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trickie
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19 Feb 2009, 5:12 pm

I also have cerebral palsy. Are there any other people here who have additional disabilities?



Strapples
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19 Feb 2009, 5:19 pm

trickie wrote:
I also have cerebral palsy. Are there any other people here who have additional disabilities?


me!! !

feel free to IM Me on my 3 services. well you have to PM me first to get my MSN or yahoo.

note the harness and headrest. obvious physical disability lol


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zghost
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19 Feb 2009, 6:30 pm

I'm half deaf.... don't know if that counts since you can't see it.



roadracer
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19 Feb 2009, 6:40 pm

Me, but I would have to say mine is probably mild. For me it pretty much only affects my ability to do things with my hands, and causes me trouble with my feet, also some trouble swallowing.

Todd



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19 Feb 2009, 7:50 pm

zghost wrote:
I'm half deaf.... don't know if that counts since you can't see it.

Half deaf? Like totally deaf in one ear, or like you need hearing aids? I've been wondering it would be like to be completely deaf with AS, since you would probably have to rely on nonverbal communication more.



roadracer
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04 Mar 2009, 2:50 am

I thought there would be more here then this?
trickie and strapples, do you use any assistive tech. in order to use the computer, typing out messages, ect?
If you don't mind telling, what kind of cp do you have trickie?
strapples, I seen on your blog you have g tube, did you have trouble with aspirating? I have had pneumonia so many times in the past its rediculas.

I dont know anyone else with these types of troubles, was thinking there would be more people here
Todd



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04 Mar 2009, 11:41 am

Quote:
Half deaf? Like totally deaf in one ear, or like you need hearing aids? I've been wondering it would be like to be completely deaf with AS, since you would probably have to rely on nonverbal communication more.

No, about 50% deaf in both ears, birth defect I guess. It wasn't officially diagnosed until I was 5 (old enough for the real tests), but they'd been suspecting it all along.
I wore hearing aids when I was younger, but never really ajusted to them and quit when I was 11 or 12. They make EVERYTHING louder, and that really bothered me. I do lip read, to some extent.
Most people have no idea I have a hearing problem until I tell them, I don't have that "deaf accent" that most have and manage to get by fairly well. I do need things repeated sometimes, and watch TV/ movies with the captioning on.
I don't know sign language.
Sometimes I think I might be better off this way, I can't hear all those little noises that drive the rest of you nuts. But that's mostly me trying to justify myself, normal hearing would really be nice sometimes.



Learning2Survive
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04 Mar 2009, 11:48 am

trickie wrote:
I also have cerebral palsy. Are there any other people here who have additional disabilities?


cerebral palsy - how disabling is your condition? we learned in college that cerebral palsy - 70% of people with it have above average intelligence and we actually had a girl with CP from my high school (she is wheelchair bound) who is now attending the same college as i am. i see her around campus. i really hope the college gave her free tuition - she deserves it :)

it is my observation that a lot of girls with cerebral palsy are very pretty and actually that girl with CP from my high school she is good looking too.

the best thing about CP is that it is not progressive and what causes is they say lack of oxygen of the fetus. when the umbilical cord gets tied up. it is not a genetic problem at all so it cannot be passed on from a parent to child.

i personally do not have disabilities. but my asperger's is a social disability for sure.

jeff



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04 Mar 2009, 11:49 am

roadracer wrote:
Me, but I would have to say mine is probably mild. For me it pretty much only affects my ability to do things with my hands, and causes me trouble with my feet, also some trouble swallowing.

Todd


do you have a non-progressive myopathy :) ?



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04 Mar 2009, 2:30 pm

I have cerebral palsy and epilepsy.



roadracer
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04 Mar 2009, 5:45 pm

Learning2Survive wrote:
trickie wrote:
I also have cerebral palsy. Are there any other people here who have additional disabilities?


cerebral palsy - how disabling is your condition? we learned in college that cerebral palsy - 70% of people with it have above average intelligence and we actually had a girl with CP from my high school (she is wheelchair bound) who is now attending the same college as i am. i see her around campus. i really hope the college gave her free tuition - she deserves it :)

it is my observation that a lot of girls with cerebral palsy are very pretty and actually that girl with CP from my high school she is good looking too.

the best thing about CP is that it is not progressive and what causes is they say lack of oxygen of the fetus. when the umbilical cord gets tied up. it is not a genetic problem at all so it cannot be passed on from a parent to child.

i personally do not have disabilities. but my asperger's is a social disability for sure.

jeff


I would correct everything in your post that is wrong, but I dont want to seem like I am being mean, but maybe you should read up on it some,
http://en.wikipedia.org/wiki/Cerebral_palsy

EDIT - now I see there are a couple issues with the article on wiki, but it will give you a general better understanding.



