Judge Rotenberg Center table at ABA conference again
ASPartOfMe
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ASAN - Action Alert: ABAI endorses torture, and we can’t let them rest
One of the JRC’s presentations at this conference specifically focuses on the merits and ethics of the electric shock device. This means that ABAI is more than complicit in the abuse taking place at the JRC: they are actively endorsing these practices.
This year, the ABAI conference is being held in Boston from Thursday, May 26 through Monday, May 30th. Once the conference starts, let’s flood their hashtags, #ABAIBoston #ABAI2022, with the truth about the JRC and ABA, and demand that ABAI denounce the JRC and remove them as a sponsor, vendor, and presenter, Use the hashtag #StopTheShock to let them know that their active endorsement of torture will not go unnoticed.
You can use our updated fact sheet to explain why this is unacceptable and fight back against the JRC’s twisted words. Urge the leadership of ABAI to stand against the use of this device at the Judge Rotenberg Center, an institution that has been at the center of controversy for many years because of its continued use of this torture.
_________________
Professionally Identified and joined WP August 26, 2013
DSM 5: Autism Spectrum Disorder, DSM IV: Aspergers Moderate Severity
“My autism is not a superpower. It also isn’t some kind of god-forsaken, endless fountain of suffering inflicted on my family. It’s just part of who I am as a person”. - Sara Luterman
ASPartOfMe
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Location: Long Island, New York
ASAN Applauds the House for Passing a Bill To #StopTheShock
In 2020, after decades of advocacy from disability advocates, the FDA banned the use of electric shock for behavior modification. Unfortunately, the FDA’s ban was struck down on technical grounds in 2021. Now, people with disabilities are relying on Congress to fix this problem and ban the use of these harmful devices. The bipartisan effort to #StopTheShock was included in the House bill.
The passage of the House Bill was preceded by crucial pressure at the state level through the introduction of a bill in the New York state legislature that would ban New York State from sending people with disabilities to the Judge Rotenberg Center. On Wednesday, May 4th, Sen. Jabari Brisport & Am. Harvey Epstein stood with disability rights advocates in announcing new legislation targeting facilities that use electric shocks on people with disabilities.The bill, “Andre’s Law,” is named in honor of Andre McCollins, a survivor of electric shock torture and other forms of aversive conditioning. Andre’s Law resulted in a huge state mobilization, the type of pressure that is key to finally putting an end to this barbaric practice. While the New York state legislature entered recess before the bill could be passed this term, the widespread, bipartisan support Andre’s Law garnered indicates the importance of similar legislation at the federal level.
We call on the United States Senate to include an amendment to ban the use of electric shock devices used to “treat” self-injurious or aggressive behavior in their version of the bill. For decades, our community has advocated to ban the use of these devices, which are now only used on people with disabilities at one institution. We are not alone in this fight; in 2019, over 290,000 people signed a petition in support of the ban and 244 organizations signed on to a letter urging the FDA to finalize its rule to ban these devices. These thousands of people are still waiting for a meaningful end to the suffering of our community members at the Judge Rotenberg Center.
ASAN will not rest until no one is subject to electric shock torture. For the ban to pass into law, we need the Senate to pass their version of the bill, the FDA Safety and Landmark Advancements Act, with an amendment banning electric shocks. Advocates can use our action alert to call on the Senate to act swiftly. The safety and independence of our community is on the line – now more than ever, we must let those who represent us know that there will be nothing about us without us.
Action Alert: Congress has the power to #StopTheShock
In the link there is a call in script and a link to have somebody make a proxy call for you.
_________________
Professionally Identified and joined WP August 26, 2013
DSM 5: Autism Spectrum Disorder, DSM IV: Aspergers Moderate Severity
“My autism is not a superpower. It also isn’t some kind of god-forsaken, endless fountain of suffering inflicted on my family. It’s just part of who I am as a person”. - Sara Luterman
Humour on ( the dark sort)
Perhaps the rotten burgh centre needs to refocus it's business and offer its shock devices to the kink scene where the pain can at least be enjoyed Consensually as kink play by adults rather than ensured non Consensually by children.
On the other hand, the focus on consent in the kink scene would have the application rejected owing to history of non consent and abuse of children.
Growing up, my parents have been ABA oriented and kind of strict in normalizing me, but I'm sure that even they would be horrified at how JRC treats children and adults with autism. Thank God I never had to go through this torture. I just got an email from ASAN urging me to call my senators to #StopTheShock once and for all,
The Governor of my Freer State of Florida Ron DeSantis endorsed and passed a state bill restraining restraints in schools and care center facilities in Florida.
https://floridianpress.com/2022/03/desa ... -students/
The bill passed two weeks ago. But there is still work to be done. One of the few things I liked about the Obama Administration's DOJ was their forced closure of restrictive institutions, particularly in the first few years of his first term until groups like the VOR jumped into the fray. But now for the DOJ, the War on Drugs and now the January 6 "Insurrection" and parents protesting against CRT in schools (with the specific purpose of intimidating political opponents) are the top tasks above all others for Merrick Garland. He won't even bat an eye to Jennifer Musmba's testimony to her nightmare. The DOJ, not just the FDA, can and has the power to respond to this by not only shutting down the JRC once and for all, like the Obama Admin's DOJ did with some other restrictive institutions, but also ban the use of any form of shock therapy for any reason at schools, facilities, and homes for the developmentally disabled, specifically autistics like us. The DOJ has the power to #StopTheShock once and for all.
