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Age1600
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22 Apr 2009, 12:26 pm

Anybody ever done it before? if so could u tell me what they do and if i could handle it? want to know what its like from somebody who is on the spectrum before i even attempt to go through it. i cant handle much really, maybe an hour or two drs appt is still hard for me. Anyways i wasnt allowed to have a sleep study because my neurologist said i wouldnt be able to make it and to not even worth trying. I know I'm having siezures, or something, I'm losing my memory now, so I know I need to do something 8O :? . So if anybody can tell me about the 24 hour EEG, experiences, information, if mentally i could handle it or other solutions besides the EEG, love to hear from ya?


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Strapples
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22 Apr 2009, 12:54 pm

Age1600 wrote:
Anybody ever done it before? if so could u tell me what they do and if i could handle it? want to know what its like from somebody who is on the spectrum before i even attempt to go through it. i cant handle much really, maybe an hour or two drs appt is still hard for me. Anyways i wasnt allowed to have a sleep study because my neurologist said i wouldnt be able to make it and to not even worth trying. I know I'm having siezures, or something, I'm losing my memory now, so I know I need to do something 8O :? . So if anybody can tell me about the 24 hour EEG, experiences, information, if mentally i could handle it or other solutions besides the EEG, love to hear from ya?


http://www.wrongplanet.net/postp2139480.html#2139480


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Followthereaper90
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22 Apr 2009, 3:59 pm

only once when i was 10 i acsually loved chance to stay up all nigth and at morning i was so sleepy :lol: just lot of coffee cola etc :)


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Age1600
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22 Apr 2009, 4:24 pm

Strapples wrote:
Age1600 wrote:
Anybody ever done it before? if so could u tell me what they do and if i could handle it? want to know what its like from somebody who is on the spectrum before i even attempt to go through it. i cant handle much really, maybe an hour or two drs appt is still hard for me. Anyways i wasnt allowed to have a sleep study because my neurologist said i wouldnt be able to make it and to not even worth trying. I know I'm having siezures, or something, I'm losing my memory now, so I know I need to do something 8O :? . So if anybody can tell me about the 24 hour EEG, experiences, information, if mentally i could handle it or other solutions besides the EEG, love to hear from ya?


http://www.wrongplanet.net/postp2139480.html#2139480


oh gosh that thread doesnt help haha, i cant wear a wrap or anything on my head ill start headbanging, im worried about staying up all night for this stupid thing, but to have to wear things idk if that would be possible, ahhh.\



followthereaper90, thanks for sharing ur experience as well hehe!


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2ukenkerl
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22 Apr 2009, 5:15 pm

I don't know why YOU want it, but here is a story about a young person with aspergers having an E.E.G. for epilepsy

[youtube]http://www.youtube.com/watch?v=EhcmxHjA9Ic[/youtube]



KingdomOfRats
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22 Apr 2009, 5:21 pm

Age,
am did a three day/two night portable EEG last year at hope hospital,and it was a bit different to Strapples experience [Strapples got the luxury treatment].
This may be different to every hospital,but...KoR got the electrodes glued down-this bit feels very very weird and stinks [fumes from the glue but it goes away quite quick]-no bandages,was wearing a baseball cap over the top anyway and had long hair at the time.

then they thread all of the wires down the back,into a special back pack.
part of the reason was there was for headbanging,so it would rip off most of the electrodes,and they had to keep scraping off the glue stuff of the loose electrodes to reapply some new ones several times a day.
The end result is a badly scarred head [and not from the head banging],depending on how much damage and scraping is done.

Because it's a portable EEG,are able to walk around the hospital and are not just stuck in a room all day and night,am went for walks with own day/night staff around the building for fresh air at day/night as it did not rain once which is unusual for salford-neuros say not to go out in rain with it,stay near building.
they've got patientline plus tv/computer combo things which pull over the bed-they're useless,bring a laptop and a walk and web card if possible for internet [they dont allow wifi connection from laptops at hope],that will be something to do.