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04 Mar 2009, 6:15 pm

Learning2Survive wrote:
roadracer wrote:
Me, but I would have to say mine is probably mild. For me it pretty much only affects my ability to do things with my hands, and causes me trouble with my feet, also some trouble swallowing.

Todd


do you have a non-progressive myopathy :) ?


I have never had all the tests done for my problems, so I cant be 100% sure, but I would have to say no.
Myopathy is with the muscle fibers, when they dont function right, this would mostly be muscular dystrophies or mitocodrial disease. No I dont have those. I am sure I wouldnt be able to race my bike if I did. I am more CP, but I am hesitant to use that term because my troubles are mild and I never got a definant diagnoses. Last doctor said hypertonia to describe some of my troubles. Although my problem isn't progressive, the effect from it are over the years, like nerve damage in my hands, wrists, and feet that hurts pretty bad sometimes!! ! I stretch twice a day to combat stiffness. If I didn't stretch, my achilis tendons will tighten up so bad I cant walk. Just one of the many ways it affects me. But even then, my troubles are minor!



Learning2Survive
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04 Mar 2009, 11:58 pm

roadracer wrote:
Learning2Survive wrote:
roadracer wrote:
Me, but I would have to say mine is probably mild. For me it pretty much only affects my ability to do things with my hands, and causes me trouble with my feet, also some trouble swallowing.

Todd


do you have a non-progressive myopathy :) ?


I have never had all the tests done for my problems, so I cant be 100% sure, but I would have to say no.
Myopathy is with the muscle fibers, when they dont function right, this would mostly be muscular dystrophies or mitocodrial disease. No I dont have those. I am sure I wouldnt be able to race my bike if I did. I am more CP, but I am hesitant to use that term because my troubles are mild and I never got a definant diagnoses. Last doctor said hypertonia to describe some of my troubles. Although my problem isn't progressive, the effect from it are over the years, like nerve damage in my hands, wrists, and feet that hurts pretty bad sometimes!! ! I stretch twice a day to combat stiffness. If I didn't stretch, my achilis tendons will tighten up so bad I cant walk. Just one of the many ways it affects me. But even then, my troubles are minor!


good for you man, you keep taking care of your health! my supervisor says she has an extremely mild CP. i always thought that CP was nueral damage done when the umbilical cord gets tied up and impedes supply of oxygen to the brain of the fetus. that is why it is not progressive. but the people who HAVE CP know more about it for sure. i'm just here yap with you guys. i'm bored.. :)



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05 Mar 2009, 12:38 am

Quote:
I have cerebral palsy and epilepsy.


I knew there had to be more

Learning2Survive wrote:
good for you man, you keep taking care of your health! my supervisor says she has an extremely mild CP. i always thought that CP was nueral damage done when the umbilical cord gets tied up and impedes supply of oxygen to the brain of the fetus. that is why it is not progressive. but the people who HAVE CP know more about it for sure. i'm just here yap with you guys. i'm bored.. :)


lol, yeah, I am pretty healthy
Simply, cp is damage to the brain eather during pregnancy, birth or very early childhood that causes the cp symtoms. You are correct, it is not progressive. It is not always caused by umbilical cord, but that could be one reason, a lot of times it is not known what happend. Also CP does NOT affect the persons IQ, much like autism, the person could have a low IQ secondary to the cp though.
You should think of this the same way that you think of aspergers and the autism spectrum. CP being like the spectrum, from people you cant tell have it, to the people severly affected, and everything in between. Much like autism, it is differnt for every person.
That is the very basic, the link I posted explains more detail and about the differnt types.



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05 Mar 2009, 12:45 am

Some people with CP are above average intelligence, especially in certain areas. I have significant right hemisphere brain damage, so my mathematical ability is impaired while my verbal/linguistic ability is above average. My spatial orientation is also impaired; I don't like driving, for example.

There are attractive and unattractive people with CP; it doesn't really seem to follow a set pattern.



Learning2Survive
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05 Mar 2009, 1:03 am

GreatCeleryStalk wrote:
Some people with CP are above average intelligence, especially in certain areas. I have significant right hemisphere brain damage, so my mathematical ability is impaired while my verbal/linguistic ability is above average. My spatial orientation is also impaired; I don't like driving, for example.

There are attractive and unattractive people with CP; it doesn't really seem to follow a set pattern.


you are right but the attractive women with CP are just more up and about our town and campus, so that's all i've seen :)