Voices of autistic people needed right now

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Last year in the USA, the Combating Autism Act was passed. Dreadful name I agree.

One of its remits was to form an IACC (Inter Agency Co-ordinating Committee). This IACC would debate on and then suggest a list of research areas for the future. Whilst it was severely under-represented by autistic advocates Stephen Shore was an attendee and several parent allies were too.

The recommendations the IACC are making are as follows:

Not too bad in my opinion. Could be better.

Anyway, as well as allies, the IACC also had representation from the anti-vaxxers. SafeMinds and Generation Rescue were well represented.

They are unhappy that the IACC recommendations do not include any points on cure or - most of all - vaccines. They are attempting to short cut the scientific process and politicise it by creating an 'Autism Board'. They claim that this board will allow them (and only them) to act as a conduit between HHS and parents and autistic people. In short, they are claiming to speak for autistic people and their parents.

If the idea of SafeMinds and Generation Rescue speaking for you fills you with as much horror as it did me, there is action you can take.

The IACC have put out a RFI (Request For Information). Essentially, they want feedback on their ideas. They are duty bound to publicise and act on this feedback.

There is a deadline for submitting this feedback. It is the 19th September.

For full instructions on how to make your opinion heard by the right people please read either eftbrainrightbrainDOTcoDOTuk/?p=1177 (my blog entry) or neurodiversityDOTcom/weblog/article/172/ (Kathleen's) - or both - I assure you, it is vital autistic people make their voices heard. You do not have to be American.

Thanks. I apologise for circumnavigating the antispam routines, but I think this is a very necessary rudeness on my part.

Here's another thread dealing with the RFI: http://www.wrongplanet.net/postt74948.html

Usual window-dressing, committe-loving, vague rubbish.

These things are usually of greater benefit to the operators than the supposed beneficiaries.

99% to 100% waste of time.
Give it 5 to 10 years and you'll see what I'm on about.

I would prefer these dipsticks over Autism Speaks or that crazy witc...I mean woman jenny mccarthy.

Sometimes I wish the concepts of money, companies, and governments, were NEVER created! I mean even the ways in which they HELPED me were deceptive AT BEST! If all were abandoned today, I would almost certainly be better off.

I mean MONEY can be stolen! People can plagerize for MONEY! People can stay at a job and do NOTHING for MONEY! This means that reward is seperated from value such that people can use MONEY to create a company and effectively enslave people. Eventually, someone gets, or manages to be given, too much power and becomes a government. THEY then create money, and even then they TAX!

Anyway, some people can't figure out other ways to make people complacent, or figure they can trick such people, and they start organizations, like the guy that, over 25 years ago, said that they would get rid of AIDS in 5 years! YEAH RIGHT! I said it was an idiotic statement even then.

The old barter system was lazy and clumbsy, but less able to be taxed(By the real old meaning meaning to strain or limit) in such a manner.

Frankly, most organizations that CLAIM to help are only used to make certain groups rich and you are lucky if even 20% goes to help the group.

Anarchy (which is the complete lack of government) is an unsustainable system. Some people release that it's easier to steal other people's stuff then to earn it. People then group together some to steal with greater efficiency and others to keep their stuff from being stolen. Eventually the people who want protection merge into larger and larger groups and end they eventually form a government. This will happen in almost every single time since anarchy ignores human nature.


Anyways the IACC seems to have the right idea. And I don't see what the mercury people can do since mercury was yanked from vaccines years ago...

If that is what happend then we would probably be ruled by a kind of gang society where the strong control the weak, and yes I am talking about muscles.

Seems like what they want and trying to give us an equal what we want, though it is more trying to remove what they see as weakness gor human perfection. Next step remove natural birth and privacey.