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DaneClark
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28 Aug 2016, 1:54 pm

Ok, I'm going to start fresh again. 5 1/2 years ago I started having what I think are derealization symptoms that were caused by some vitamins I was taking to treat aspergers. I do feel healthier than I did before, but my executive functioning skills relied very heavily on aspie traits that my brain feels like it is no longer capable of, particularly this: http://www.myaspergerschild.com/2010/09 ... y.html?m=1

And this:
http://www.myaspergerschild.com/2010/09 ... y.html?m=1

It feels like all that stuff was messed up beyond repair and I really really really want it all back. And there are even more sides to this whole thing that are so complicated I couldn't even begin to describe them



somanyspoons
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28 Aug 2016, 2:06 pm

Dane, we can't help. If we could help, the advice you got the first time you posted this would have done so already. I can give you empathy. I can talk about my experience, but I can't fix you. It's hard for me to even help you remotely like this. Sometimes its just really important to see a professional face-to-face.

Vitamins don't cause derealization. They just don't. This is my professional self speaking. I've got a graduate degree in this stuff. The most they cause is diarrhea or a rash. There had to be something else going on at that point in your life. It might have been as simple as adulthood getting too real and you just closing down.

This is one of those cases where I say we need to refer on. A therapist can help you explore what happened when you shut down and how you can get your old coping techniques to work in your adult form. That's the only route. If you came into my clinic, I would get you down off of most of your supplements and have you focus on simplifying your lifestyle until it feels manageable. When you do that, you'll be more able to feel "grounded" and "in your body." It can happen. You just need to get off line and find some help in the real world.



DaneClark
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28 Aug 2016, 2:57 pm

Maybe it's not derealization, but it still feels like I've been chemically lobotomized. Could that still be caused by vitamins?



somanyspoons
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28 Aug 2016, 5:06 pm

DaneClark wrote:
Maybe it's not derealization, but it still feels like I've been chemically lobotomized. Could that still be caused by vitamins?


What are you taking? Or what did you take?



DaneClark
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28 Aug 2016, 5:24 pm

somanyspoons wrote:
DaneClark wrote:
Maybe it's not derealization, but it still feels like I've been chemically lobotomized. Could that still be caused by vitamins?


What are you taking? Or what did you take?


I was on methyl b12 shots for a while and I think that might have did it.



somanyspoons
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28 Aug 2016, 7:13 pm

OK. Well, let me put your mind at rest. Vitamin B 12 did not cause this, methylated or not. I understand that your symptoms happened at the same time, but it did not cause them.

For one thing, b vitamins would be LONG out of your system in 5 years. They simply wouldn't stick around so long.

You need to re-claim your autistic coping mechanisms on your own terms. Blaming them on a vitamin shot is useless.

On the other hand, if you have pernicious anemia, that really could cause this. A sense of things being "unreal" or like the world is "foggy" is a primary symptom. Guess what the cure for pernicious anemia is? The answer is vitamin B shots. People with this kind of anemia do not have the ability to absorb or form vitamin b molecules in their blood. It used to be fatal, but today we can treat it easily.

If at some point you went to one of those fancy (mostly-BS) autism doctors and they took your blood sample, and they discovered that you are low on B12, they could have reached the wrong conclusion. They could have blamed the low b12 on your autism instead of realizing that you were developing a case of pernicious anemia. They would have given you b12 shots for autism, and it would have effected you, but it would not be enough to cure the anemia. That would leave you with a feeling of being foggy or floating. Sounds very similar to depersonalization, doesn't it?

Again, I can't diagnosis this online. You need to get your blood tested. Its a simple test and its not a big deal to treat.



dianthus
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28 Aug 2016, 8:42 pm

DaneClark wrote:
somanyspoons wrote:
DaneClark wrote:
Maybe it's not derealization, but it still feels like I've been chemically lobotomized. Could that still be caused by vitamins?


What are you taking? Or what did you take?


I was on methyl b12 shots for a while and I think that might have did it.


Have you been tested for a MTHFR gene mutation? or suspect you might have one? It is very common and if you have it, you may have other problems associated with it that could be causing you to feel this way, like histamine intolerance.

If both your MTHFR genes are mutated, those methyl B12 injections might have been too high of a dose for you.

Please look into this, do some reading about this gene mutation and get yourself tested for it if you haven't already. I believe this might lead you to the answers you are looking for.



dianthus
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28 Aug 2016, 9:26 pm

I meant to add that some people with the mutation start to detox heavily once they are getting the right supplementation. The MTHFR genes essentially make or break your body's ability to detox so if you have a mutation you might not be able to detox normally. Over time a lot of junk builds up in your body and it can make you feel very hypersensitive to things. Then if you start getting the right supplements, which the mB12 shots might have been for you, your body suddenly starts trying to detox years worth of stuff and it gets overloaded. It can make you feel worse before it makes you feel better, especially if the dose was too high for you. Yes you might lose some of the hypersensitivity that you had before but also feel a lot of brain fog due to the detoxing. I can see how this might have made you feel the way you do, and how you might still feel this way even if it has been a few years since you had the shots.

Supplements are great, but even when you get the supplements your body needs the most, it can be tricky to find the right dose. Too much of a good thing can send your body into overdrive trying to process a backlog of things it wasn't able to do before it got the supplement. Most of the time one supplement will need support from other supplements, and possibly changes in diet or other lifestyle changes as well. It can be a process of tweaking things until you find what works for you.

http://www.jillcarnahan.com/2014/02/23/ ... -mutation/

bodyecology.com/articles/a-minimalist-guide-to-the-detox-gene-plus-5-quick-detox-tips

http://www.drfranklipman.com/a-story-of ... and-mthfr/



somanyspoons
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28 Aug 2016, 10:05 pm

None of this is relevant to someone who took this supplement 5 years ago. Please don't spread mis-information and fear. MTHFR modification is real, but its affects don't reflect what the OP is speaking to.

