repetitive behavior, obsessive interest, and routine you wont be diagnosed with pdd nos.
but i also had a language delay and i have a language impairment.

i also have social issues and the taking things literally and sensitive to sound.

is pdd nos atypical?

a mix of autism and aspergers together?
but i know at this point is kinda does not matter since the dsm 5 came out but im just wondering.

I was diagnossed with it back in 2014.


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germanium
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09 Oct 2016, 1:46 am

I would have likely been diagnosed as PDD/NOS under DSM IV. My sensory issues are not very strong at all & don't have any of the traditional type autistic meltdowns as in falling down, kicking or screaming. My meltdowns are more of an emotional breakdown as in crying spells. My meltdowns sometimes last a quite a while though unlike the more traditional meltdown though. I need a lot of space socially & quiet time afterwards to recharge though. Hours & sometimes even days.

I have in times past went nonverbal for extended periods such as over 1 month when I was 19-20 years old. This was a very hard time in my life. My only verbal communication during this time was yes, no or I don't know. I almost perfectly stayed to myself during that time as I was uncomfortable in any social situation what so ever. I was very nervous so much so that one doctor that I went to near the time of that nonverbal episode wanted to put me on Dilantin which back then many doctors was using like a cure all. I refused that & I'm glad I did looking back as that drug requires blood tests because of possible organ failures that didn't seem to be known about at that time.

Intellectually I fell into the normal to below normal category with a few very bright spots but were mostly for naught as I found great difficulty in actual use due to other weak areas. This is a typical difficulty with PDD/NOS. Due to this I felt as though I was largely a factoid,. I could quote facts about my interests & demonstrate verbally an understanding of say like the inner workings of an engine but I was much too slow when doing actual work in those fields. My brain works much too slowly under pressure. I get overloaded & stressed easily. For me, I need to be given one task at a time in order to prevent the feeling of being overloaded. Truck driving actually fits these needs of mine as they only give me one dispatch at a time. The rest of my job is quite routine. I like having a dedicated run with little variance in order to minimize mistakes.



Pieplup
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09 Oct 2016, 3:10 am

Pieplup wrote:
random1 wrote:
what i dont understand tho is that from what people said on here as long as you have repetitive behavior, obsessive interest, and routine you wont be diagnosed with pdd nos.
but i also had a language delay and i have a language impairment.

i also have social issues and the taking things literally and sensitive to sound.

is pdd nos atypical?

a mix of autism and aspergers together?
but i know at this point is kinda does not matter since the dsm 5 came out but im just wondering.

I was diagnossed with it back in 2014.

I'm sensitive to sound. Despite what other people think. I also fit a good portion of the traits for Autism. I'm pretty sure it was a misdiagnosis, I fit the criteria for Asperger's Syndrome. The Diagnosticians are Just batty.


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I run a discord for moderate-severely autistic people if anyone would like to join. You can also contact me on discord @Pieplup or by email at [email protected]


teksla
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09 Oct 2016, 3:39 am

Pieplup wrote:
Pieplup wrote:
random1 wrote:
what i dont understand tho is that from what people said on here as long as you have repetitive behavior, obsessive interest, and routine you wont be diagnosed with pdd nos.
but i also had a language delay and i have a language impairment.

i also have social issues and the taking things literally and sensitive to sound.

is pdd nos atypical?

a mix of autism and aspergers together?
but i know at this point is kinda does not matter since the dsm 5 came out but im just wondering.

I was diagnossed with it back in 2014.

I'm sensitive to sound. Despite what other people think. I also fit a good portion of the traits for Autism. I'm pretty sure it was a misdiagnosis, I fit the criteria for Asperger's Syndrome. The Diagnosticians are Just batty.

PDDNOS is autism now (DSM 5) so it doesnt matter, although i do agree it is frustrating how you can diagnosed with PDDNOS even though you have AS/ASD


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Pieplup
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10 Oct 2016, 9:20 am

teksla wrote:
Pieplup wrote:
Pieplup wrote:
random1 wrote:
what i dont understand tho is that from what people said on here as long as you have repetitive behavior, obsessive interest, and routine you wont be diagnosed with pdd nos.
but i also had a language delay and i have a language impairment.

i also have social issues and the taking things literally and sensitive to sound.

is pdd nos atypical?

a mix of autism and aspergers together?
but i know at this point is kinda does not matter since the dsm 5 came out but im just wondering.

I was diagnossed with it back in 2014.

I'm sensitive to sound. Despite what other people think. I also fit a good portion of the traits for Autism. I'm pretty sure it was a misdiagnosis, I fit the criteria for Asperger's Syndrome. The Diagnosticians are Just batty.

PDDNOS is autism now (DSM 5) so it doesnt matter, although i do agree it is frustrating how you can diagnosed with PDDNOS even though you have AS/ASD
I know, I haven't got a diagnosis for DSM V yet. I haven't really had any problems getting services either.


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I am pieplup i have level 3 autism and a number of severe mental illnesses. I am rarely active on here anymore.
I run a discord for moderate-severely autistic people if anyone would like to join. You can also contact me on discord @Pieplup or by email at [email protected]


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10 Oct 2016, 11:29 am

random1 wrote:
what i dont understand tho is that from what people said on here as long as you have repetitive behavior, obsessive interest, and routine you wont be diagnosed with pdd nos.
but i also had a language delay and i have a language impairment.

i also have social issues and the taking things literally and sensitive to sound.

is pdd nos atypical?

a mix of autism and aspergers together?
but i know at this point is kinda does not matter since the dsm 5 came out but im just wondering.


I think my current dx is still PDD-NOS. It isn't a big deal to me one way or another. I was originally dx's with Aspergers, then the people at University of Michigan changed it. For me, part of the problem is lack of info about myself as a child from other people besides myself. Also, despite the fact that in a lot of way I was more inline with Kanners type, I did not have any speech delays at all even though I would go mute. For me, I think it came down to lack of speech delay and inadequate outside info about me as a child. The one guy at UofM did say he was not comfortable giving me a Kanners type dx as an adult. My dx age likely played a part as well, but how much? I dunno. PDD-NOS always seemed to me to be a bin to toss people who were spectrumy but no one could agree about what kind of spectrumy they are.


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10 Oct 2016, 3:57 pm

random1 wrote:
what i dont understand tho is that from what people said on here as long as you have repetitive behavior, obsessive interest, and routine you wont be diagnosed with pdd nos.
but i also had a language delay and i have a language impairment.

i also have social issues and the taking things literally and sensitive to sound.

is pdd nos atypical?

a mix of autism and aspergers together?
but i know at this point is kinda does not matter since the dsm 5 came out but im just wondering.

I have repetitive behavior, obsessive interest, and routine, and PDD-NOS was the very FIRST thing I was diagnosed with----but, I didn't pay my psychiatrist no mind, because he said adults didn't "get" (like one catches a germ) ADHD (what I went there, to discuss); that it was a children's disorder. The second "biggy" I was diagnosed with, was ADHD (different doctor); then, the last biggy, was Asperger's (yet another doctor)----with alot of other "little" things diagnosed, in between, to include Tourette's, Dyslexia, Anxiety, Seizures, etc. I feel the person who diagnosed me with Asperger's, got it right----because I've got practically everything on the list; and, that would totally negate a PDD-NOS diagnosis.

I would NOT say PDD-NOS is a mixture of Autism and Asperger's----I feel it's just the OPPOSITE, in that not enough symptoms are found for either of the "A" labels, ALONE; let-alone, in combo.

I would say that the only way it's atypical, is because it has the symptoms that are not typical, enough, for either of the "A" things.





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