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ASPartOfMe
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22 Apr 2023, 9:13 am

Adults with autism often struggle with unhealthy relationships.
Jessica Penot, LPC, is a licensed professional counselor in Madison, Alabama, who specializes in treating trauma and autism spectrum disorder. She has over 20 years clinical experience in a variety of settings. She is the founder and director of Tree of Life Behavioral Health and has spoken and written about autism on platforms including The Art of Autism. Penot was diagnosed with autism in her 40s and has spent a significant amount of time working to understand the specific challenges and traumas women with autism face. Her research and work focuses primarily on issues involving the underdiagnosis and misdiagnosis of women with autism and the impact it has on their lives and mental health. She is an advocate for neuroaffirmative approaches to treatment and works to help facilitate women with autism in moving from being self-critical to self-compassionate. Her perspective on autism comes not only from her clinical experience, research, and study, but also from her experiences living as a woman with autism spectrum disorder. Penot is also the author of 10 novels and books about exceptional women and girls who are born different and need to find magic in their “otherness

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Autism is defined as persistent deficits in social communication and social interactions across multiple contexts and restricted repetitive patterns of behavior interests or activities (DSM-V-TR, 2023). We all have an internal vision of what deficits in social communication and social interactions look like in children. We visualize the awkward child that is either quiet or talks incessantly and other kids avoid and bully. Yet, what does a deficit in social interactions look like in adults? Most people have no idea. The awkwardness may still be there, but it isn’t the primary problematic issue.

The first thing we must conceptualize to understand how this plays out in functional adults with autism is that almost all of them have been trained since early childhood to mask their autistic traits and look to neurotypicals for our understanding of normal.

The messages that are given to autistic children are brutal. Autistic children are told to, “Use social narratives and social cartooning as tools in describing and defining social rules and expectations.” (Autism Speaks, School Community Tool Kit). The worst part of the messages that were given to us as children is that we weren’t even allowed to receive these messages directly because we were considered too weird, broken, and incompetent to receive them, so our schools and caretakers were taught how to train us properly. Our caregivers were told to, “teach imitation, motor as well as verbal.” (Autism Speaks, School Community Tool Kit).

These messages are given to those who aren’t diagnosed with autism in childhood in different ways. Parents and teachers label us as difficult and try to train us to be normal so we can make friends and fit in. As one psychiatrist told me, “Social skills training is important because everyone needs friends.” We are told to hide our behaviors and try to watch those others around us because our behaviors are “weird,” “difficult,” or “wrong.” My mother used to ask me, “What is wrong with you?” all the time. Friends and peers reinforce these messages. Many of us have faced lifetimes of rejection that remind us that we aren't acceptable as who we are.

Through this process, people with autism learn to suppress their natural drives, instincts, needs, and comfort zones and assume others are correct and they are wrong. This is often combined with an intrinsic inability to learn safety cues, danger cues, and a lack of understanding of what normal should be, all of which can create a perfect storm in which unhealthy, abusive, and toxic relationships can thrive in the adult lives of people with autism.

Pair-bonded relationships are often the most problematic in these scenarios. People with autism often end up dating and married to people who are emotionally and physically abusive. They end up with people who expect them to change and berate them or make them feel flawed for who they are. The worst part of this is that most people with autism can’t even tell the difference between a healthy relationship and an abusive one.

This scenario plays out in all interactions. I have been duped or ended up taken advantage of numerous times due to this. I can’t read when people are trying to trick me.

This is the problem with the way we relate to the relationship impairments of autism. We expect them just to be awkwardness and an inability to talk well, but really it is deeper. We may be able to speak clearly, but we don’t understand the subtle aspects of social communication and interaction that help normal people see when people are being hurtful, unstable, or chaotic. We are unable to understand what is healthy and what isn’t. We struggle with social interactions, but we crave them, so we tend to embrace anyone who likes us and we don’t recognize red flags.

As we move forward in our understanding of treatments for autism, this level of social impairment needs to be addressed. Instead of just leaning into social skills training, we need to lean into social interaction training that teaches people with autism to recognize red flags, value their needs and boundaries, recognize abuse and deception, and set healthy boundaries that will keep them safe and happy.

I considered putting this thread in Love and Dating but decided to put it here in hopes of avoiding the misogyny and misandry that section is infamous for.


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IsabellaLinton
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22 Apr 2023, 9:28 am

Wow. Thank you for posting this.

