Navigating the health care system

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Hello all,

I'm looking for advice on how to stay sane while navigating the health care system.

Over the last six months I have been working with about 5-6 different professionals regarding a chronic health disorder and general life issues that come with being Autistic. Although I appreciate having so many people helping me with my issues I do still find it very overwhelming.

Today, I broke down in tears because my doctor did not notify me about some important tests that had to happen in order for me to receive medical treatment this week. Now I will have to wait for what would have a simple routine procedure because of someone's incompetence.

It feels like my full time job these days is following up with the doctors and different organizations that I work with to make sure they actually do what they say they are going to do.

I'm interested in hearing what everyone has to say about this topic.

CFL