Looking for suggestions for book titled Asperger's Disorder

Page 1 of 3 [ 38 posts ]  Go to page 1, 2, 3  Next

bewildered
Butterfly
Butterfly

User avatar

Joined: 8 Apr 2008
Gender: Female
Posts: 10

09 Apr 2008, 2:56 pm

I'm one of the editors on this medical textbook and I'm trying to write the preface. I'm somewhat torn by the syndrome v/s disorder question and I am wondering how people at wrong planet feel about the disorder label. Also, what would you like to see in the preface. Unfortunately, the book is already written, so this is your last chance! :roll:



krex
Veteran
Veteran

User avatar

Joined: 20 Jun 2006
Age: 61
Gender: Non-binary
Posts: 4,471
Location: Minnesota

09 Apr 2008, 3:04 pm

Inspite of the popularity of the term "disorder",I believe it is a misnomer. My brain has an "order" it is just ordered differently then the "majority" which often causes difficulty in communication on both sides.

I'm not even sure what "syndrome" means? When I refer to my own neurological differences I use the term "traits". It doesn't carry a value judgement or emotion association that the "disability/disorder/dysfuntion" terms do (which offend me a lot).

The preface....Something by Tony Atwood? He seems to have the most understanding and compassion for individuals on the spectrum.

My personal summery of Aspergers...

"A fish is not a broken bird"


_________________
Just because one plane is flying out of formation, doesn't mean the formation is on course....R.D.Lang

Visit my wool sculpture blog
http://eyesoftime.blogspot.com/


Sora
Veteran
Veteran

User avatar

Joined: 15 Sep 2006
Gender: Female
Posts: 4,906
Location: Europe

09 Apr 2008, 3:25 pm

ICD-10 -> Asperger's Syndrome

DSM-IV-TR -> Asperger's Disorder

Does the deal with both ICD/DSM? Then I'll vote for syndrome.

At least 'syndrome' and 'Asperger's Syndrome' is commonly supported in many languages.

Unlike 'AD' or Asperger's Disorder. ('AD' could mean Autistic disorder too I think?).


_________________
Autism + ADHD
______
The trouble with having an open mind, of course, is that people will insist on coming along and trying to put things in it. Terry Pratchett


Jeyradan
Velociraptor
Velociraptor

User avatar

Joined: 16 Jan 2008
Age: 38
Gender: Male
Posts: 488

09 Apr 2008, 3:44 pm

I'd love to add this one to my medical library; let us know when it comes out!
And I don't mind either one (disorder or syndrome), but when people describe it as a "disease" or "sickness" or something like that, it makes me crazy. I won't let my friends use any words other than syndrome or disorder, but either of those is good.



Kaleido
Veteran
Veteran

User avatar

Joined: 18 Feb 2007
Age: 66
Gender: Female
Posts: 2,615

09 Apr 2008, 3:58 pm

Don't much like disorder or syndrome, maybe Asperger's Discovery would be more fun and more positive :D :wink:



bewildered
Butterfly
Butterfly

User avatar

Joined: 8 Apr 2008
Gender: Female
Posts: 10

09 Apr 2008, 4:08 pm

That's very helpful. I like Asperger's Discovery. The book should come out in the next 6 months. I am writing the preface with the two other editors. Its called "Asperger's Disorder." We agree with the title since there are no books titled Asperger's Disorder and when someone first gets the diagnosis they may look it up that way first. We use all the criteria- ICD-10, Gillberg's, DSM-IV. About 1/2 the authors are European, all use syndrome; other 1/2 American all use disorder except one. The acronyms used are AD, AS, ASP, then for ASD we also have ASC and SCD- social communication disorders. We discuss traits a lot. I was thinking the preface should start with Acronyms, acronyms, all is acronyms, or perhaps an acronym by any other name is still an acronym. Any more ideas? Where do we see Asperger's going in the future? Is the fact that antisocial behavior is reported or lack of empathy a problem? Is the fact that people sho are in relationships with someone with Asperger's feel sad due to lack of emotional responsivity concerning? I found the Painted Veil to portray a character who might have Asperger's well in the character of Dr. Fane.



Belfast
Veteran
Veteran

User avatar

Joined: 17 Jul 2005
Age: 51
Gender: Female
Posts: 1,802
Location: Windham County, VT

09 Apr 2008, 4:35 pm

bewildered wrote:
Also, what would you like to see in the preface.

