melissa17b wrote:
If you were once "in" and once "out", then most likely at least one of your assessments was wrong. It is not an exact science.
Certainly, whatever you have to say now is every bit as valuable as before, maybe even more so, as other people might gain insight from your experiences in diagnostic limboland.
Living in Limboland.
That pretty much sums it up.
I really wish it was an exact science with a clear unbiased test. A lot of the rest of medicine seems to be measurable at least. Sometimes AS don't seem like proper science at all to me.
I've been afraid to go to the doctors sometimes for fear that I will be talked to in a patronising way (more than the usual social anxiety). My family had openly admitted that there were times when I was physically ill that because they were worried as to how I'd be treated with the AS label.
It seems where I come from, if you have an AS label people treat you with fear, suspicion and like a child who can't think for his/her self. If you don't have an AS label, you're spoken to like a normal adult. That's been my experience anyway and was one of the reasons why my family tried to get rid of the label. They wanted me to be treated like a "normal" person because all the condescending talk/negativity was not helping me positively at all.
See thread:
http://www.wrongplanet.net/postt92201.html
which is an opinion on the current state of AS support services in my country.
I sometimes think that some folks in the healthcare system must get a kind of strange satisfaction out of playing around with people's senses of selves and lives.
That's what the AS label has been for me: it's been a direct attack on my sense of self. View all of my personality traits in purely negative ways: make a list of them and you have the AS dx. Some people I've known who've seen what I can achieve would think this was complete non-sense.
That's why I sometimes think that I'm leading a double life sometimes.
If people really knew about my past they would be shocked and surprised.
It's like somebody's idea of a sick joke.
They diagnose you with all this stuff when you're little (
in my country) when you're too young to take responsibility for your own actions and then offer no positive, helpful advice or productive support.
Why bother dxing all these people if it's not going to help them be productive in society?
Why give them a label that's only going to attract further stigma and discrimination?
How is keeping me in doubt and not informing me about what AS entails supposed to help me?
I thought that the whole point of making a medical diagnosis was to try and help the patient?
I sometimes wonder what I have done "wrong" and what people really want from me. I don't think I'm alone in this. If you're not suffering from your personality
(which I don't, my personality is my personality) they'll make you "suffer" for it.
I only ever "suffered" for being myself when people said that I should "suffer". When people accepted me for who I was (when my AS label was removed) and actually treated me like a human being: I didn't suffer.