It's extremely relevant to the needs of WP right now.

Do you know how to quote the whole article?
I'm also wondering if it could / should be crossposted over to L&D.


Lol - Sorry - You read my mind by quoting and mentioning L&D.

Great article!


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ASPartOfMe
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22 Apr 2023, 12:44 pm

IsabellaLinton wrote:
Wow. Thank you for posting this.

It's extremely relevant to the needs of WP right now.

Do you know how to quote the whole article?
I'm also wondering if it could / should be crossposted over to L&D.


Lol - Sorry - You read my mind by quoting and mentioning L&D.

Great article!

You are welcome.

We are not supposed to quote entire articles, copy write violations
You are not supposed to double post a thread either.

You can ask the moderators to make an exception, I as the OP won’t object but would object it to being moved to L&D.


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24 Apr 2023, 11:10 pm

I don't know what's normal either.
Only that I keep questioning that if 'normal' is even healthy at all.

Especially in the culture I grew up in.

It doesn't help that I rationally know things -- that a lot of things are forgiving, that one would extend patience and understanding, when my less rational side assumes things.
Most of those things are violent, harsh and outright unforgiving.


It's like...

To 'convince' me to change for the better or worse would meant convincing this spoiled brat that is my less rational me. I fricking hate it.

That whatever I rationally know and try to act from that knowledge and experience doesn't matter.


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IsabellaLinton
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25 Apr 2023, 12:28 am

ASPartOfMe wrote:
IsabellaLinton wrote:
Wow. Thank you for posting this.

It's extremely relevant to the needs of WP right now.

Do you know how to quote the whole article?
I'm also wondering if it could / should be crossposted over to L&D.


Lol - Sorry - You read my mind by quoting and mentioning L&D.

Great article!

You are welcome.

We are not supposed to quote entire articles, copy write violations
You are not supposed to double post a thread either.

You can ask the moderators to make an exception, I as the OP won’t object but would object it to being moved to L&D.



You're right about not double-posting.
I didn't want to say "Hey move this to L&D" , :P but then you mentioned it anyway.

I just reread the article and laughed at myself for being so literal.
I got stuck on this line: "I can’t read when people are trying to trick me."
I read it about ten times thinking it meant she can't read a book with people tricking her.
I was picturing people behind her in costumes or something.

:skull: It's one of those days.


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27 Apr 2023, 6:18 pm

I can't argue with any of that, it's definitely consistent with my life. I thought that I was a monster for years for the beatings that I administered and the general cut throat retaliatory actions I engaged in when I was younger. It just sort of broke me. I now realize, that the adults around me failed me. I did what I had to do and because I am autistic, I didn't, and still don't, entirely understand any of what was going on. It doesn't particularly get me off the hook for my actions, but it does mean that I can acknowledge that I'm not a horrible person, I was a kid in a tough spot that didn't have any of the support or tools to make better decisions. The efforts that I have made since to be a kind soul that gives more than he takes and that tries to bring out the best in the people that he comes into contact with is a much more accurate description of who I am. It's been my belief for years that the measure of how good somebody is has to start with their baser instincts and the things that they have to actively choose not to do.

And, the whole marriage thing is sadly also correct. I should have my divorce papers drafted this weekend and filed with the county superior court. I asked for so little from her and she actively spent most of our time together looking to give even less. The fact that I still haven't been able to get her to acknowledge that she doesn't just get to slap me because she's upset, or take her emotions out on me says it all. She's going to lose everything and it's her own fault. I don't wish ill on her or anybody else, but she's getting the kharma that she's earned as I can't bear to be married to somebody who treats me like this for the next possibly 50+ years.

Thankfully, I'm still young enough that I can have a happy ending.



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29 Apr 2023, 5:36 pm

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The messages that are given to autistic children are brutal.


I felt this in my chest when I read it.

I was diagnosed 11 years ago, and I'm spending a lot of time these days trying to sort out what's actually autism and what's the result of brutal treatment and brutal messages while growing up. If you have difficulty with information with regard to input, internal management, and output, of course you will fall behind your peers in a variety of ways. And if they're cruel to you and shun you, of course you'll fall further behind, blame yourself alone - just as they've taught you to do, and struggle to have good judgment about who to be around and what's healthy to accept in behavior from either yourself or them. Furthermore, it's hard to believe you deserve to be treated very well if you've been taught to hate yourself.