Find prospect of the upcoming textbook you describe appealing. I crave information & academic approach to material can be fascinating.
None of the label suffixes (disorder/syndrome is certainly better than disease/illness) sound "right enough", am unsure myself how to word it: pattern, cluster, tendency, difference, distinction ?
bewildered wrote:
Is the fact that people sho are in relationships with someone with Asperger's feel sad due to lack of emotional responsivity concerning?

I'm obviously biased by the self-interested priorities of those who share my demographic. Thus, I want more coverage/study/literature on the diagnosis in people with whom I've other things in common, so that it's easier for me to relate to. Know that's intellectually lazy of me, but it's truth.
I'm female with the dx. My bf is "NT"-I don't buy into rigidity of those labels but abbreviations are shortcuts we can't do without. He doesn't feel slighted, neglected, or whatever is experienced by "NT" women partnered with men who have dx. No offense intended to anyone ! Too much (in my selfish opinion) is written about couples (not in total amount, but in terms of proportion/ratio) who sound the opposite of how we are, and I can only imagine mauch of that's due to which gender has the dx & which gender is the "typical" person.


_________________
*"I don't know what it is, but I know what it isn't."*


Jeyradan
Velociraptor
Velociraptor

User avatar

Joined: 16 Jan 2008
Age: 38
Gender: Male
Posts: 488

09 Apr 2008, 5:02 pm

Belfast wrote:
None of the label suffixes (disorder/syndrome is certainly better than disease/illness) sound "right enough", am unsure myself how to word it: pattern, cluster, tendency, difference, distinction?


I really agree with "tendency" and perhaps with "distinction."



krex
Veteran
Veteran

User avatar

Joined: 20 Jun 2006
Age: 61
Gender: Non-binary
Posts: 4,471
Location: Minnesota

09 Apr 2008, 6:25 pm

Whats wrong with just the term ..."Aspergers"....?There aren't more then one kind of such things as far as I'm aware,(although they certainy can very a great deal in how the present in each individual...a great deal.

As to your other questions....

I am not "anti" social(wishing to avoid all people or do something harmful to people)..that is a myth. Look at the membership here. I use to "think" I was "a" social because I did not enjoy socializing with people who were cruel to me or did not seem to understand what I was communicating and who often bored me with their interests(Britney Spears,etc)...but that happens here as well but at least most of us are interested in aspergers :D If you look at how much time many of us spend communicating on the internet(when not disadvantaged with trying to desipher Non-verbal communication...many of us are social to some degree.


I am female DXed a few years ago and have had many problems in relationships because the person became my "special interest"...for awhile...then "not"...so I either creeped them out with my intensity of always wanting to be with them or confused them ith my sudden disinterest in them(confused me too)Now I am with some one who has as many other interests as me. Most people would think our lack of attention to each other was "odd" but it works for us.(5 years)...I think it's because he has a lot of aspie traits and obsessions,so understands mine.(also not a social junky who doesn't mind staying at home.

I would love to see a book preface that talked about some of the myths of AS, about how AS was not just "created in a petri dish" when it happened into the DSM...in other words....There are more unDXed aspies abounding then the world knows. You would think some cleaver researcher would try and spend more time investigating this then looking for a genetic marker? We are the puzzle piece that they can't seem to find.... 8O


_________________
Just because one plane is flying out of formation, doesn't mean the formation is on course....R.D.Lang

Visit my wool sculpture blog
http://eyesoftime.blogspot.com/


Pepperfire
Velociraptor
Velociraptor

User avatar

Joined: 10 Feb 2008
Age: 58
Gender: Female
Posts: 408

09 Apr 2008, 6:57 pm

bewildered wrote:
I'm one of the editors on this medical textbook and I'm trying to write the preface. I'm somewhat torn by the syndrome v/s disorder question and I am wondering how people at wrong planet feel about the disorder label. Also, what would you like to see in the preface. Unfortunately, the book is already written, so this is your last chance! :roll:


It's a difference. It's a syndrome. IT IS NOT A DISORDER.

If you're an Aspie, it's just the way you are. Only NTs think we're out of order.


_________________
I do believe in spooks! I do, I do believe in spooks!


krex
Veteran
Veteran

User avatar

Joined: 20 Jun 2006
Age: 61
Gender: Non-binary
Posts: 4,471
Location: Minnesota

09 Apr 2008, 8:54 pm

After rereading this I have to say...you DO seem confused. Are the impressions of people with AS, you are mentioning here, the ones mentioned by these expert authors...and where did they get their info?











bewildered wrote:
Where do we see Asperger's going in the future?