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RAADS-14 score is 23.
ASPartOfMe
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Joined: 25 Aug 2013
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Location: Long Island, New York
House Approves Ban On Electric Shock Devices For Those With Developmental Disabilities
The U.S. House of Representatives voted 392 to 28 last week to approve the Food and Drug Amendments Act, a broad bill reauthorizing programs at the Food and Drug Administration. Tucked inside the legislation is a provision that would put an end to the use of what are known as electrical stimulation devices, which send shocks through electrodes attached to the skin in order to condition people not to engage in self-injurious or aggressive behaviors.
The devices are believed to be used at only one facility in the U.S. — the Judge Rotenberg Educational Center in Canton, Mass., which serves children and adults with developmental disabilities as well as those with behavioral and emotional problems.
Disability advocates have worked for years to bar the practice. And in 2020, the FDA finalized a ban on the devices after determining that they pose an “unreasonable and substantial risk of illness or injury.” The agency cited evidence of psychological and physical risks including burns, tissue damage, worsening underlying symptoms, depression, anxiety and post-traumatic stress disorder.
But the Rotenberg Center sued and last summer the U.S. Court of Appeals for the D.C. Circuit found that the FDA had overstepped its authority and overturned the regulation.
The legislation now heads to the Senate where advocates say they are hopeful that the provision banning electrical stimulation devices will be included.
“Contingent electric shock for the purposes of behavior modification is inhumane and ineffective and has been condemned by the United Nations as torture,” said Julia Bascom, executive director of the Autistic Self Advocacy Network. “We hope the Senate will act swiftly — folks subjected to these shocks have been waiting for far too long.”
Supporters of the Rotenberg Center, however, are not backing down on what they say is a last resort for individuals with severe behaviors who have not responded to other treatments.
“The parents and guardians of clients of the Judge Rotenberg Educational Center (JRC) will continue to fight to preserve the life-saving electrical stimulation device (ESD) treatment for our loved ones, for whom all other treatment options have been tried and failed,” the Judge Rotenberg Educational Center Parents Association said in a statement to Disability Scoop.”
Bill To Stop New York From Sending Residents To The JRC - Wrong Planet thread
_________________
Professionally Identified and joined WP August 26, 2013
DSM 5: Autism Spectrum Disorder, DSM IV: Aspergers Moderate Severity
“My autism is not a superpower. It also isn’t some kind of god-forsaken, endless fountain of suffering inflicted on my family. It’s just part of who I am as a person”. - Sara Luterman
ASPartOfMe
Veteran
Joined: 25 Aug 2013
Age: 67
Gender: Male
Posts: 35,933
Location: Long Island, New York
Our best chance to ban contingent skin shock for behavioral control is now at risk - ASAN
Here’s how you can help:
Call your two Senators. Ask them to pass the current version of the bill, the FDA Safety and Landmark Advancements Act, with the amendment banning electric shocks for behavior modification included.
You can use our script:
My name is [your full name] , and I am from [your city]. I am a constituent of Senator [NAME]. I’m calling to ask Senator [NAME] to vote to pass the FDASLA Act, with the language included which bans the use of electric skin shock for behavior modification. This language passed the House, as well as the HELP committee. Only one institution in the country still uses electric shocks this way, and the UN found the practice to be torture in 2013. The FDA banned this use of electric shocks in 2020, but the DC Circuit Court overturned the ban on a technicality. The Senate has the power to stop electric shock torture through the FDASLA Act. Can I count on the Senator to vote yes on an FDASLA reauthorization that includes the ban?
After calling, try a virtual Hill visit! Our guide walks you through meeting with your Senators’ staff one-on-one even if you can’t visit their office.
Want to make a call, but unable to speak on a phone call due to a disability? Our Proxy Calling system is open! Want to help someone else make a call? Consider signing up to be a proxy caller. Have call anxiety, or wondering what to expect from a call to your elected officials? Check out this guide to making a call to your members of Congress.
Our community can’t wait -- we must take this critical step toward ending the torturous practice of shocks as behavioral control, and towards closing the Judge Rotenberg Center. Your advocacy will make sure we #StopTheShock for good. Thank you for taking action.
Further links in linked article
_________________
Professionally Identified and joined WP August 26, 2013
DSM 5: Autism Spectrum Disorder, DSM IV: Aspergers Moderate Severity
“My autism is not a superpower. It also isn’t some kind of god-forsaken, endless fountain of suffering inflicted on my family. It’s just part of who I am as a person”. - Sara Luterman
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