Just for the record though, the methyl form of b12 is the treatment for people who have the problems with methylization (That's the M in MTHFR.) So, getting these shots would treat it if he had this disorder, but only breifly. The affects would LONG be over by now. The famed "rebound" affect is supposed to happen when the metabolism of the affected person suddenly goes into overdrive when provided with the needed raw materials. Its not causing any damage that would be permanent, or permanent benefits for that matter.

This metabolism thing is set to be the next heavy metal chelation or MMS treatment for autism. Like all the cure-all's before it, while there is a small bit of truth in the hoopla, it is mostly hoopla. It's just not everything that its cracked up to me. And a lot of people are going to be making a lot of money scaring you into thinking that this is the cause of all of your problems.

*My source is 5 years of graduate school. I'm a licensed chiropractor. I also take continuing education and follow the latest research into herbs and supplements. This is my professional life. I can't let myself get caught up in this kind of debate on the internet. I could spend every day, all day arguing with people about miracle cures that they've "discovered." So, I'm going to back out and not comment on this thread anymore. You'all will make up your own minds, no matter what I say, anyways.



DaneClark
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29 Aug 2016, 4:58 am

I don't think this had to do with any genetic mutations. Alot of it feels like it has to do with synaptic pruning. It feels like alot of my synapses were pruned in weird ways.



kraftiekortie
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29 Aug 2016, 5:25 am

I believe, according to a researcher named Courchesne, that this happens because of accelerated brain growth in a child for up to 2 years of his/her life.



JakeASD
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29 Aug 2016, 6:38 am

I highly doubt that your difficulties were caused by vitamins. I myself have, and still do, struggle with feelings of derealization/depersonalisation. According to the many psychiatrists with whom I have spoke, my particular problems were - and are - caused by the irresponsible discontinuation of prescription drugs for anxiety and depression. I also believe that spending so much time in isolation can lead to feeling depersonalised. Without ever receiving validation from one's own kind, I believe many problems are likely to occur.


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DaneClark
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29 Aug 2016, 11:06 am

Maybe it wasn't caused by vitamins, maybe it's not derealization, who knows. What I do know is that it involves synaptic pruning, abstract freudian stuff, and searching for things that may not even exist



kraftiekortie
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29 Aug 2016, 1:44 pm

You would have been perfect for Freud circa 1900.



DaneClark
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31 Aug 2016, 11:21 am

I think the thing that I miss the most is being unconditionally hyper-rectice to emotionally arousing stimuli - that was the glue that held everything together for me. Of course even if I could get that back, there would still be the problem of all the abstract areas of my being being seriously glitched up



Qimera
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31 Aug 2016, 3:52 pm

There are innumerable and potentially life threatening problems that can result from low B12.

One problem: Low B12 can cause irreversible damage to the peripheral and central nervous system. (Including the brain)

It's possible that you're experiencing the fallout of your previously low B12 level rather than having an issue with the B12 shots themselves.

You might want to consider taking the occasional B12 tablet. Look for methylcobalamin tablets. If you get a strength of about 1000mcg or 500mcg then break them into halves and take one of those halves occasionally, maybe once a week. (Don't take folic acid or folate if your B12 levels are low - folate and B12 are synergistic but folate without B12 ramps up what is probably already high homo-cysteine levels - a nerve toxin)

Cobalamin (B12) is interesting insofar as it requires a mix with your saliva in order to (tag) make it far enough into the digestive system that your intrinsic factor can work on it. (Assuming you don't have a problem with your intrinsic factor "IF") So make sure you dissolve the B12 tablet under your tongue assuming your "IF" system works.

It's also possible that the B12 shots you were taking are "cyano-cobalamin", that's actually a cheap charcoal cyanide base for the B12 and it may have caused an issue?

B12 is is one of those "damned if you do, damned if you don't" problems as you'll discover the more you research it.

If you have B12 problems then you need to get clued up on this right away and deal with it on your own because common doctors are just...a waste of space in my opinion. Most doctors wouldn't even know what cobalamin was if you asked them, never mind tie that up with symptoms during an attempted diagnosis. I'm utterly astounded - or not - by the complete ignorance and scientific lacklustre I've experienced with doctors and so I'm my own doctor because nobody else gives a damn about me, that's for sure.

Lastly, B12 levels can't easily be measured by just a "B12 test". It's important to test using other methods such as the homo-cysteine test and you have to DEMAND those tests and the results. Don't trust and put your life in anyone else's hands because they'll chalk up your death as nothing more than an "unusual cardiac event" or "unknown neurological pathology" and sweep your existence under the rug once their ignorance has killed you. They don't give a damn.

Bit of advice also. B12 stimulates blood production so you might want to take some iron supplementation also. Furthermore, blood and iron requires potassium so potatoes, tomatoes and bananas are a good thing to eat.

Last bit of advice. You'll read that you can't overdose on B12. That's crap. The body will reject B12 when its had enough. That rejection comes in the form of symptoms...and guess what those symptoms are...B12 deficiency. Seriously, you can experience the symptoms of B12 deficiency by having too much B12. Don't overdose on the stuff. You just need to get your body at a nice level and keep it there with tiny bits of B12 occasionally. B12 DOES stay in your system for years because your body can recycle the tiny quantity that it has in storage.

Finally. Apologies if I frightened you with the first paragraph and the "irreversible damage" bit but...we are living a real life...not just a fantasy. I ain't gonna BS you on just how life threatening low B12 levels can be. You need to find out exactly what "conditions" you may have and learn to treat it appropriately.