Spokane_Girl wrote:
We shouldn't take it so personal when they say that to us. They are maybe saying it to make us feel better, but it's still the truth because everyone does it.
But I think I can understand why it's frustrating for lot of us, they aren't understanding our problems, they don't know we have them more often than other people. How about you guys start telling them, "It happens to me more" "I do it more than others."
yeah. done that. but i've had people tell me i'm making it up, or that doctors are just dx'ing me for the sake of it because that's what doctors do, etc.
even more ridiculous is when i'm told i'm making up the hearing loss. complete with $4400 hearing aids (which are NOT covered by insurance, yay.). some of those lovelies will refuse to make any kind of accommodation for me, including speaking louder. i've been told by people that they 'don't' speak lousder. not because they can't. but because they won't.
people are Special.
i'm not saying everyone means it that way, but there are an awful lot of poeple out there who honestly think that i'm either making it up, or being strung along by a doc for the money, etc. if people already think you are weird, or dislike you (or both), they are even more likely to try to say that you are full of it.
they often also think that it's brought up for the sake of pity, special treatment, attention, excuse for being different, etc.
for these reasons, i stay away from talking about the AS diagnosis.