But-long hair is a bit of a problem,will find hair stuck together unmoveable,and are pulling glue out of it for weeks on end-that shouldn't matter in the end though,as worsening memory is a lot more important to get checked out than bits of crappy glue stuck in the hair which will grow out or fall out anyway!
or have the lot cut short like KoR. :cat:

Am struggled extremely with staying in hospital,because of the changes,and routine change,as well as the extreme sensory onslaught,and strange people constantly coming in and changing over shift all the time[nurses]....but,am brought along alot of objects from own room,took photos of own bedroom and put them on the laptop,so could keep looking at them,all the sensory toys lined up along the side like at home,the fleece blankets,the quilt covers etc but not the sensory rug as that is far too heavy to carry-it helped am the walls were pale blue like bedroom as well.

Am think should do it,but make sure that get a private/side room,lots of distractions,and have family or boyfriend staying with self day/night if that helps.
It is a big thing,but what is more important? best to get it out the way,so can get an answer,or one thing to cross off the possible list.


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PunkyKat
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22 Apr 2009, 9:48 pm

I think I have some form of epilepsy myself but could not tolerate something like that without having a panic attack/meltdown. The best thing they can do is give me a perscription for diffrent seziure medications and let me find one I like. I cannot handle anything on my head whatsoever. I had an EEG once as a kid and was not allowed to hold on to my special stuffed animal and they had to keep restarting it over and over again because I kept twiching. I had full body tremors and couldn't help it. Hmm, I wonder if they restart the test when someone has a grand mal seziure? After that expirence, I had nightmares about EEGs for years. My seziures today occur with movement and every single EEG I have ever had I was not allowed to move so it would be useless. You also are supposed to wear something that buttons or zips so you can change your clothes. If you don't you have to wear a hospital gown. I can only tolerate T-shirts and just the thought of having to wear one of those ghastly things makes me have a meltdown. I'd have a panic attack and began to vomit from stress. I've also heard that they will sometimes extend them to 48 or even 74 hours or longer without prior notice. I will die of a scrambled and fried brain before I even think of having a 24 hour EEG.


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Strapples
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23 Apr 2009, 4:39 am

Age1600 wrote:
Strapples wrote:
Age1600 wrote:
Anybody ever done it before? if so could u tell me what they do and if i could handle it? want to know what its like from somebody who is on the spectrum before i even attempt to go through it. i cant handle much really, maybe an hour or two drs appt is still hard for me. Anyways i wasnt allowed to have a sleep study because my neurologist said i wouldnt be able to make it and to not even worth trying. I know I'm having siezures, or something, I'm losing my memory now, so I know I need to do something 8O :? . So if anybody can tell me about the 24 hour EEG, experiences, information, if mentally i could handle it or other solutions besides the EEG, love to hear from ya?


http://www.wrongplanet.net/postp2139480.html#2139480


oh gosh that thread doesnt help haha, i cant wear a wrap or anything on my head ill start headbanging, im worried about staying up all night for this stupid thing, but to have to wear things idk if that would be possible, ahhh.\



followthereaper90, thanks for sharing ur experience as well hehe!


i was doing my equivilent of headbanging... A banging head on laptop B whacking head with hand


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autismrocks
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26 May 2009, 11:03 pm

Age1600 wrote:
Anybody ever done it before? if so could u tell me what they do and if i could handle it? want to know what its like from somebody who is on the spectrum before i even attempt to go through it. i cant handle much really, maybe an hour or two drs appt is still hard for me. Anyways i wasnt allowed to have a sleep study because my neurologist said i wouldnt be able to make it and to not even worth trying. I know I'm having siezures, or something, I'm losing my memory now, so I know I need to do something 8O :? . So if anybody can tell me about the 24 hour EEG, experiences, information, if mentally i could handle it or other solutions besides the EEG, love to hear from ya?
i no i have seizures too i had a realley bad 1 last yeaur aug. with my behave therepist and his severeleyautisiic aspie kid sared the cwap out of me i had eeg s ,c.a.t.scans out the wazoombah tay still not find nothing , my memery sux tooevr sincethe grand mal last yeaur btw it lasted 10 min .i was unconcscouncous 12-15min. now i have to waer goodnites @datime and dipers @nitetime this sux i afrade to sleep @ nite cuz i mite have a seizure i have them in my sleep thats wut causes me to have accedents in my bed so mommy just has me waer dippers witch is ok wth me i nbo this aslo this has to do with the autism and now i cant rememer to go potty on my own cuz of my memery sumone has to change me at nite wen i have seizure :oops: if u dont mind me asking ,do u have this problim?? with wetting cuz of seizures, mine is this and from the amount of autism