Seeking guidance: new Dx: (ASD)+ Now: ADHD + Dyslexia
Hi all-
I hope this is the correct forum/ sub-forum to post in. It wasn't really clear- so I pre-apologize.
In the last week- I got the rest of my neuropsychological profile; I have ADHD-type I (which in the past was called ADD) and Dyslexia.
The dyslexia dx was a real shock. I have always known I'm an atrocious speller, but I just put that down to a personal failing and always understood dyslexia to mean that letters sort of 'dance'- my fault. I should I researched it better. Can any of you all help me make sense of it? I know it would affect everyone differently, but I am a relatively quick reader, and love to read. But there is no doubt in my diagnosis.
While I don't put much stock into it, I also got my IQ scores-- and apparently did very well in both the "math" and "verbal" sections, including the reading, writing, reading comprehension, and associated portions. I did horribly (and I mean 5-30 percentile) in anything that was "made-up words- peouncounced" and spelling and some sections of Processing Speed and Working Memory. But overall, I scored a 130. I did much better in some bits, and worse in others. (As I am told everyone does.) I will also admit I took these tests on a really bad brain day. I didn't get any sleep the night before, I was really anxious, and I have been plagued by some serious flashbacks. (Also Dx- 'likely' PTSD-- that one I knew). They also verbally referenced something called "twice-exceptional" and then looked guilty (I can't tell, I don't read facial expressions well and behind a mask it's worse)? I googled it, and I don't really get it anyways.
The doctor that did all of my testing recommended that I start by going and get medicated for the ADHD-- as a child I was medicated for about 16 months and it changed my life for the better, but then my father decided that medication was evil.... and I had to struggle alone. I'm now an adult, and want to try medication, my attention is horrible now- especially at work and during my leisure hours- but how do I find a doctor I can trust? What are they key things to look for? I already have coping skills that work- I have managed well (25,F, USA, high level Geochemist, full time employment, B.S., likely seeking to go for my PHD fall 2021). What do I ask them to make sure they will work with me on finding a medication + (and or medication dosages) that works for me? How do I find a doctor who won't tell me to try 40 hours of therapy (which given the hours I work I don't have the time for) before they consider medicating me or a doctor who tells me they think that I should be able to "tough it out"? I don't care if I have to self-pay- I'd rather do that, I paid for my eval out-of pocket, a luxury I know few can afford.
Thank you.
Dyslexia is a complex thing. Do you try to spell phonetically and get it wrong? Do you have difficulty reading new words out loud? Those are symptoms of dyslexia. I am likely dyslexic (or just really bad with words). You certainly can compensate for the condition, many do. Dyslexics can also have some advantages in visual and spatial processing, so it is not all bad. Particularly with mode of communication that are visual rather than textual.
PS, I also love to read and can read quickly.
I hope this is the correct forum/ sub-forum to post in. It wasn't really clear- so I pre-apologize.
In the last week- I got the rest of my neuropsychological profile; I have ADHD-type I (which in the past was called ADD) and Dyslexia.
The dyslexia dx was a real shock. I have always known I'm an atrocious speller, but I just put that down to a personal failing and always understood dyslexia to mean that letters sort of 'dance'- my fault. I should I researched it better. Can any of you all help me make sense of it? I know it would affect everyone differently, but I am a relatively quick reader, and love to read. But there is no doubt in my diagnosis.
While I don't put much stock into it, I also got my IQ scores-- and apparently did very well in both the "math" and "verbal" sections, including the reading, writing, reading comprehension, and associated portions. I did horribly (and I mean 5-30 percentile) in anything that was "made-up words- peouncounced" and spelling and some sections of Processing Speed and Working Memory. But overall, I scored a 130. I did much better in some bits, and worse in others. (As I am told everyone does.) I will also admit I took these tests on a really bad brain day. I didn't get any sleep the night before, I was really anxious, and I have been plagued by some serious flashbacks. (Also Dx- 'likely' PTSD-- that one I knew). They also verbally referenced something called "twice-exceptional" and then looked guilty (I can't tell, I don't read facial expressions well and behind a mask it's worse)? I googled it, and I don't really get it anyways.
The doctor that did all of my testing recommended that I start by going and get medicated for the ADHD-- as a child I was medicated for about 16 months and it changed my life for the better, but then my father decided that medication was evil.... and I had to struggle alone. I'm now an adult, and want to try medication, my attention is horrible now- especially at work and during my leisure hours- but how do I find a doctor I can trust? What are they key things to look for? I already have coping skills that work- I have managed well (25,F, USA, high level Geochemist, full time employment, B.S., likely seeking to go for my PHD fall 2021). What do I ask them to make sure they will work with me on finding a medication + (and or medication dosages) that works for me? How do I find a doctor who won't tell me to try 40 hours of therapy (which given the hours I work I don't have the time for) before they consider medicating me or a doctor who tells me they think that I should be able to "tough it out"? I don't care if I have to self-pay- I'd rather do that, I paid for my eval out-of pocket, a luxury I know few can afford.
Thank you.
_________________
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I am pieplup i have level 3 autism and a number of severe mental illnesses. I am rarely active on here anymore.
I run a discord for moderate-severely autistic people if anyone would like to join. You can also contact me on discord @Pieplup or by email at [email protected]
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