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Worried about the lack of info on early childhood

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firemonkey
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06 Mar 2019, 4:07 am

I'm due my 3rd assessment on the 13th. One thing that really worries me is the lack of info on early childhood(0-3). I only have my father who is still alive for info about that period (both my brother and sister being younger than me) who has already stated several years ago,when he was 86, that his memories of that time are rather patchy.

This makes me think I might get a 'no' based on the lack of info on early childhood .



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06 Mar 2019, 8:54 am

firemonkey wrote:
I'm due my 3rd assessment on the 13th. One thing that really worries me is the lack of info on early childhood(0-3). I only have my father who is still alive for info about that period (both my brother and sister being younger than me) who has already stated several years ago,when he was 86, that his memories of that time are rather patchy.

This makes me think I might get a 'no' based on the lack of info on early childhood .


I've never cared about having an official diagnosis, but I had your problem when I was researching the possibility of being on the spectrum. Since my parents were long dead, I went back to my own memories of my childhood and adolescence. That nailed it for me, since one of my earliest memories was from age five. Old memories still keep cropping up that are very non-neurotypical.



AceofPens
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06 Mar 2019, 9:41 am

I wouldn't worry about it. My mom lied and covered up a bunch of stuff in my assessment to ensure that I was diagnosed high functioning (she worried that I wouldn't qualify as such). Because of that, all of the early signs, especially from my infant and toddler years, were left out entirely. I was still diagnosed.


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kraftiekortie
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06 Mar 2019, 9:44 am

I feel like you will get the diagnosis.



firemonkey
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06 Mar 2019, 10:04 am

kraftiekortie wrote:
I feel like you will get the diagnosis.



You're a lot more confident than me. My father's input about my early childhood can be summarised as : Watched a lot of tv/self taught to read before aged 4/badly coordinated and had problems getting off to sleep.



kraftiekortie
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06 Mar 2019, 10:07 am

I believe they would understand that an 86-year-old person would have fuzzy memories of things that occurred in the 1950s.



MattInMacc
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06 Mar 2019, 1:22 pm

I got diagnosed last year without any input from my parents (who are in their late 70's). It was not a problem with the diagnosis and they understood that my parents were not likely to remember much, but there is a passing remark in the diagnosis report about them not being involved.

I did have all of my old school reports and they used those - not sure they really wanted that much detail but I gave them to them anyway.

As they diagnose more and more people who are adults I guess they are going to have to deal with no parental input.


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06 Mar 2019, 1:28 pm

If I ever get evaluated I would have the same issue because I was raised by my grandmother and she has passed on. My aunt's and uncle's and my old school reports might be useful though.


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firemonkey
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06 Mar 2019, 6:35 pm

Comments from my sister.


Quote:
With a c3.5 year age difference and the fact that Tim went to boarding school when I was about 4, I was not really aware of Tim’s behaviour being particularly different until he was about 7 or 8. From what I heard from my parents however, from the age of about 4 he started to become more quiet and perhaps withdrawn.




Quote:
Interestingly Tim could be quite obsessive over certain things- like collecting baseball/ football cards even though he had no interest in playing the sport.



Quote:
Tim was always very shy and quiet, and did not typically join in play with our other brother and me - I think partly because he did not seem to be able to engage in imaginary play, and found it difficult to truly ‘play’ as we did. To be honest I don't know how much it ever really bothered him - I don't ever recall him asking to join in, he seems much happier to do his own thing.


Quote:
As Tim grew to his teenage years he became more socially awkward and reclusive. It was around this time that he was badly bullied at boarding school due to not being a ‘normal’ kind of teenage lad.


Quote:
Tim was always very intelligent, and when younger was quite obsessed with facts an figures etc.


Quote:
I truly think he finds it impossible to multi task .



Quote:
He had no close friends in childhood or his teenage years that I am aware of.
When he was home from boarding school Tim again preferred to spend much of his time alone.



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06 Mar 2019, 7:08 pm

Was in the same situation as you, Firemonkey.

Was diagnosed in middle age a couple of years ago. One parent was long dead, and the other was in a home with alzeheimers. Niether could come in to be interviewed. They only had my sister, and a long time friend to interview, but they still diagnosed me (correctly IMHO) with aspergers.