Thank you for posting this and starting the discussion. It's uplifting to be reminded how much it has helped in recent years to have both professionals who listen to us and professionals who actually are us. (Same for parents and others. :D )


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29 Apr 2023, 5:46 pm

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Through this process, people with autism learn to suppress their natural drives, instincts, needs, and comfort zones and assume others are correct and they are wrong. This is often combined with an intrinsic inability to learn safety cues, danger cues, and a lack of understanding of what normal should be


Well, damn.



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29 Apr 2023, 5:57 pm

It's like, you're told that you should do X Y Z thing to make people happy if you care, and that people even do things they don't want to do for the sake of pleasing their partner, or friends or whatever.

But then when you've spent your whole life putting your discomfort aside for the benefit of other people - to be normal, to please parents or peers, to achieve the things you have to achieve to get on in life- how do you know where that line is? Where is the point where your discomfort trumps their desire? Which are the situations where your reticence is valid, and which are the situations where you should grin and bear it? And then it all gets worse when there's an emotional weight attached to their need.

You'd do it if you care. And you do care. You don't want them to think that you don't care. But you don't want to do it.

A lifetime of being socialised to conform and make others happy means that you do it anyway, and deal with the personal consequences later when you're alone and free to hate yourself.



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30 Apr 2023, 8:49 pm

racheypie666 wrote:
It's like, you're told that you should do X Y Z thing to make people happy if you care, and that people even do things they don't want to do for the sake of pleasing their partner, or friends or whatever.

But then when you've spent your whole life putting your discomfort aside for the benefit of other people - to be normal, to please parents or peers, to achieve the things you have to achieve to get on in life- how do you know where that line is? Where is the point where your discomfort trumps their desire? Which are the situations where your reticence is valid, and which are the situations where you should grin and bear it? And then it all gets worse when there's an emotional weight attached to their need.

You'd do it if you care. And you do care. You don't want them to think that you don't care. But you don't want to do it.

A lifetime of being socialised to conform and make others happy means that you do it anyway, and deal with the personal consequences later when you're alone and free to hate yourself.

The answer is apparently slowly and methodically. My wife wants me to pretend to be somebody else when go to her cousin's wedding and she never bothered to ask of that was ok with me when she asked if I would go.

The answer is a responding no for the same basic reason that so much of what you posted should never have been. Even though you're right on. I just started to learn who I am, I'm not willing to pretend to be somebody I'm not to please somebody that's too selfish to help me out.

At some point we all deserve to be able to choose ourselves without shame or guilt. We are all just as entitled to be happy as anybody else and nobody should be asking us to sacrifice our health and happiness for such little things.



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14 May 2023, 9:33 pm

It’s not just us. Neurotypicals have an instinctive reaction to autism that leaves us ignored and left out. Our faking “normal” behaviour can help a little with that, but until the rest of the planet develops a little more insight into what’s human and what’s merely where you are on a spectrum we’re always going to be on the outside of social networks.



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25 May 2023, 2:06 pm

"We visualize the awkward child that is either quiet or talks incessantly and other kids avoid and bully."

For many years now, after being under the "care" of my younger sister for long enough, I realized she is most likely, at least, ND, if not actually on the ASD spectrum, and she is masking as a "girl boss". (I just now joined this forum in hopes I can gain some insight on, and/or get help, getting away from her... she recently won me SSDI solely so she could steal it from me... more on that later)

When she was a child, she would talk incessantly, "copy" others (mimic/parrot "talk"), and, throughout her life, she bullied and belittled others, while trying to "fix" them, has had AWFUL abusive relationships, with her being the abuser, as well as her SOs doing it to her... among many other behaviours that can be attributed to ASD. I should also note that our mother was most DEFINITELY autistic. So, many strikes. (I was/still am, the quiet one, had a rough time, etc.)

I suppose what I am trying to say is, situations can arise that "benefit' some autistic folk, to the point that they reach adulthood and become something of a terror. That said, I just want her to stop moving, and allow me to maintain the waste stream again, and create a garden here, or let me go.


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13 Jun 2023, 10:16 am

I am once again reminded of how extremely lucky I am to have figured out, in my teens, that the key to finding friends was not to struggle to "blend in," but rather to seek out fellow oddballs of one kind or another.