Going? Are we going some where...hell,no one tells me anything...and I don't even have my towel with me<----that is humor(or a vain attempt) to dispel the myth that aspies have no sense of humor...we do,we just don't always think any one is funny but ourselves(and Monty Python and Black Adder and Douglas Adams and Woody Allen and etc)

A serious answer...is that if Autism Speaks continues to define the agenda all autisics will be "cured" and we will be a world of happy smiley NT's.


Is the fact that antisocial behavior is reported


Who reported this and what is their deffinition?



or lack of empathy a problem?


It's not a problem for me...is it a problem for someone who wants to whine about soemthing I think is absurd or ask to cry on my shoulder...probably but if you go to the haven you will find a lot of examples of empathy...empathy for people who are experiencing things we can relate to and not someone who is complaining about breaking their newly done manicure(I know :twisted: I am onr cold blooded chick)



Is the fact that people sho are in relationships with someone with Asperger's feel sad due to lack of emotional responsivity concerning?



Looking at the divorce rate...I would say that the majority of peple are miserable in relationships and most of them are NT. We all have strengths and weakness in relationship and different needs. The trick is finding someone who will meet them and not deluding your self that you can "change them"...which I see in AS or NT people.


I found the Painted Veil to portray a character who might have Asperger's well in the character of Dr. Fane.



Never heard of it but I found the charactor in "Stranger In A Strange Land" to be a bit aspieish(not totally but some over lap).


_________________
Just because one plane is flying out of formation, doesn't mean the formation is on course....R.D.Lang

Visit my wool sculpture blog
http://eyesoftime.blogspot.com/


CanyonWind
Veteran
Veteran

User avatar

Joined: 11 Sep 2006
Age: 73
Gender: Male
Posts: 1,656
Location: West of the Great Divide

09 Apr 2008, 9:10 pm

I ain't no expert, but I've seen an awful lot of lack of empathy and antisocial behavior. If that's an aspie trait, so is having ten toes.

It would be a lot more accurate to say that aspies receive lack of empathy and antisocial behavior.

I'd prefer syndrome to disorder. I ain't as dumb as I seem.

Speaking of dumb, though, did it ever occur to any of these experts that people who have tremendous difficulty involving interactions with other people have their problems made worse by being labeled as ass burgers?


_________________
They murdered boys in Mississippi. They shot Medgar in the back.
Did you say that wasn't proper? Did you march out on the track?
You were quiet, just like mice. And now you say that we're not nice.
Well thank you buddy for your advice...
-Malvina


Bopkasen
Veteran
Veteran

User avatar

Joined: 5 Jul 2006
Age: 39
Gender: Male
Posts: 541

09 Apr 2008, 9:52 pm

bewildered wrote:
I'm one of the editors on this medical textbook and I'm trying to write the preface. I'm somewhat torn by the syndrome v/s disorder question and I am wondering how people at wrong planet feel about the disorder label. Also, what would you like to see in the preface. Unfortunately, the book is already written, so this is your last chance! :roll:


Keep it short and simple.



EvilKimEvil
Veteran
Veteran

User avatar

Joined: 26 Sep 2007
Age: 45
Gender: Female
Posts: 2,671

09 Apr 2008, 10:35 pm

I prefer syndrome. AS isn't all bad. There are plenty of good things about it, and people experience it in different ways. A lot of the disadvantages are situational; that cannot be said of many disorders.



Thomas1138
Velociraptor
Velociraptor

User avatar

Joined: 5 Apr 2008
Age: 45
Gender: Male
Posts: 470

09 Apr 2008, 10:45 pm

bewildered wrote:
Is the fact that antisocial behavior is reported or lack of empathy a problem?


Careful there. 8O



EvilKimEvil
Veteran
Veteran

User avatar

Joined: 26 Sep 2007
Age: 45
Gender: Female
Posts: 2,671

09 Apr 2008, 11:03 pm

Thomas1138 wrote:
bewildered wrote:
Is the fact that antisocial behavior is reported or lack of empathy a problem?


Careful there. 8O


I think that the reported lack of empathy is often based on misunderstanding and miscommunication. I know that I experience empathy in what seems like a normal fashion. I just have trouble expressing it in most situations. Apparently, this is pretty common among people with AS.

"Antisocial behavior" is a very general term. What do you mean by this? If you compare the diagnostic criteria for AS to that of antisocial personality disorder, you will see a sharp contrast. Perhaps it would be advantageous to replace "antisocial" with a more specific term.