How much it affects me 10/10, 24/7. It affects every aspect of my life, probably down to every single thought.
How different it makes life for me from other peoples’, 9/10. I cannot work, drive, or be fully independent, probably ever. I have never had my diagnosis questioned and only once that I remember ever gotten the “you must be high-functioning” comment. Seems to be pretty obvious to people that something is “off” about me right from the start.
How disabling, 7/10. Sensory issues and speech/communication issues greatly affect my everyday life (negatively) and are very limiting, but it could certainly be worse. Probably also other things like depression and anxiety are at least partly due to my autism, directly or indirectly.
As a side note, since this is also being discussed, I was diagnosed with Asperger’s syndrome when I was in fourth grade, but my parents thought that only meant that I was shy, smart, and didn’t like loud noises. So I spent most of my life being held to NT standards and told that I was lazy, not trying hard enough, and/or didn’t care (yes, told in exact words) when I couldn’t meet them, and had little in the way of support or accommodations. By today’s standards, I would probably be diagnosed as ASD level 2 (not 1). Not sure if my autism has gotten stronger or if it’s just become more apparent with changing life circumstances.
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Yet in my new wildness and freedom I almost welcome the bitterness of alienage. For although nepenthe has calmed me, I know always that I am an outsider; a stranger in this century and among those who are still men.
-H. P. Lovecraft, "The Outsider"