I am also lucky to have come of age at a time when there were a lot of popular magazine articles on how to be assertive without being aggressive. Thus I figured out not only that I needed to be assertive, but that I needed friends who would be assertive with me too, due to my difficulty in picking up subtle hints. This, along with reading a book about abusive relationships at some point when I was in my early twenties, has helped me to avoid many of the worst relationship pitfalls.

I am also lucky that my parents did not pressure me to "blend in" as much as a lot of other parents apparently do. My parents were less worried about my failure to "blend in" than they were about the possibility that I might end up "blending in" too much and give in to "peer pressure" to pick up bad habits like doing drugs.


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13 Jun 2023, 9:59 pm

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Through this process, people with autism learn to suppress their natural drives, instincts, needs, and comfort zones and assume others are correct and they are wrong. This is often combined with an intrinsic inability to learn safety cues, danger cues, and a lack of understanding of what normal should be, all of which can create a perfect storm in which unhealthy, abusive, and toxic relationships can thrive in the adult lives of people with autism.

Pair-bonded relationships are often the most problematic in these scenarios. People with autism often end up dating and married to people who are emotionally and physically abusive. They end up with people who expect them to change and berate them or make them feel flawed for who they are. The worst part of this is that most people with autism can’t even tell the difference between a healthy relationship and an abusive one.


Yep.


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19 Jun 2023, 4:06 pm

I'm 53 and I just realized a few weeks ago that I am still operating with regards to friendships as I did when I was 5. I was the youngest kid in the neighborhood, and we all knew I was different. Quite a bit I would be teased/abused about it. But I wanted to have friends so badly, I'd ensure any abuse, and bring snacks to try to buy friendship that I knew I didn't deserve because of whatever was wrong with me. I didn't get a diagnosis until I was 43, and my son was 7. I was diagnosed because he was. And all this time, I've left the doors of friendship wide open, welcoming in anyone who would walk in and be my friend. I wasn't careful or at all selective, and I got burned from time to time. THIS year, I got badly burned twice by some long-term friendships of 7 and 9 years, all of whom claim to be neurodivergent. These were all folks who were 20+ years younger than I was. It's been very painful, but so overtly bogus that for the first time in my life, I didn't wonder if the problem was all me. I've been used and taken advantage of, and then when I call it what it is, I'm told I'm being "transactional."
I'm blessed that I married someone from the "geek" community who has always understood me well and treated me well. And I have a goodly number of acquaintance-level friends and a few great core friends. But this year sucks as far as friendships for me.



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29 Jun 2023, 1:42 pm

racheypie666 wrote:
It's like, you're told that you should do X Y Z thing to make people happy if you care, and that people even do things they don't want to do for the sake of pleasing their partner, or friends or whatever.

But then when you've spent your whole life putting your discomfort aside for the benefit of other people - to be normal, to please parents or peers, to achieve the things you have to achieve to get on in life- how do you know where that line is? Where is the point where your discomfort trumps their desire? Which are the situations where your reticence is valid, and which are the situations where you should grin and bear it? And then it all gets worse when there's an emotional weight attached to their need.

You'd do it if you care. And you do care. You don't want them to think that you don't care. But you don't want to do it.

A lifetime of being socialised to conform and make others happy means that you do it anyway, and deal with the personal consequences later when you're alone and free to hate yourself.
That's extremely tough to figure out. My girlfriend is very likely on the spectrum & was raised to please others. Cass has never been normal & her family kinda guilt tripped her into sacrificing her needs & wants to please them. They want her to spend time with them & do things for them but they sometimes get upset if she acts like herself & they also neglect her at times too. Cass is very empathic & sensitive to the needs of others. She fees horribly bad when others she's close to do & she believes she's a failure when she cant or doesn't put them 1st.

I'm kinda the opposite of her. I never really knew how to please others & I always felt like an outsider with family & social environments. I've always been a loner who generally prefers to go his own way or do his own thing. Tagging along with others can be nice & I do like having friends in somewhat small doses but Cass is the only person I really like & want to spend an extended amount of time with. I really hate seeing her getting stressed & burnt out due to getting used by her family. Cass gets depressed & shuts down with me a lot at times due to the stress from socializing & worrying about them. Very thankful she's starting to set some boundaries with her family due to my encouragement & insistence. I know she majorly loves them but she's starting to realize that she's a lower priority for them & she needs to take care of herself as well & cant be responsible for them.

I really wish I had some helpful advice here.


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