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ENFPwithADHD
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10 Apr 2018, 6:59 pm

I am a mom to a wonderful little 3-year-old boy on the spectrum.

Today I was talking with a co-worker and mentioned my son was autistic, and she scolded me and said, "No, your son has autism. Saying he's autistic implies that all he is his disability." I actually felt ashamed for calling him autistic and apologized to her.

Later in the day I googled "person with autism" and actually found quite a few blog posts and tweets from people on the spectrum themselves saying they hated what I learned was called "person first language" because it insinuated that autism was separate from who they were.

So I guess I am confused and can see both sides - yes, people on the spectrum are PEOPLE too, and autism doesn't encompass their full being... and yes, autism is also an inextricable part of who they are.

Those of you on the spectrum, which do you prefer? "Person with autism", or "autistic"? I don't want to be offensive, but I am legitimately confused as to which terminology I should be using...



Aristophanes
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10 Apr 2018, 7:21 pm

There's no right or wrong, just use what you want. If you know someone is a stickler for their terminology, just use that terminology around them and go about using the words that feel comfortable for you when you're not around them.



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10 Apr 2018, 7:28 pm

How the F does saying he is autistic means he has a disability but saying he has autism doesn't .

I'm autistic because i HAVE autism :lol:


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ENFPwithADHD
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10 Apr 2018, 7:36 pm

SaveFerris wrote:
How the F does saying he is autistic means he has a disability but saying he has autism doesn't .

I'm autistic because i HAVE autism :lol:


Haha! Exactly! Hence my confusion. :roll:



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10 Apr 2018, 7:37 pm

My assessment states that some of the things I do are "more neurological than personality driven". Which, I suppose, essentially means that it's nature rather than nurture. And many of those things that it talks about aren't really good things - I guess that's why it's considered a disorder.

That said, Autism is part of who I am, regardless of whether it's neurological or personality. There's certainly a lot more to me than just my ASD, but to take away the ASD would change who I am. And, while there are many aspects of my life that I wish were easier than they are, I don't want to change who I am.

Based on that, since I do define it as part of who I am, does that mean that I should prefer "Autistic"? Or does the fact that I consider myself to be more than just my ASD mean that I should prefer "Person with Autism"?


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robbrucejr
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10 Apr 2018, 7:44 pm

I think "autistic person" makes more sense, from a purely conversational standpoint. We don't say "a person with left-handedness," we say "a left-handed person." We don't say "a person with extroversion," we say "an extroverted person." We don't say "a person with athleticism," we say "an athletic person." All of those are characteristics of a person's neurological or physical make up, in the same way autism is a characteristic of mine. Autistic is simply an adjective describing a noun, the person. It's the most efficient way to say it, certainly. Saying "a person with autism" makes no sense to me, perhaps because I try to picture a person sitting next to autism on the sofa. So, for the sake of those of us with exceedingly literal interpretation, I vote for "autistic person." :D



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10 Apr 2018, 8:28 pm

I couldn't care less about how it is phrased. In my experience that seems to apply to most of us who were diagnosed right away due to severity. It seems to be a thing those with very mild autism and those who aren't autistic harp on, and go on about how autism isn't a disability. The person who scolded you, the mother of an autistic child, saying "No, your son has autism. Saying he's autistic implies that all he is his disability" is out of bounds and full of hot air. I am astonished by such audacity.



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10 Apr 2018, 9:11 pm

Let me get this straight, you’re raising a boy on the spectrum and some random coworker is lecturing you on how you should refer to your son’s autism? If I referred to myself as being autistic and some neurotypical lectured me and said I should refer to myself as a person with autism, I’d tell them to go f**k themselves. And I’m not usually like that. Sorry, but I’m angry on your behalf over that. You just raise that child and you don’t look back when you have to deal with people like that. Don’t pay them any mind.

Having put that aside, I don’t think there’s a preferable way refer to somebody with autism. The truth is that person SORT OF has a point. Not about the disability part. Here’s the way I’d consider it....you could refer to somebody as an Aspie and you are sort of implying they have minor autism (no such thing, but that’s of the implication). “He has high functioning autism” would be the next level. After that would be person with autism, followed by “he’s autistic” and finally perhaps implying the “worst” autism, “that man’s an autistic.”

So I’m basically saying, “an autistic” would probably be the one that the general public would consider the “rudest” because it’s the strongest term to refer to somebody with autism. It’s sort of like referring to a person who is gay as a “queer”. That’s an acceptable term for a gay person, but it’s sort of considered less flattering than “gay”.

Having said that, guess what I want people to refer to me as? I want to be referred to as an autistic. If somebody is curious about my autism and wants to ask me about it, I’d say, “Well, as an autistic I....” The reason why is I’ve decided to embrace my autism and not be ashamed up it. I also want people to know that having autism is a challenge so that even though I’m obviously “high functioning”, I am working extremely hard to achieve some goals that are hard even for a high functioning autistic such as mysel.

When your boy is old enough,he can decide for himself how he’d like people to refer to him and his autism. Let’s hope by the time he’s well into adulthood, people are more accepting of him regardless of what autism is referred to by then.

Sorry for being convoluted, but I hope that make sense. Don’t feel ashamed to say your child has autism, and don’t let his autism limit what he can achieve (within reason).



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11 Apr 2018, 1:46 am

I prefer “Autistic” or “Autistic person”. My autism and my personality are so fused together it is pointless to try and seperate them.

If a person says “I am Italian” or “I am Jewish” or “I am gay” and they live in the United States it is generally understood that they are American, it is not generally implied that they think of themselves as Italian, Jewish, or gay ONLY. But somehow that assumption is not made with autism, if you say that you are autistic a lot of people assume you are defining yourself completly by your disability. I have gotten corrected a number of times by these well meaning language police telling me how offensive “Autistic” is. First of all doing this type of language correction is rude. Second of all it is offensive that they demand I use “person with autism” because they think they know better than I do what I should consider offensive.

Hopefully when your son is ready to describe himself this language policeing madness will be a thing of the past. Until that time stand your ground.


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11 Apr 2018, 2:02 am

Personally, I don't care. Much ado about nothing.


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11 Apr 2018, 6:26 am

ASPartOfMe wrote:
I prefer “Autistic” or “Autistic person”. My autism and my personality are so fused together it is pointless to try and seperate them.

If a person says “I am Italian” or “I am Jewish” or “I am gay” and they live in the United States it is generally understood that they are American, it is not generally implied that they think of themselves as Italian, Jewish, or gay ONLY. But somehow that assumption is not made with autism, if you say that you are autistic a lot of people assume you are defining yourself completly by your disability. I have gotten corrected a number of times by these well meaning language police telling me how offensive “Autistic” is. First of all doing this type of language correction is rude. Second of all it is offensive that they demand I use “person with autism” because they think they know better than I do what I should consider offensive.

Hopefully when your son is ready to describe himself this language policeing madness will be a thing of the past. Until that time stand your ground.


Where are you getting corrected in terms of how you refer to autistic people? Is that here, or is that in social situations with NTs who are being "language police" in terms of how you refer to yourself and your own disability?



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11 Apr 2018, 8:13 am

AspieSingleDad wrote:
ASPartOfMe wrote:
I prefer “Autistic” or “Autistic person”. My autism and my personality are so fused together it is pointless to try and seperate them.

If a person says “I am Italian” or “I am Jewish” or “I am gay” and they live in the United States it is generally understood that they are American, it is not generally implied that they think of themselves as Italian, Jewish, or gay ONLY. But somehow that assumption is not made with autism, if you say that you are autistic a lot of people assume you are defining yourself completly by your disability. I have gotten corrected a number of times by these well meaning language police telling me how offensive “Autistic” is. First of all doing this type of language correction is rude. Second of all it is offensive that they demand I use “person with autism” because they think they know better than I do what I should consider offensive.

Hopefully when your son is ready to describe himself this language policeing madness will be a thing of the past. Until that time stand your ground.


Where are you getting corrected in terms of how you refer to autistic people? Is that here, or is that in social situations with NTs who are being "language police" in terms of how you refer to yourself and your own disability?


Mostly in comment sections of Youtube or blogs dealing with Autism topics. Not only me. But in those sections when that happens the language policer get a very strong backlash.

Autism as a has really never come up in casual conversations with NT’s.

Slightly off topic but the topic that gets seems to get personal and hostile most often is ABA especially blogs by ABA opponents.


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11 Apr 2018, 5:33 pm

https://en.wikipedia.org/wiki/People-fi ... #Criticism
I've seen one course on disability and education where the students would lose points for using anything but "person with autism." In my opinion whoever decided that should have rearranged the deckchairs on the Titanic instead, as that was much more important, and less cumbersome. Put me down as a "don't care."



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11 Apr 2018, 7:59 pm

My personal preference is to use "autistic", but so long as people behave with mutual respect, I wouldn't ever make a fuss about it, and I'll use other phrases if it makes a sentence easier to understand. My reason for the preference is much as robbrucejr said; linguistics rather than anything idealogical. I find 'person-first' language sounds unnatural and forced to my ear, and the use of "with" seems to imply that there is a possibility of "without", which makes no sense to me for an innate condition.


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11 Apr 2018, 11:17 pm

I like to say 'autistic person' about myself and others. 'With autism' makes it sound like a disease. I like to use the word 'person' to emphasise that we are people more than anything.

I intensely dislike people who feel the need to micromanage people who themselves are autistic or live with someone who is autistic. You are the expert on this, not your colleague.

I would politely ignore her, but hey, I'm no expert on social skills :mrgreen:


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12 Apr 2018, 2:27 am

ToughDiamond wrote:
https://en.wikipedia.org/wiki/People-first_language#Criticism
I've seen one course on disability and education where the students would lose points for using anything but "person with autism." In my opinion whoever decided that should have rearranged the deckchairs on the Titanic instead, as that was much more important, and less cumbersome. Put me down as a "don't care."


When person first language is mandated or strongly suggested it is a problem. This is an issue in the education system. Journalism has these guidelines but in the last few months I have seen “Autistic” used a lot more in headlines and articles.

This below and the examples above are scary with a lot of elements of “1984”
https://odr.dc.gov/page/people-first-language
Quote:
The People First Respectful Language Modernization Act of 2006 was enacted by the Council of the District of Columba on July 11, 2006 to “require the use of respectful language when referring to people with disabilities in all new and revised District laws, regulations, rules, and publications and all internet publications.”


I have rarely seen language policing done to try and force identity first language. Maybe on Tumblr that happens,


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“My autism is not a superpower. It also isn’t some kind of god-forsaken, endless fountain of suffering inflicted on my family. It’s just part of who I am as a person”. - Sara Luterman